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[QUOTE=toody64]I am sorry you have to wait so long. My pain is mostly in my feet but I do feel the effects of the PN in my legs from time to time. I asked my Neurologist about it and she told me it would progress. Before we found a drug that would take care of the pain, I did have more pain in my legs. We have to know our limits I guess and not try to go beyond what we can do or put ourselves in a position that will make us regret it later. Burning, yes, I think that is the #1 sign for everyone with PN. My pain gets so bad I am unable to do much of anything, and I am forever telling my husband how sorry I am that he has to do so much for me. The Neurologist will do some tests on you of which none of them really hurt. This is to see if there is nerve damage etc. Do you have Diabetes? this is the #1 cause of PN. There are many other causes. Mine is of an unknown cause. I hope it turns out well for you and this is not what you have. It is a horrible condition and I would not wish it on my worst enemy. I am so sorry for being so discouraging but that's the way it is. But when the right medications are found for you, you almost forget you have it. Until you have flareups. I take Lamictal and Zonegran, five others were tried before these, one each month, and each month I had such awful side affects I would be in bed for a week. :) My best to you and I hope all goes well for you.
toody64 in California[/QUOTE]

Thanks so much for the reply. No I don't have diabetes. Vicadin and Prendisone seem to help me. But I do not want to take them every day. I have to ask about the drugs you mentioned. I'm tempted to try something I seen on the web. A verson of vitamin B-1. Supposedly it works to repair nerve problems in mice. It's popular in Europe. I'm dreading going to doctor for fear of having ALS.
Thanks Again

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