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This might sound weird.. but I've been suffering through my myriad of ***arre symptoms for 10 yrs or so now. Not that long ago, my Neuro tested me for MS, Lupus, etc.. everything came back normal. I had the nerve conduction tests, etc.. those were normal. She told me that she didn't want to diagnose me as having Fibro, because I didn't quite fit that, either. :dizzy: I honestly don't know what to think.

Fast forward to a couple weeks ago, when my son (who has Autism) was sent to the genetics lab for some tests. I was giving some medical history, and the Dr asked me more about my problems and what my "neuropathy" consisted of. She looked at her assistant, and asked me if I'd ever been tested for something called Fabry's Disease. She said that it's most common in men, but it can show up in women (often in more mild form). It also can take years to diagnose, because not all the symptoms show up at the same time. But supposedly all a doctor needs to do is take a simple blood test to determine if you have it.

Here are some of the symptoms:

-burning or tingling, mostly of the hands and feet. (sometimes spread to other parts of body)
-pain from physical exertion
-sweating less than other people, or not at all.
-reddish purple rash on the trunk
-Corneal whorling (doesn't affect vision. can be seen in regular eye exam)
-Gastrointestinal problems
-Heart problems
-Kidney problems
-Nervous system problems (weakness, numbness, dizziness)
-Psychological and social issues


I have an appointment with my neuro on the 5th (of march) and I'm debating whether or not to ask her for this blood test. I don't want to walk in there demanding a test for something that I might not have, but then again, I'm tired of suffering from something that has yet to be diagnosed.

Has anybody else suffered from this? After years of thinking it was Neuropathy or something else?





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