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Hello,
I am new to the boards but experiencing problems I was hoping someone could give me insights into. My story is a long one but I feel I must share all to get help.

In October of 04 my feet began burning and down from my left knee. My knees also hurt unbelievably to kneel on. I couldn't stand to wear shoes, even socks. Thinking I needed some B vitamins I loaded up but the burning and tingling changed to pain by November in the ball of my foot when I wore shoes.
I'm on HRT, discussed with my OBGYN who found out my estrogen levels were low/ progesterone normal. So, we raised the estrogen thinking this was hte culprit.

By December I had an arthritic type feeling in my toes. If I squeezed my foot, it hurt or if I pushed sideways on them. There was a a rubber-band snapping-like sensation in my arch and a feeling as if walking on bone across the bottom of my foot. Also, I felt like little cinders were under my skin and sparking pain near my toes etc. It was very weird.
My OBGYN suspected stress fractures, sent me for a DEXA--hip and spine normal as I went through ovarian failure at 37 and am now 40. I'd been seeing a soft-touch chiro off and on who worked on my legs (said I had 'pronation' problems when I walked) etc. but no improvement. The arthrtic feeling came and went more mildly in my hands.
By Jan.
my feel were feeling okay when barefoot but it hurt quite a lot to stand for longer than a few minutes. Felt like string pulling in one place on left foot near heel, sometimes a tickly feeling in toes, popping in ankles and slight stiffness.
Feb--all improving.
I gave up on the HRT idea and saw anothe MD. 12 x-rays of feet and lower legs--all okay.
Bone scan suggested as stress fractures still suspected, but I thought this unlikely and feared the radiation. Physician was so condesencing that I decided to tough it out for a while though I did go see a podiatrist. I really didn't feel I got my whole story out before he said he didn't think it was in my feet and I should go back to my doc. March--went to see another physician who said I had neropathy and that it didn't make sense, that it couldn't be my back unless a disk was miraculously bulging equally on both sides. She suggested I had anxiety issues and to come back if needed.
Feet all the time were improving and all pain/ issues gone for two weeks --unless walking on pavement for any length--until this weekend when I did a little boating.
Rubber band snaps, tingling, cold feel when not cold, pain upon walking, especially standing on hard surfaces--all back.

Before this ALL came on months ago I had a huge night of restless legs.(they hit me now and again). A few weeks before that I had a swollen feeling in one side of my head.
I did think of lyme and got the last doc to get me a western blot--came back "equivical" which the doc said was negative. If I was exposed to lyme it would have been a long time ago.
We're back now to the previous doc and to getting an MRI for my lower back next week. I requested a C-Reactive proten and Sed rate test and haven't got the results.
If I dont' use my feet they'll heal up and feel fine as long as I don't 'stress' things but it's getting me down. Also, during all this stuff from Nov to Jan my tailbone hurt real bad to put pressure on but all the docs just ignore this. It's really when pressure's put my feet now that I have aching and if I strain them the other stuff comes back for a few days while I rest.
Sorry for all this stuff but I am hoping someone will have some ideas as I need to find a more proactive doc and get some answers. Since thigns are improving I know I can tough it out but I'm just tired of the situation. I am also fearful of lyme becuase of the test, but wouldn't knwo what to do in any case.
Thank you
Libretto





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