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Pages: 1Showing 1 - 18 of 18 for cidp problems. (0.002 seconds)

CIDP - new member
Jun 14, 2009
... I have CIDP and have been having IVIG treatment for nearly a year now. ... (4 replies)
Aug 23, 2010
... Hi. I do have IVIG which i've had for the last 2yrs. Was having every 4 wks but now been cut to 8 weeks due to the cost. I was told that IVIG could cause blood clots so I have a Claxane injection before each infusion. I'm not sure what Claxane is but they always give it people who come in with DVT. I've just had my IVIG last week and feeling alot better but as I had to... (4 replies)
Aug 21, 2010
... The Dr.s have told me I have had cidp for 7 years. I have all the systoms you do and have spent the last 2 years mostly in bed. ... (4 replies)

... have they had liver problems from it? ... (0 replies)
Mar 26, 2009
... nerve problems can be a sign of B12 defiency which can affect the central nervous system as well as the peripheral nervous system, just one possibilty out of many. ... (4 replies)
... ally my handsa would go numb when i was sleeping. i went to a neuroligest he did an emg test that was it . started me on 5 day a month ivig treatments was having problems taking it i would go into shock get the shivers and would get really sick afterwards. ... (0 replies)
... Well, you can probably rule out the CIDP along with rh fever. I have no answers as to why your doctors are being so passive or appear to be. That has got to be the worst! ... (7 replies)
... Thanks for all the support, once again. This really hasn't been easy. I've been trying my best to get into counselling lately, but to no avail. Interestingly too, my other aunt has fibromyalgia. So that's neuritis and fibro in the extended family. Not to mention strange allergies! It's strange but my esr, c-reative protein, c3c4 all came back normal. All except the... (7 replies)
... you are out there trying and keep up. Some of our differences is I have tested possitive for Lyme Disease, but have not gone to an ENT. I didn't remember the CIDP you mentioned, got excited to learn another clue and I looked it up. ... (1 replies)
... that she is treating the possibility of CIDP due to EMGs being ubnormal and some subtle signs of demyelination. Unlike many I started out with the inability to swallow. ... (12 replies)
... e clue as to how to improve the situation since I was unsure I could even continue working with things the way they were and was scared to death by the cognitive problems I was having. All it accomplished was ruling things out and screwing up my foot even more. ... (5 replies)
... m of Guillame Barre...It is no longer considered so. Many chronic neuropathies, either genetic, autoimmune or related to other chronic diseases are also in the CIDP category. ... (6 replies)
... ave seen people such as me who had no symptoms other than the terrible burning, tingling, numbness and pain in their feet and they turn out to have very bad back problems and sciatica. ... (3 replies)
... They also might have variants of it to. To see if it matches your symptoms because that cause problems with the eyes also. ... (9 replies)
... IVIG=Intravenous Immuno Globlulin. It's a filtered blood product. It is extracted portions of anitbodies that can boost a malfunctioning immune system. I've been on it for over 2 years and it has helped me immensely. I've had some type of PN/CIDP for over 3 years. Infusions start out slowly to check for your tolerance to the med. and to infusions in general. WEB up IVIGand... (12 replies)
May 25, 2004
... and other people cannnot tolerate it at all. It has helped my husband's CIDP and he hasn't had any problems with the med either. ... (123 replies)
... HI !!!!!!!!! I would love to know more info on the IVIg........please whatever you can tell me. I am curious to know what gram amount your Dr ordered for you???? I think mine is 65g witha 15% solution...for 14 weeks @ 2times per week and then maybe a maintence dose. My Dr claims the dose has to be just right for body weight etc. my DR ordering is a... (6 replies)
... It is being used for a huge number of different medical problems and seems to work with varying effects for different people and different conditions. ... (6 replies)

Associated Tags: cidp, demyelinating neuropathy, emg, neuropathy, polyneuropathy, sfn igg ivig, sfn verses pn

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