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Hi everyone,
I wanted to give you all an update on my condition. After many tests, several thousands of dollars, and no diagnosis, I was at a lost and started to really research causes of idiopathic neuropathy. Given the sudden onset of my symptoms and overall good health before my symptoms began, I felt that I was exposed to something and that was the underlying culprit. I changed my diet, going gluten-free and eliminating all carbonated beverages, diet sodas, alcohol, etc... Still symptoms persisted. I tried a number of herbal supplements and vitamin regimes, which did seem to lessen my symptoms but not eliminate them.

Then last February, I decided to have my mercury fillings removed and replaced. My doctors thought I was crazy and would not prescribe any chelation therapy because they did not believe mercury poisoning from fillings was the problem. Consequently, I ordered chelation drugs online and began three rounds of chelation treatment. Although it took around 9 months, I can now say that I'm symptom-free and back in good health. No more shooting nerve pains, loss of senses, headaches, sinus infections, blurred vision, dizziness, fatigue, facial flushing, etc... I had to self-diagnose (which can be dangerous) but I'm convinced that I'm extremely sensitive to mercury and the amount of mercury leaching from the amalgam fillings I had caused my chronic problems. My advice is to always listen to your body and never give up looking for the answer because MDs don't know everything and often have difficulty thinking "outside the box" when symptoms don't fit a typical presentation that they learned in med school.

What is frustrating to me is when a doctor will not listen to your opinion and ideas because you didn't go to medical school and they did. I honestly had my neurologist say this to me. Unfortunately, she didn't realize that I'm well versed in biology and have a doctorate in the field. Don't be afraid to speak up.

Best,

Matt
[QUOTE=nemotin;4787295]Hi everyone,
I wanted to give you all an update on my condition. After many tests, several thousands of dollars, and no diagnosis, I was at a lost and started to really research causes of idiopathic neuropathy. Given the sudden onset of my symptoms and overall good health before my symptoms began, I felt that I was exposed to something and that was the underlying culprit. I changed my diet, going gluten-free and eliminating all carbonated beverages, diet sodas, alcohol, etc... Still symptoms persisted. I tried a number of herbal supplements and vitamin regimes, which did seem to lessen my symptoms but not eliminate them.

Then last February, I decided to have my mercury fillings removed and replaced. My doctors thought I was crazy and would not prescribe any chelation therapy because they did not believe mercury poisoning from fillings was the problem. Consequently, I ordered chelation drugs online and began three rounds of chelation treatment. Although it took around 9 months, I can now say that I'm symptom-free and back in good health. No more shooting nerve pains, loss of senses, headaches, sinus infections, blurred vision, dizziness, fatigue, facial flushing, etc... I had to self-diagnose (which can be dangerous) but I'm convinced that I'm extremely sensitive to mercury and the amount of mercury leaching from the amalgam fillings I had caused my chronic problems. My advice is to always listen to your body and never give up looking for the answer because MDs don't know everything and often have difficulty thinking "outside the box" when symptoms don't fit a typical presentation that they learned in med school.

What is frustrating to me is when a doctor will not listen to your opinion and ideas because you didn't go to medical school and they did. I honestly had my neurologist say this to me. Unfortunately, she didn't realize that I'm well versed in biology and have a doctorate in the field. Don't be afraid to speak up.

Best,

Matt[/QUOTE]

Though I have never had a drink of any sort, I feel as though we have many similar symptons. I too had mercury removal performed. I only had it removed from the side of my mouth where I was having extreme jaw pain. Unfortunately, I have seen no relief after the mercury removal.

Keep us posted on here from time to time. Good news is always welcomed here on the boards!
Matt, I like you, have done a lot of research. Neural damage may be caused by a host of things; genetic, alcohol, diabetic, from an accident, etc.
Mine was apparently passed on to me by my mother. I have pernicious aenemia. The condition is one whereby your body lacks the ability to absorb
B12. A chronic lack of B12, if untreated, will result in nerve damage that manifests itself as searing pain or numbness in the extremities, a loss of sense of Balance, and a weakness in the legs.(Neuropathy)
The chronic lack of B12 can be treated by injections at regular intervals at whatever level you require to fully replace B12. I take 1 cc of Vitamin B12
(Cyanocobalamin) once a week. It has made a difference for me. I still have some numbness and tingling but I have not yet had any of my earlier painful symptoms reappear.
You can be diagnosed for pernicious aenemia by a Shillings test, a test that establishes the level of absorbed B12 in your system.
Like you, if I drink alcohol, my neuropathy gets worse.
Good luck! Longgrub
Matt, I too am trying to discover the cause of my "idiopathic small fiber peripheral neuropathy." My journey started with numbness in the soles of both feet back in 2001 and dramatically progressed up through the feet, ankles, lower limbs, fingers, hands, wrists, lower arms when I started training for running a marathon in 2001. I was 72 years old at the time. After completing the marathon the numbness had become so bad that it felt like I was wearing tight heavy stockings when I was barefoot. No pain, thank god, but numbness progressively advancing all over my entire body, with numb tingling scalp, cheeks, tongue, buttocks, etc. All over me, just numbness and tingling. The doctors sent me for all examinations and lab tests known to mankind and they could discover no cause. I am not diabetic, no vitamin deficiencies, no neurological damage found, no spinal damage, no low B-12, no Celiac or Lyme disease, no, no no no. They eventually told me there was nothing more they could do and to this day I still am experiencing overall body peripheral numbness and tingling. All over my entire body, but most pronounced in the feet, legs, and hands. I have come to the conclusion (unverified to date) that the cause may be the running - the pounding on my spinal column which can be hard on spinal discs, especially at my age where they have begun to degenerate. My neurosurgeon, years ago, told me to stop running! Then I ran a marathon. What can I say?

I now run no more. I just watch with envy those younger than I who are still running. I hope they are not doing damage to their spinal column and nervous system like I was doing! My advice to you is to stop running. Just walk. Speed walk if you like. Then secondly, take mega doses of Vitamin C (to rebuild tissue collagen throughout your body) and lots of Vitamin B-12 (sublingual 5000 mg daily) or go in for high dose Vitamin B-12 injections. You may find some relief to the numbness after a time, but once damaged, it's not easy to rebuild the damaged mylan nerve fiber.

Also, I would advise you to stop all consumption of all wheat and dairy products. And no more sugar in anything. It's poison and it's addictive. Wean yourself off all foodstuff containing sugar! Eat fruit and fresh vegetables.

If you do all these things, you will probably note improvement in your well being and hopefully reversal of the neuropathy over a length of time. But, most importantly, stop running! It damages the knee joints and the spinal chord. You will suffer for it if you continue to run (except of course on those occasions when you're trying to catch a bus!).





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