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... The Neurologist is prescribing Prednisone 20 mg for me for Myasthenia Gravis. He has taken me off of Mestinon as it did not help at all, especially with the double vision. ... (3 replies)
... Hello, I am new to the group. This is going to be a long post, I am sorry, but please, anyone familiar with MG, please read - and offer insight. I have had symptoms of myasthenia gravis for several years; I have had an unbelievably long and stressful road of being diagnosed. I was originally diagnosed with tensilon test. My blood tests, including Musk are negative.... (23 replies)
... hello, my name is jashawn. i just found out i had Myasthenia gravis like 3 weeks ago. i also have thyroids problems. ... (4 replies)

... Repetitive Nerve Tests which said I had a neuromuscular junction defect that was consistent with Myasthenia Gravis but the bloodwork was neg for the first couple yrs and the tensilon test was negative also but my symptoms said it was indeed MG. ... (2 replies)
... I actually just joined this board for the exact same reason. My husband was recently diagnosed with Myasthenia Gravis. We are also in shock and very scared after reading all about this dissorder. My husband did have a thymoma and it was removed on November 30th. ... (5 replies)
... my name is nilly and i was taking prednisone for five years and finally i'm off of it thank god.. ... (3 replies)
... and right now is being treated with Mestinon, which has helped some. We're trying to get a confirmed dx in order to get further treatment. My understanding of Prednisone is that it can take a few months to be effective. ... (3 replies)
... hi i just paste myself im still working as a bridal consultant its the heat that kills me ive had my thymus gland removed im awaiting to hear from my consultant again now cant wait to get off the steriods though i was on 12 but on 2 now thank god id gained 3 stone (4 replies)
Myasthenia Gravis
Apr 28, 2010
... I'm a bit frightened I'll admit, because sometimes it seems as though the Mestinon and Prednisone are working, and sometimes not. I worry if the EMT and Single EMT are repeated, and turn out negative, what then? ... (11 replies)
... I was diagnosed 6 months ago with MG. I had the droopy eyelids to where they were little slits for me to see thru. I then had the double vision, extreme weakness in my arms and legs, trouble with swallowing and now it seems a big effort to breathe normally sometimes. The Pyridostism, Prednisone, and Mestinon have not helped alot other than my eyes stay open more. Now I just... (4 replies)
... We tried Mestinon but it didn't do anything (literally, nothing). We have tried Prednisone now which has helped some (not a miracle cure by any means and I certainly cannot tolerate it for the long run) but it does allow me to exercise at times. I have asked the exercise question of many different specialists (the question being, of course, is exercise a good idea when I... (23 replies)
... similar symptoms myself nurologists comfirmed I have bulbar onset ALS, take vit E, B's 6&12 and lots of c and be ready to buiy the book eric is wining. Hope it's different like lyme disease or something good luck (23 replies)
... In the meantime, my original neurologist has put me on a seriously high dose of Prednisone as a diagnostic tool. ... (23 replies)
... Hi. I am having a similar experience to what NotSureWhat is experiencing (although mine is with doctors in the same town, even in the same office if you can believe that!). It has been about two years of debilitating symptoms (horrible double vision, weak torso & neck, and occasional difficulty breathing). My blood tests were negative but my SFEMG was positive (but again,... (23 replies)
... Hi, Deborah, It was nice hearing from you, but I am sorry to hear that your mom's condition has been so poor. Have her doctors tried any of the immunosuppressant drugs, including prednisone, Imuran, Cyclosporine, or CellCept--or other treatments, such as IVIG infusions or plasmapheresis? I do wish her luck in managing her condition. I can certainly understand your... (12 replies)
... Was on Prednisone for 27 years, tried Mestinon, and others, but they do not help. I received 3,4 Diaminopyridine from Mayo Clinic but it doesn't help much. ... (14 replies)
Myasthenia Gravis
Jan 23, 2005
... Diaminopyradine. Was on Prednisone for 27 years! Do you work outside the home? ... (4 replies)
... We just found out a few months ago that my dad has myasthenia gravis and his symptoms are getting progressively worse. ... (62 replies)
... Hi all, My first post. My life changed drastically in December of 1995...but none of the specialists I've seen over the last 19 years can name what's wrong. The first time I noticed it was when I held a blowdryer above my head - my arm felt like it was going numb, losing strength. I lowered it, felt it come back to life and raised it again, but it quickly... (5 replies)
... I see the Neurologist this Wednesday and will see what he says. So far, it is not helping my problem and I am leaning toward wanting to get off the stuff. Sara (3 replies)

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