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What helped me
Oct 27, 2003
Thought i'd post a message to let others know what helped me get substantially over this illness.

2.5 years ago, I was in bed, unable to move. Severe full body burning pins and needles, visual problems (mainly oscillopsia and fuzziness), balance problems, insomnia, nausea, muscle pain, fatigue. I was in a real mess.

Now, the only symtoms I have are pins and needles (not as bad, nor as painful, fuzzy vision, but less and a little insomnia. I'd say i'm 80% better.

The multitude of tests, typically, revealled nothing.

5. simple things I can attribute to my improved situation.

1. Removing all stress, and trying not to worry

2. A radical shift in diet. NO REFINED SUGAR. Just fruit, vegetables, legumes, grains, and rarely, meat. I still had milk. Included were good oils like flax containing omega3. Lots of water too!
I also made up a 'super drink', on most days. Check the next posting.

3. Vestibular exercises for vision. I recommend this to anyone who has balance problems or fuzzy vsion. A search on google will yield lots of info. Basically the exercises are all the same.

4. Keep moving, despite feeling crook. If you don't use it, you lose it! If you can't walk, do light weights. The CNS needs activity to habituate to normal living conditions. It will also help with sleep.

5. Use the lowest amount of pain blocker you can. The problems with gabapentin and amitryptaline is that they reduce your perception of symptoms, so it's difficult to monitor exactly how you are progressing (or regressing). Personally I prefer the latter drug. The long-term effects are minimal.

I hope this helps people,

James


Re: What helped me
Oct 28, 2003
It's been a gradual improvement over the last year. I am virtually pain free now, but experience low level pins and needles, which is really just an annoying thing, but hardly debiliating. I can live with that!
Best of luck,

James
Re: What helped me
Dec 13, 2003
James ,
I have a question for you? Are you able to work? I've been suffering for over 2 years now and it is progrssivialy getting worse. I was injured at work and it looks like they're going for a 100% disability for me. I was always very self suffient and this is driving me crazy. Keeping busy is getting me through this. I raise birds and have several aniamls and carrying for them is great therapy for me. but at this point I am unable to work and the financial burden is great. we're you ever at the point where you couldn't work ? thanks for your input. Iwill try change in eatting habits to see if there is any improvement. though it's difficult when you have no appetite.
marianne
[QUOTE=jamesmc]Thought i'd post a message to let others know what helped me get substantially over this illness.

2.5 years ago, I was in bed, unable to move. Severe full body burning pins and needles, visual problems (mainly oscillopsia and fuzziness), balance problems, insomnia, nausea, muscle pain, fatigue. I was in a real mess.

Now, the only symtoms I have are pins and needles (not as bad, nor as painful, fuzzy vision, but less and a little insomnia. I'd say i'm 80% better.

The multitude of tests, typically, revealled nothing.

5. simple things I can attribute to my improved situation.

1. Removing all stress, and trying not to worry

2. A radical shift in diet. NO REFINED SUGAR. Just fruit, vegetables, legumes, grains, and rarely, meat. I still had milk. Included were good oils like flax containing omega3. Lots of water too!
I also made up a 'super drink', on most days. Check the next posting.

3. Vestibular exercises for vision. I recommend this to anyone who has balance problems or fuzzy vsion. A search on google will yield lots of info. Basically the exercises are all the same.

4. Keep moving, despite feeling crook. If you don't use it, you lose it! If you can't walk, do light weights. The CNS needs activity to habituate to normal living conditions. It will also help with sleep.

5. Use the lowest amount of pain blocker you can. The problems with gabapentin and amitryptaline is that they reduce your perception of symptoms, so it's difficult to monitor exactly how you are progressing (or regressing). Personally I prefer the latter drug. The long-term effects are minimal.

I hope this helps people,

James[/QUOTE]





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