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Looking for advice
Jul 27, 2012
I have been having burning sensations in legs, numbness/tingling in arms & legs, muscle twitches, charlie horses in thighs, muscle weakness, shooting pains in arms, legs, fingers for 8 months now. It all started last Nov when I got very ill. Was told had a viral infection turned into flu. Three days later could barely walk (took almost 2 months to regain normal walking) legs were numb, felt strained and weak (also in both arms from elbow to shoulder). Every time I catch a cold since it flares up & a different part of me gets affected with same symptoms. Have had 2 EMG's, hip & spine xrays, brain mri, spinal tap, and a ton of blood work done which has all come back normal. My doctor has me on 300mg gabapentin which I take 2 in the morning & 2 at night. It has helped make me be more of a funtionable person but just masks the problem. Neurologist said there is nothing neurologically wrong with me. Any suggestions or anyone going through similar symptoms that has any advise would be greatly appreciated. :confused:
It almost sounds like you started with a form of Gullian Bare disease. It can cause a person to lose function of their arms and legs. Now it sounds like you are dealing with neuropathy. The burning sensation, cramps, shooting pains and numbness and tingling all stack up like it. If you have SFN it will not show on an EMG.

I myself started with pain at the bottoms of my feet, then numbness. The stabbing pains and burning came along later as I did not progress as quickly as you have.

Yes the gabapentin just masks the pain and such but with SFN that's about as good as it gets. I am on Lyrica which is in the same family and a narcotic pain killer.

A skin biopsy will show SFN if you have it, the only other option is a sural nerve biopsy but it is sorta invasive.

I wish you luck getting to the Cleveland clinic.

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