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Neuromuscular Diseases Board Index
Pages: 1Showing 1 - 7 of 7 for hnpp neuropathy. (0.001 seconds)

... d it seems very annoying. It's odd there's so little information about the condition. I was diagnosed by one of the few doctors in Sweden who actually knows what HNPP is, and even he didn't have much information about it. ... (4 replies)
... My legs are very strong except for that one area and my ankle area too, I have troubles there sometimes after walking a long distance. HNPP is a bummer, but I figure we're lucky because it's not as bad as a whole lot of other diseases. ... (4 replies)
... We went to the neurologist yesterday, obviously he can't tell us any more than we already know, but at least dh is starting to note that he needs to keep an eye on the situation, he could not walk properly for weeks and had terrible drop foot, we thought he would end in a wheelchair at one point :eek: But as the blasted thing does one day he woke up fine. His arm is more... (4 replies)

... hi, am glad i found this thread :) , my husband has had hnpp symptoms since he was 16, (completely dead arm for months) finally diagnosed at 19, but told very little about this condition, he has basic symptoms on a day to day basis, fingers scalp hand etc, and we are not to worried about this, recently however his right leg has gone completely dead and he has drop foot really... (4 replies)
... I was recently diagnosed with HNPP and am looking for information from others with this autosomal-dominant disorder. I have a lot of pain in my hands and feet so at this point it is almost welcome when they go numb! If you are willing to tell me a little info if you happen to know, it would be most welcome! :wave: (4 replies)
Body numbness
Jul 25, 2004
... on had something like that happen when he was 15. The first neurologist couldn't figure it out, so we went to a different one. We found out my son has Hereditary Neuropathy with Pressure Palsies, abbreviated as HNPP. It's diagnosed with a DNA test. There is a website somewhere that has lots of information. ... (1 replies)
... Hi i was wondering if you had been tested for hnpp,heritary neuropathy liability to pressure palsies. ... (1 replies)

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