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Re: Vitamin b-6
Jan 29, 2010
[QUOTE=Laurie S;4173511]What coctails are you referring to? I do not find that part of the conversation, and I am interested too in repairing nerve damage. Has someone had sucess with that? If so which symptoms have been helped? is there an order to nerve repair? feet, hands, numbness, weakness, coordination? I have been suppementing with b12 oral, and the shots, Very strict mostly organic, close to macro-biotic diet,,sup0plements too but I've just been at it a month. I have not had weakness for a few weeks.[/QUOTE]

Laurie, Aussie and I were speaking of B6, and he was explaining to me that it can cause greater nerve damage, but it has to be a greater amount than what I'm taking. From what I've been reading, and through the kind people on this site, B6, B12, B2, folic acid, and Thiamine might be our best bet. It has to be the kind that is absorbed in the body, though, as I'm pretty sure there are kinds that aren't absorbed. I'm still learning too. Read the whole thread, meaning all 11 posts, or however many there are, and maybe you'll understand it a little better. "Google" B vitamins and nerve damage and see what you find. I wish I could help more, but maybe this will give you a start.

As far as the B12 shots, my doctor told me that they wouldn't stay in the body long enough to do any good, so that's one of the reasons I started taking the kind of B12 that "is" supposedly absorbed. I'm like you.... I don't have the time or money to play around. We want results!

Hopefully Aussie will chime in soon!

Take care. If it's any consolation, I know a lot about how you feel and how desperate you are.

:angel: Hugs!
Re: Vitamin b-6
Feb 26, 2010
I have had PN since 2004 and in 2008 was also diagnosed with Autonomic Neuropathy. Over the years, I have had B12 checked on a regular basis, and it was always within normal ranges. Then, in 2009 I was referred to a Neuromuscular Clinic. The doctor there did a full B panel. And found my B6 too low. Normal ranges are 5.0 to 30.0. Mine was 2.6.

I was started on 100 mg daily of B6. I did some internet research on B6 (Pyridoxine) deficiency. I realize I can’t state the sources, but here are quotes from some of the articles I found:

[QUOTE]Pyridoxine deficiency is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Pyridoxine deficiency, or a subtype of Pyridoxine deficiency, affects less than 200,000 people in the US population.[/QUOTE]

[QUOTE]Pyridoxine deficiency causes blood, skin, and nerve changes. [B][COLOR="Blue"]This vitamin is unique in that either deficiency or excess can cause peripheral neuropathy[/COLOR][/B].[/QUOTE]

[QUOTE]Pyridoxine absorption is reduced in elderly persons and in patients with intestinal disease or who have undergone surgery.[/QUOTE]

[QUOTE]Acquired deficiency is associated with inflammatory disorders and with concurrent use of several medications.[/QUOTE]

Several medications were listed that could contribute to a Pyridoxine deficiency, but two jumped out for me: anticonvulsants and antidepressants. I am on both. And, since I have also had abdominal surgery 13 times, I probably have a double whammy.

Within a month of taking the B6 supplements, I started to come alive again. That lasted about 3 months, when I started to feel the slide. The next time I saw the doctor, my B6 level had fallen even lower to 1.9.

I was told to increase the B6 until I was feeling good again. I am now at 200 mg a day, and feeling like joining the human race. If your doctor has suggested B6 supplements, he may be right.

Probably the only question I would have for you is this: Is he just having you ‘try’ it, or is his recommendation supported by lab tests?

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