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Don't let the doctor blow you off and try to ignore these symptoms. You need some tests to determine cause. I had numbness and nerve pain on/off for 20+ years and finally diagnosed a couple months ago with small fiber neuropathy.

The first clue I had that was blown off by doctors was I went to a physical therapist for Mienere's disease and they tested the sensation in my feet. I had no idea at that time I had reduced sensation but no doctor ever cared. Also a nerve down my left leg was numb for 15 years. Again blown off. My other symptoms are bladder problems and stomach problems (all symptoms of sfn) but each doctor didn't find a cause and blew them off. I thought I was crazy. Finally severe pain drove me to getting a nerve conduction study which was negative (that's normal with sfn) but I was again blown off. After nearly 20 years I've been properly diagnosed.

So my advice is don't let them blow you off. Ask for the test that checks sensation in your feet and possibly a nerve conduction study. Find a good neurologist who doesn't blow you off.

Good luck.
Hello,

Can you please explain how was your sfn diagnosed? Nerve conduction test cannot diagnose sfn. So whats the test for sfn?

Thanks,
dsan.



[QUOTE=grandmadukes;5501114]Don't let the doctor blow you off and try to ignore these symptoms. You need some tests to determine cause. I had numbness and nerve pain on/off for 20+ years and finally diagnosed a couple months ago with small fiber neuropathy.

The first clue I had that was blown off by doctors was I went to a physical therapist for Mienere's disease and they tested the sensation in my feet. I had no idea at that time I had reduced sensation but no doctor ever cared. Also a nerve down my left leg was numb for 15 years. Again blown off. My other symptoms are bladder problems and stomach problems (all symptoms of sfn) but each doctor didn't find a cause and blew them off. I thought I was crazy. Finally severe pain drove me to getting a nerve conduction study which was negative (that's normal with sfn) but I was again blown off. After nearly 20 years I've been properly diagnosed.

So my advice is don't let them blow you off. Ask for the test that checks sensation in your feet and possibly a nerve conduction study. Find a good neurologist who doesn't blow you off.

Good luck.[/QUOTE]
I have peripheral neuropathy. It doesn't exactly sound like that. That gets progressively worse. It doesn't matter if I stand, walk, sit or sleep, I have pain. Is it possible that you have a disc in your back that is putting pressure on a nerve? I find it interesting that the feeling goes away when you stand.





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