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... dible clicking to others. I've noticed some deep red scarring at back of soft palate on R side and I get the burning and needling there also...so I figured maybe under the R ear is scarred also. ... (11 replies)
... Hi I've had this pain for years on the right side just under R ear from back of base of skull, along to front throat under jaw. ... (11 replies)
... The doc has done it on me in the past, so he's been aware of it for a very long time. You can do it to yourself. Just use your fingernail to draw two circles 6 inches below your breast bones just above your breasts, and see how long it takes for the circles to turn red, sometimes they fill in as red as well. I think it means one is very sensitized. Yeah raye, this is... (11 replies)

... a day for the spasms in my neck. For the nerve damage, I take Neurotin 3600 mg a day which is like 600 mg every 4 hrs and this keeps the burning and extreme pain under control. ... (11 replies)
... Just an update; Seen an ENT specialist and a neurologist. I have palatal, pharyngeal and laryngeal myoclonus diagnosed via nasoendoscopy and also seen on videofluoroscopy...to affect the oro-pharangeal phase of swallowing ...hence the mild dysphagia...which I know is progressive. BURNING pain is affected by different meds and withdrawal from meds (interdose w/d). ... (11 replies)
... Thanks Raye. I don't have hives but my skin does turn red like I described in earlier posts. THe swelling of the lips is not "visible" it is just something I sense and same inside the cheeks. When I was on the rivotril I did have trouble with breathing and apnea at night, also spasticity in throat and face but because of the tmj probs I just would put the splint in my mouth to... (11 replies)
... Wow, I thought we had some uncaring doctors in the states but this is utterly terrible. I was just researching clonazepam and the side effects of this drug. One of the severe allergic reactions to clonazepam was difficulty breathing; closing of the throat; swelling of the lips, face or tongue and hives. I strongly urge you to seek some kind of immediate hospital care because... (11 replies)
... I haven't had it in my face and neck. I got the burning feelings in my feet at first then it began in my hands and neck area. The spasms began in my neck and shoulder. I also get the burning sensation in my arms. I've never had the wheal and flare test done in fact I've never heard of it until you mentioned it. I did look it up to see what it was about. You do sound like... (11 replies)
... Geez you're on a lot of stuff. You have been so very helpful, thankyou for taking the time to respond. :angel: I feel so lost since Prior to these meds I was just on clonazepam but burning all the time... then read somewhere that it could be a w/d Sx of the benzodiazepines. THe entire R side of my body was contracted and weak and spasming in neck/throat/face full... (11 replies)
... Yes this happens. I had been on clonazepam for 13 years & all the time spasms neck, throat, face, jaw R side... and did avery slow taper c/o to Valium and down but couldn't come off because of the severity of the spasms & burning in my throat/neck/face/jaws & others . But the sides of and neck particularly strong. Also intense"being burnt alive" type pain in osophagus and... (11 replies)
... Hi vital, you could be suffering from what is called Spasmodic dysphonia/Laryngeal dsytonia. This type of dystonia which is muscle spasms and it effects the larynx. Do you have any problems with you voice, like your sound is broken or reduced to whispering? There is also another type of dystonia known as Oromandibular dystonia which affects the muscles of the jaws and tongue.... (11 replies)
... Sounds like you may have a pinched nerve somewhere which cause the burning sensation. This could also be the case when you are lifting as well. I was wondering do you suffer any kind of muscle weakness when trying to lifting up something like a bag of groceries? (11 replies)
... I've been seeing the neuro for about 9 months now, and she's about to refer me to a Rheumatologist. Seems now to be humoring me. In the last year, I've been given 2 MRI's, had an EKG, EMG/NCV test, had my blood sugar tested, all kinds of blood work-ups, been in the ER as the whole left side of my body went numb, am now seeing a Lyme Literate dr to at least rule out chronic... (6 replies)
... throat just under left ear. Same process that has been happening for years on the right side. Im sooo scared. Don't know what to do. Have an appt. with an ENT coming up. ... (4 replies)




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