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Osteoporosis Message Board


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Hi everyone... I have Osteoporosis and my spine went from a 2.2 to 2.9 score so it is getting worse... I do the calcium, D, K2 and biosil.... My doctor wants me to do Forteo but I fear the warning it gives on getting bone cancer.... I am considering doing Strontium Citrate.

My questions to all and hope many will give me their input.

1. Anyone doing Fortoe and have you had side effects?

2. Anyone know of stories of people getting the bone cancer from Forteo and then dying.... I read of one report of this and the Forteo company said the new thing is four in a million get it and die.

3. Anyone do Strontium Citrate and if so have you had good results and has it prevented fractures?

Also any side effects from this?

Those are my bit questions but if someone knows of a better option that builds bone density and prevents fractures and is proven with no side effects please let me know and thank you.

Tom
My bone density is much worse than yours. I tried all the various meds including Forteo. I had a rare side effect from all of them -- insomnia. I had to discontinue after a short trial. I also tried strontium citrate with the same side effect. After many years of research and trials, I wouldn't take any of the drugs offered today. There are too many reports of problems down the road from all of them.
[QUOTE=Piano0105;5416140]My bone density is much worse than yours. I tried all the various meds including Forteo. I had a rare side effect from all of them -- insomnia. I had to discontinue after a short trial. I also tried strontium citrate with the same side effect. After many years of research and trials, I wouldn't take any of the drugs offered today. There are too many reports of problems down the road from all of them.[/QUOTE]

Have you tried injectable calcitonin? I used the nasal option until my osteo got back to normal (abt 30 years ago), then sometime later tried actonal but I hated it, and now I'm thinking of trying the injectable stuff but I want to know how it affects ppl. (The nasal option now hurts my nose!)

Thanks,
jb
I completed my 2 years of Forteo and am now on Raloxifen ( Evista ).
I had a two spontaneous back fractures with no indications of low numbers on dexa scan at the age of 63, so my decision was pretty easy.
You have to weight your risk fractures with your doctor.
I had insomnia and no appetite but not sure if I was related at all medicine.
Most likely due to pain after the fracture that was extreme.
Studies I read about cancer related only to animals not humans.
Good luck in you decision. I know how difficult it can be.
While all medications carry risks, Forteo has never been linked to osteosarcoma (bone cancer) in humans.

Osteosarcoma is a rare form of bone cancer which can lead to pain, disability, and even death. Early Forteo studies were cancelled after osteosarcoma was incidentally discovered in a study involving rats. At that point, more research needed to be conducted to prove the safety of Forteo in human patients before any further human trials could resume. When we look deeper into the rat study, the rats in the trial that developed osteosarcoma were exposed to highly toxic doses of Forteo for a duration of time similar to the lifespan of the rat – doses that humans would never be exposed to. A separate study exposed monkeys to Forteo doses 10-times greater than that recommended for human use, an no instances of osteosarcoma were reported. A thorough review of all studies dating back nearly 20 years has never shown Forteo to increase the risk of osteosarcoma in the human population. Does Forteo cause osteosarcoma in humans? No – but expect to hear this risk factor routinely discussed among medical providers and patients.

The general recommendation is to avoid Forteo in patients that are at increased risk of osteosarcoma, including those who have a history of Paget’s disease, and those that have been exposed to radiation.

Hopefully this clarifies any questions you have any about this side effect in humans.





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