It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board


Neuropathy Board Index
Board Index > Neuropathy | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Snicker,
You are not the only one. I have neuropathy in my feet. I am not diabetic and it is not because of my back.

I started seeing a neurologist about a year ago to determine the cause of my neuropathy and I think I threw the poor doctor for a loop, but he stuck by me. He saw how red and purple my feet got. He saw the pain on my face when he touched my feet.
He saw how difficult it could be for me to walk. He listened to my other symptoms without treating me like I was crazy. He ordered Mris, cat scans, and even a pet scan which scared me. When those came back normal. He ordered lots and lots of blood test and a twenty four hour urine test. I would go back to him for a follow up and he would order more and more blood tests. I got to know the folks at the lab on a first name basis. They all knew me there. There was a method to his ordering all the blood work, he was looking at my vitamin and mineral levels. What he saw was that with each test I was consistently on the very low end of the acceptable rates for Vitamin b1 (thiamine) and vitamin d. These were the only two vitamins my body seemed to be low on.

He suggested that I try taking these two vitamins sublingualy. The military facility I go to does not carry them in the pharmacy but he told me I could probably find them at a health food store. He said it was a stab in the dark for him to suggest it but it couldn't hurt. Well, it didn't hurt within a very short time of me disolving the sublingual thiamine my feet eased up a little. I was dancing on clouds and my husband had to tell me to slow down. My feet weren't 100 percent, I would say about 30 percent better than they have felt in a long time. I have kept up with the vitamin regimen and I can say I have many more good days than bad now. But now it is more managable for me. On bad days I soak my feet in ice water and then soak them in warm water. I do add some mint, lavendar or other herbs from my garden to make it a more pleasant experience.

My husbands gives me a nightly foot massage (something He couldn't do before, because it either hurt too bad or was an unpleasant experience) This seems to help get the circulation going.

I am in the process of weaning of the gabapentin my neurologist first prescribed. I am down to 500 mg 3 times a day. I was up to 800 mg three times a day. Tomorrow I am dropping it down to 400 mg three times a day. I am weaning myself slowly from this drug because I have heard too many stories of folks who have had bad experiences when just stopping the drug or weaning off of it too fast.

I also go to an acupuncturist. I know it sounds weird but on the first visit I actually felt nerve activity in my feet. I cannot afford to go there a lot but it does help. After my second visit to him I was driving home and kicked off my sandals. I didn't have to put on the socks and slippers I kept in the car I was able to drive barefoot something else I haven't been able to do in a while.

Do not give up, do not say that the doctors tell me that the only way of dealing with it is pain management. Research, find what works for you. It took a lot of time and an understanding doctor but I found what works for the time being and if it get worse I will find what works for that moment in time.

Best of everything to you Snickers, you deserve it I know the pain and suffering you are going through. You are not the only one.





All times are GMT -7. The time now is 12:15 AM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!