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I feel for you! Your back surgery can easily have created neuropathic problems, as is all too common in disc fusion procedures. Unfortunately, your neurologist is unwilling to accept your explanation of your symptoms, and is brushing you off by suggesting an auto-immune disorder. But even if you did have an auto-immune disorder that was triggered by the trauma to your system from your back surgery, your neurologist should be accepting his role in treating you.

Neuralgia patients from all over the world have repeated this same story over and over again on neurology websites that I've been involved with. If some of these doctors did the kind of research that we've been forced to do, they would see how they are missing the opportunity to treat their patients effectively.

At this point, you probably ought to be seeing a pain physician in a pain clinic, preferably one affiliated with a teaching hospital. Interventional pain treatment has become one of the fastest growing medical fields in the past decade or two, and it's primarily because pain has been so poorly understood. If a doctor couldn't nail down your diagnosis, they presumed the pain was not real, and that you were imagining it (or worse, that you were faking it.) Unfortunately, this is still too common a scenario these days.

Do not give up, but realize that you may have to go "doctor-shopping" until you find one willing to treat you for your symptoms, realizing that pain medicine is still in its infancy.

Luckily, the number of medications available for neuropathy has increased drastically in the past two decades. Tricyclic antidepressants and opioids used to be about the only pharmacological treatments available, but many newer (and improvements on older) classes of drugs have given doctors and patients more options. Selective serotonin reuptake inhibitors (SSRIs,) and selective norepinepherine reuptake inhibitors (SNRIs) are often very effective at treating neuropathies, along with anti-seizure and anti-anxiety drugs. You may have to try several before you find one or more that help you, so be patient. You most likely will get substantial relief from one or more of these meds.

In addition, you may want to try accupuncture or nerve stimulation (like TENS units.) Finally, you should have complete bloodwork to rule out vitamin deficincies and other diseases (like Lyme Disease or Systemic Lupus.) All of these can cause or exacerbate nerve discomfort.

Best of luck,


[QUOTE=susumu;4616163]hi: i am new and i have small fibre neuopathy. my question is does anyone else get the different types of pain throught thier entire body. what feel like shocks or stabbing pain. burning patches of skin. i get these types of pain all over on every part of my body. when i told my neurolagist he just looked at me like i was crazy and told me that it was'nt possible. i had back surgery two years ago and have had these symptems ever since. they seem to get worse as my activity level goes up but even if i sit to long in one place i will begin to get the symptoms. i have taken all of their tests and everything comes out negetive. i have told them that it began right after the surgery and they tell me that i must have had some sort of autoimmune disease that set it off but they just dont know what it is. i have tryied every drug they have given me and none seem to work over the long run. i now take a small amount of doxepin to help me get to sleep at night when the pain i to severe. any help would be a great help.
thanks :)[/QUOTE]

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