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Pages: 1Showing 1 - 17 of 17 for cidp prednisone. (0.002 seconds)


Cidp
Aug 5, 2005
... was left with a possibility of two or three possibilities and refered back to my Vermont doctor. Through the process of ellimination and the passage of time the CIDP was diagnosed. It seems to have fit over the long haul. ... (4 replies)
CIDP - new member
Oct 27, 2008
... After a few months she took me off the Celebrex and prescribed Prednisone and I continued the neurontin, though she boosted up the mg's. ... (4 replies)
... i looked like a big bruise from all the shots i had to take in the stomich my immune system was so lo from the prednisone where my legs were leaking got infected spent 3 days in the hospital by then all of my symptoms were getting worse fast. ... (0 replies)

... s and have suggestions for the DR. as soon as he asks. I tell him what I think. Make a plan of action but do the research first. keep your chin up. If you are on prednisone you should watch that you are not around other sick people. You should also have blood done monthy. ... (1 replies)
... Hi everyone - I have had CIDP for 26 years (I'm only 32 years old). Yes, it is possible to live a long time with this disease. This type of neuropathy is fairly rare (something like 1:200,000 have it). My original treatments (11 years) consisted of high dose prednisone & Imuran. Dr weaned me from these and placed me on high dose IVIG, that worked for awhile, then I began to... (8 replies)
... Just looking for others with CIDP to get some input on long term prognosis. ... (8 replies)
Cidp
Dec 8, 2012
... Thanks a lot! I had been on Imuran and high doses of Prednisone for a few years,however, the drugs began to take their toll on me, which is why the neurologist feels it's best to let the disease run it's course. ... (2 replies)
... CIDP board would say use prednisone only as a last resort. ... (8 replies)
... Both Prednisone and IVG treatment, and also plasmapheresis, are the first line of treatment, as it is the case of GBS. ... (3 replies)
... Thanks for answering my post. I have been going through testing for 18 months and have had pretty much every test imaginable. It was first thought to be ms, then lupus, then vasculitis etc. To my knowledge the only abnormalities are sed rate 80, positive PANCA and emgs indicating asymetrical neuropathy. I finally landed at U of Michigan where the nerve biopsy was done. At that... (5 replies)
... I apologize if my story is too long. I will make a very long story as short as I can. December 2010 - I went into labor at 17 weeks due to an unknown blood clotting issue. I was able to deliver our son naturally but hours later I had to undergo a DNC for the placenta I was not able to deliver. January 2011 - I feel like I have been on my feet all day. They are tired and... (2 replies)
Nerve zap test
Jul 22, 2008
... Hi everyone I have CIDP (Chronic Inflammatory Demylenating Polyneuropathy) I also have tendinitis that is not going away it's been over 18 months. When I go see my Neurologist every 4 months she does the nerve test and twice did the needle in the muscle test. I never asked her for the result. But if I did what would normal numbers be and what would be bad numbers be? She is... (2 replies)
... Cathy, 'web' up CIDP and I bet you will find more than you ever thought you would want to know about it! Same with IVIG! ... (14 replies)
... n is a possibility. I don't know about it's efficacy during later pregnancies, but it's worth a shot to ask. I would guess that it'd probably be far safer than prednisone or other such treatments. ... (24 replies)
... Unfortunately, medicine does not have all the answers as to what causes many neuropathies. Once your doctor has ruled out vitamin deficiencies, diabetes, MS, infectious disease (like Lyme disease), etc. (blood work, brain MRI, spinal tap, EMG are some tests they will do), you may end up knowing what it isn't, but not necessarily what it is. In the meantime, there are... (6 replies)
... HI !!!!!!!!! I would love to know more info on the IVIg........please whatever you can tell me. I am curious to know what gram amount your Dr ordered for you???? I think mine is 65g witha 15% solution...for 14 weeks @ 2times per week and then maybe a maintence dose. My Dr claims the dose has to be just right for body weight etc. my DR ordering is a... (6 replies)
... I have CIDP (chronic immune mediated demyelinating polyneuropathy -- it's a mouthful!). Was diagnosed with much effort in about May and have been on both prednisone (intermittently) and IVIG since September. IVIG is very expensive and it took a lot of fighting from both my doctor and myself to get my insurance to approve it. I have done a lot of research on it (have a... (6 replies)


Associated Tags: cidp, polyneuropathy

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