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Neuropathy Message Board


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New Here
Dec 23, 2001
Hello all. I am new to this board, but not to neuropathy.
I was told that I had PN in August of 2000, after a numb, burning pinkie toe, wouldn't subside.
Since then, I have been diagnosed with Idiopathic Progressive Polyneuropathy. It affects my limbs, and is suspect in affecting the bladder as well. I have weak legs, numb feet, burning, incessant itching, electric shocks, pins and needles, the feel of swelling, thumping feet while wearing shoes, and a freezing feeling in my achilles tendons.
Oddly enough, I have an absent ankle jerk, yet, I am hyperreflexive in the knees.
I have had the works done on my body, as far as serology, and diagnostic studies, all of which are within normal ranges, even though the EMG/NCV shows the neuropathy. I had a low-normal B-12, for which I take 1000 mcgs of B-12 (sublingual), 1200 mg of Neurontin, percocet for pain, trazadone at night for sleep, wellbutrin for major depression due to chronic pain, and arthritech for swelling.
I think it's time that I increase the Neurontin, as the burning is returning. I guess there's not much they can do for the other symptoms of the neuropathy. I've tried so much.
I won't go the IVIG route, as it hasn't been proven to help "idiopathic" types of neuropathy. TENS unit helped only for a short while, then it just stopped working.
I also suffer from Thoracic Outlet Syndrome, which is very painful; a neurogenic bladder, migraines, left ulnar neuropathy, c-6/7 radiculopathy, all thoracic bulging discs, mild, and mild scoliosis.
My sympathies to you all who suffer with these horrid diseases. I can surely empathize with you all. If there's anything I can do, or send links for reference, just let me know. Over the past few months, I have accumulated quite an arsenal of information on my conditions, as well as many others. Just give me a holler, and I'd be more than happy to oblige.
Merry Christmas, and Happy New Year to you all.
Vanilla





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