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Pages: 1 Showing 1 - 20 of 28 for ivig infusion. (0.000 seconds)

Nov 20, 2009
... If you have hepatatis c, can you still get the ivig infusion? ... (0 replies)
... This gal that has the infusions, said they first tried to infuse for six hours but they infuse at a quicker rate and it gave her side effects. The next infusion they slowed the infusion rate by infusing for eight hours and she does not have any side effects. You are correct, the maintenance is around six weeks. ... (3 replies)
... a spinal tap last month and protein was discovered in the spinal fluid. His neurologist said "then he is a candidate for IVIG. And right now, he just had his 3rd infusion this morning. I looked at the bag and it's called GAMIMUNE. He is on 6 hour infusions, and after he comes home they do the home infusion thing after 2 weeks. ... (2 replies)

... I have sensory peripheral neuropathy caused by an auto-immune disease of unknown origin. 3 years now. not diagnosed until last Nov Same old story as everyone else. pain/burning/numbness in toes/feet/legs/fingers/hands. warm feeling in legs/thighs. sharp stabbing pain on left side of head once in a while, may not be related, but did find someone else on this board that... (12 replies)
... m glad IVIG seems to work for you, but, it doesn't look like I will be getting IVIG anytime soon. ... (12 replies)
... Hi June, That is a shame that they put it on hold. Does that mean you could not finish the infusion? If that is the case, I wonder if you had been able to finish the infusions that it would have also helped your feet. My regular doctor is running a lot of blood work. Even an immune system work up which I have never had done. However, they did not take enough blood to... (2 replies)
... IVIG=Intravenous Immuno Globlulin. It's a filtered blood product. It is extracted portions of anitbodies that can boost a malfunctioning immune system. I've been on it for over 2 years and it has helped me immensely. I've had some type of PN/CIDP for over 3 years. Infusions start out slowly to check for your tolerance to the med. and to infusions in general. WEB up IVIGand... (12 replies)
... I had to wait six years and endure hundreds of tests - from a-z - until I started receiving a therapy that is helping give me some energy - IVIG... many docs are unfamiliar with it at all - and I was told to just give up..... I am very disabled by the neruopathy - can no longer work, drive, must use assistive devices to ambulate at all - and maybe if more of us were aware... (12 replies)
... it was the immunoglobins that helped the neuro said, but a month later the numbness came back to this day........this is what he wants me to possibly go back on ivig for....... ... (1 replies)
Sfn and ?
Mar 4, 2013
... assions, nerve conductor tests and said I had neuropathy. She wants me to try either IV steroids or IVIG. But the steroids are really hard on your body and the IVIG infusion takes 5 to 8 hours a day for five days, is really expensive and read it only helps for 4 weeks. ... (29 replies)
... We're a medicated society. Drug companies want to make more money; they wine and dine doctors, who prescribe our meds. Unfortunately for me, diet hasn't made any difference. I did research into inflammatory foods after messaging with 6Foot3 and ruffNeck and found that a lot of the foods I had already cut out of my diet many years ago were of the inflammatory type. My... (12 replies)
... Hey Golfer, CIDP means ''chronic INFLAMMATORY demylating polyneuropathy''. Hence the word inflammatory in it. Secondly ask your neurologist to have a spinal tap before you have a nerve biopsy. Once a piece of nerve is removed its permanent paralysis. A spinal tap (lumbar puncture ) will check for about 8 different parameters but the one that shows inflammatory neuropathy is a... (12 replies)
... thanks for responding. I know IVIG is not a cure, not looking at it as that. There is no cure for PN, at least not the kind I have. ... (12 replies)
... IVIG is no cure. You have to take it the rest of your life and the sucess rate is lower than 50%. And if it did work and if you ever lose your insurance to pay for it (120,000 a yr) then CIDP will come roaring back..Since most autoimmune diseases are inflammatory then it would make sense to eat an anti inflammatory diet with anti inflammatory supplements until future medicine... (12 replies)
... Funny how you think GBS in scary because I would say the same about CIDP. I do hope the IVIG is helping. ... (10 replies)
... Thanks for the feedback. My understanding, for the treatment my doctor suggests anyway, is an infusion once every 6 weeks where each infusion takes 4-6 hours of one day. There is still a lot more info I need from him before I decide either way but I do appreciate your response... (3 replies)
... CIDP has been in the past considered an extension, a chronic form of Guillame Barre...It is no longer considered so. Many chronic neuropathies, either genetic, autoimmune or related to other chronic diseases are also in the CIDP category. The basic tests start with blood, urine, MRI's to rules out toxic poisoning issues , spinal damage, bacterial or viral issues, then... (6 replies)
... I am getting ready in another week to get my 3rd 5 day treatment of IVIG infusion. I am still learning so much about it. For me I think the worse part of this is the fatigue. ... (10 replies)
Aug 23, 2010
... Hi. I do have IVIG which i've had for the last 2yrs. Was having every 4 wks but now been cut to 8 weeks due to the cost. I was told that IVIG could cause blood clots so I have a Claxane injection before each infusion. I'm not sure what Claxane is but they always give it people who come in with DVT. ... (4 replies)
... Golfer7, Can you tell me if you were ever successful in finding treatment? My wife is in the exact position you were in when you posted your messsage in 2006. I wanted to see if you found any treatment helpful. How are you doing today? (12 replies)

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