It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board


Neuropathy Board Index
Board Index > Neuropathy | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Hi, I am new to this board. Around 2 months ago after getting a bad cold I got numbness and tingling and loss of strength in my hands (ring/pinky fingers and outside the worst). Finally was able to see a neurologist and had and EMG done this week which confirmed ulnar neuropathy. I have done numerous blood tests and am going to do a 24 hour urine test. He is seeing my again at the end of December. I don't know why we are waiting so long to meet for a followup. He has ruled out diabetes and some other stuff. For now until we get the results of the latest bloodwork he just said to stay off my elbows, take a vitamin supplement and followup with my GP regarding the fatigue and joint pain.

I am not very good at describing symptoms but some of them are or have been the following:
I also have some numbness in my feet. Burning on the top of my right foot. Chronic fatigue. Insomnia. Sometimes it feels as if I have numbness in my face and one eye in particular. Muscle aches in various parts of my body and major pain in my hips, shoulder and knees. I began to think that I had rheumatoid arthritis but after reading these posts on this board i'm thinking neuropathy in general - also I tested negative for RA. I really don't know. It is extremely frustrating. My neurologist has not ordered any MRI's.

My family seems at times disbelieving of my symptoms. Take better care of yourself. Stretch more, eat right, exericise. I have a hard enough time sometimes getting from one end of the house to the other. I am exhausted. I term my days now by "bad body day" or not good day or better day. Never a good day for a while now.

I am very distressed at not being able to pinpoint the cause. I get depressed when I read that for some it has taken years for a proper diagnosis. As I write I am exhausted. I'm sorry if this seems disorganized but my fatigue has effected my capabilities to think.

Anyway, I am glad this board is here where I might benefit from others experience, strength and hope. And hopefully I can give back as well.

One Day at a Time
Jennifer
Read on: My experience, related below, ended with good news!

I have just been tentatively diagnosed with something called Celiac disease. It is a profound, inherited intolerance to the gluten in wheat, barley, rye, and oats. I cannot eat even a minicule amount. This diagnosis also explains my peripheral neuropathy (confirmed by EMG). I have noted for many years increasing numbness in both soles of my feet, pain, and weakness in both kegs, so severe I cannot get up easily from a chair, cannot run without my knees buckling, etc. Even standing is unbearable.

There is a simple blood test for the Celiac sufferer. And--most joyful--there is a totally effective treatment: cut all gluten from your diet. It can be a bit intimidating to start; I'm learning that even stuff like honey is full of gluten. But it is do-able and well worth it!

I had no clue that I was intolerant to gluten (in wheat, etc) because the symptoms do not always manifest themselves immediately after eating (though sometimes do so often rather more violently than is fun!). I was told long ago that I suffered from something called Irritable Bowel Syndrome--NOT! Now I know that Celiac Disease (CD) has been the culprit since before I was born (in vitro damage to cells was recently discovered likely).

I don't know yet (just diagnosed) whether my PN symtomatology will reverse, but at least I am certain it will not get worse.

I would love to hear from any of you if this helps.

Cheers
Mary Bethany

[QUOTE=jm1311]Hi, I am new to this board. Around 2 months ago after getting a bad cold I got numbness and tingling and loss of strength in my hands (ring/pinky fingers and outside the worst). Finally was able to see a neurologist and had and EMG done this week which confirmed ulnar neuropathy. I have done numerous blood tests and am going to do a 24 hour urine test. He is seeing my again at the end of December. I don't know why we are waiting so long to meet for a followup. He has ruled out diabetes and some other stuff. For now until we get the results of the latest bloodwork he just said to stay off my elbows, take a vitamin supplement and followup with my GP regarding the fatigue and joint pain.

I am not very good at describing symptoms but some of them are or have been the following:
I also have some numbness in my feet. Burning on the top of my right foot. Chronic fatigue. Insomnia. Sometimes it feels as if I have numbness in my face and one eye in particular. Muscle aches in various parts of my body and major pain in my hips, shoulder and knees. I began to think that I had rheumatoid arthritis but after reading these posts on this board i'm thinking neuropathy in general - also I tested negative for RA. I really don't know. It is extremely frustrating. My neurologist has not ordered any MRI's.

My family seems at times disbelieving of my symptoms. Take better care of yourself. Stretch more, eat right, exericise. I have a hard enough time sometimes getting from one end of the house to the other. I am exhausted. I term my days now by "bad body day" or not good day or better day. Never a good day for a while now.

I am very distressed at not being able to pinpoint the cause. I get depressed when I read that for some it has taken years for a proper diagnosis. As I write I am exhausted. I'm sorry if this seems disorganized but my fatigue has effected my capabilities to think.

Anyway, I am glad this board is here where I might benefit from others experience, strength and hope. And hopefully I can give back as well.

One Day at a Time
Jennifer[/QUOTE]





All times are GMT -7. The time now is 02:03 PM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!