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Osteoporosis Message Board


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Re: Forteo
Sep 27, 2004
I just looked up the cost of Forteo. Obviously you must have prescription coverage as it runs over $500 a month. Not very feasable for people without insurance like those of us on Medicare
Re: Forteo
Sep 28, 2004
[COLOR=Navy][FONT=Comic Sans MS][SIZE=2][QUOTE=Canyondweller]I just looked up the cost of Forteo. Obviously you must have prescription coverage as it runs over $500 a month. Not very feasable for people without insurance like those of us on Medicare[/QUOTE]

Yes, Forteo is very expensive. I have a good insurance policy that I've paid into for 27 years. I am able to get a 3 month supply for one co-pay. I'm really thankful for my insurance and the fact that it will pay on Forteo. I was somewhat disheartened to read of Jacque's side effects and her bone density going "backward" on Forteo. Thankfully, she is doing well on Actonel which I could not tolerate at all! It did a job on my stomach even though I followed the instructions to a "T". I fractured both feet in a two month period in October and November, 2003 and in December I fractured my hip. I am so hoping that Forteo is working for me. At least nothing else has broken since I started on Forteo so that is a plus. I don't think many doctors use Forteo on their patients unless their bone density scores are severe and also if they can't tolerate Actonel or Fosamax. I do hope that in time, the price of Forteo will decrease so that it is more affordable for someone without insurance.

Oldbones[/SIZE][/FONT][/COLOR]
Re: Forteo
Apr 15, 2005
I just thought I would share some information for anyone that it can help. My grandma has been prescribed Forteo, but could not afford it. I looked up Eli-Lilly on the web and got a form that the Dr. was suppose to fill out. There was a phone number on the form to Eli-Lilly. The day of her Dr. appt. I called and told them she was is need of Forteo. I wanted to make sure there was nothing special I was suppose to take to the Dr's office because I wanted to make sure all paperwork was done right the first time around. They asked my what kind of insurance she had and I told them she had medicare and a medicare supplement, but no prescription coverage. He proceeded to tell me then the Dr. did not need to fill out anything and gave me another web page to go to. The only reason the Dr. would need to fill out anything is if you have prescription coverage because some insurance agencies dont want to pay for it unless there are no options left. He told me once I mailed the form from the new web page with proof of income (no more then $18,000 a year for 1 person) and her medicare card they would send me a prescription card to take to the pharmacy and it will cost her $12.00 a month for the Forteo and I think he said $25.00 for 100 needles. He said it only takes a few weeks to get the card. I hope this can help someone. LMG
Re: Forteo
Apr 16, 2005
[COLOR=Indigo][SIZE=2][FONT=Comic Sans MS][QUOTE]He told me once I mailed the form from the new web page with proof of income (no more then $18,000 a year for 1 person) and her medicare card they would send me a prescription card to take to the pharmacy and it will cost her $12.00 a month for the Forteo and I think he said $25.00 for 100 needles. He said it only takes a few weeks to get the card. I hope this can help someone. LMG[/QUOTE]
lovemygrandma........I knew there was some sort of program available for seniors with limited income but I had never checked it out for the specifics. I think they may be able to assist others with low income too. That is WONDERFUL news! So many older people need this drug and it does help.......even at an advanced age. I hope I have a granddaughter like you that is so willing to help when I need assistance. Your grandma is truly blessed to have you. :angel:

You might consider starting a new thread about the assistance program you found so it will be more visible on the board. Just a thought.......

Oldbones [/FONT] [/SIZE] [/COLOR]
Re: Forteo
Jul 22, 2005
[QUOTE=judynearottawa]hi I am a newbie to this site but am looking for some support as I am thinking of taking forteo ...just would like to have some advice from people who understand my t score is around 3.5 in the spine and I am 56 years old ...looking for some advice[/QUOTE]


I'm 54 with the same T-score and decided to opt for the Forteo. Fortunately, my insurance covers almost all of the cost. It's not the easiest decision to make, but I was told that Fosamax "locks in" what bone density you have but that Forteo actually builds bone density - albeit slowly. Since I was also told that my T-score was pretty bad, I opted for the gains, since I didn't think I had enough to lock in at present. I was told not to expect improvements in T-score for about 18 months. The plan, according to my endo, is to go on Fosamax or Actonel after the 2 year Forteo regimen to lock in the gains. My doctor also recommended strength training to strengthen my torso muscles. He said muscle pulls on bone and that leads to bone growth. I'm trying to do that, but prone to overdoing it in the hopes of gain so sometimes I hurt myself and have a setback. I advise doing it slowly if you exercise. My doctor said to use a trainer -which I did - or a physical therapist. Best of luck whatever you decide.
Re: Forteo
Nov 11, 2005
judynearottawa and BobbyJo,

If you haven't already, you might contact Eli Lilly. They have a program to help people with limited incomes who cannot afford Forteo and/or don't have insurance. I have a Customer Care No. for them which is 1-866-436-7836. I understand that some pharmacies also have programs to help people get the medications they need. It is unfortunate that so many cannot afford to get the medications they need. I am fortunate that I have insurance to cover most of the cost or I would probably not be on it. Good luck to you.
Re: Forteo
Nov 11, 2005
[QUOTE=newbones]judynearottawa and BobbyJo,

If you haven't already, you might contact Eli Lilly. They have a program to help people with limited incomes who cannot afford Forteo and/or don't have insurance. I have a Customer Care No. for them which is 1-866-436-7836. I understand that some pharmacies also have programs to help people get the medications they need. It is unfortunate that so many cannot afford to get the medications they need. I am fortunate that I have insurance to cover most of the cost or I would probably not be on it. Good luck to you.[/QUOTE]

Thank you for your reply ..yes I have been in contact several times with the Forteo people but I doubt if they can help me as we checked all avenues so far, and have only come up with two months of the medication. They checked out my plan which is not good ...only 1200 a year and the Forteo people also told me that the drug store plans are called Trillium Ontario and they said Forteo is not on the drug store help list. In my view we have exhausted all avenues to help me. The Forteo people have sent a form to my doctor about why I need it, and it will be filled out and I will sign it. It is the only medication that may work for me as the others did not. I will have to try harder to make more money and also sell this house too as I could use my house money. I am lucky to have a house to sell or remortage I suppose. Well, that is the story .I wish I had known, of course I would not have retired from teaching as I had a great plan while teaching that would have covered it, and so would my former husband's plan, but now divorced. Hindsight. Ah well. I will have to just see what happens but doubt if anything will come along as we have tried all avenues. I am not in line for reimbursement or help as I see it, but that is the Osteoporosisis Associations job as I see it , to get the politicians to put this drug on the Trillium Plan which it is not. Why not I wonder? Does anyone know why it is not on the Trillium Ontario plan for people who need a drug and cannot afford it? Other drugs are on it. Why not Forteo? Just asking. Bye and thank you for your kind help and suggestions. I have decided not to worry about things as it does not really help much, just increases cortisol which destroys bone ...that is not good either. bye and best wishes to you all ... :wave:
Re: Forteo
Nov 29, 2005
To buy or Not to buy ..that is the question

It is judynearottawa, trying to decide whether to spend my hard earned money on Forteo ...my drug plan does not cover it ..I am 57, single, on my own, and have a minus 3.5 spine and hips score. I weigh about 118 and am 5 feet 3 inches. So that is the question..to buy, or not to buy? The money is a bit of money from my "trip and savings fund', I feel I will not ever earn it back. Funny I should say "back". How true. Well, also some advice ..do men understand women with this problem? I am single and am not going out, thinking that if I explain the minus 3.5 T score story, and the Forteo story, well how would Mr. Date or Mr. Right understand it? Also I think with this Tscore I cannot get trip insurance now, or long term care insurance. I should have done that when my scores were not so low, but I did not know that then. So, I am looking for a cheer-up I suppose, some advice and all. I know I should be a bit more of a "chin up" type but I will say I am quite discouraged. My friends, do not get it of course as they do not understand these kind of things, like Forteo and all that. Why is it not covered in Ontario like a bipass orperation or something. I think if the breast cancer drug Herceptin is covered which it is, as 100,000 dollars then Forteo should be covered too at 24,000 dollars in Ontario and Canada too. I am working hard on this, but feel alone with this ..anyone out there who understands this ...in Ontario we need some potilitcal saavy on this. Well, thank you to anyone who can advise. I suppose I am just a bit frustrated with the high cost of this drug and that it is not on the Trillium Plan either. It seems not at all right. Is this Ageism? I think so. :wave: :nono:(oh yes I called the Forteo Comapassionate Care Plan but as yet they cannot help me, but maybe they will. So far they say I could have a month free each year. That is not enough for sure, and my plan is not enough at 1650 per year. So Eli-Lily so far has not been there, really, but maybe they will be, but it seems not. It is up to Ontario the Trillium Plan or to the Minsiter of Health Care to authorize this drug as part of the treatment plan as the Breast Cancer people did ..they banded together and submitted a request. We, in Osteoporosis in Ontario need to do the same for our people who need Forteo. I think we need to do this for the future Ontario people coming along who will need this, not just for me, but for them also. What do you think? Thank you for any advice from a lady who is a bit frustrated with the Health Care plan here, as one ages. :rolleyes:
Re: Forteo
Dec 2, 2005
Keep the advice coming in please, as I am in Canada and Forteo is not on the Ontario Drug plan for any help. My insurance thus far is not covering it. So I am trying to negotiate what other people did about this, maybe it would help me. I do have a good insurance plan but it seems it is not the right one, not good enough for that prescription I think.

Thank you for the advice on what to do about my insurance and the high cost of Forteo. Jacques, I am studying what you said. Maybe it will help me. Thank you to Tappe, Chronnie too. Really appreciated. I am the only one with Osteo out here, in the little town I live in, or so I know of. Small town called Carp, nice trees though and deer too. I really need to be on this prescription and need to figure this out. I have what I thought was adequate insurance but I seem to not have the correct coverage, and of course am very concerned about this. My doctor has sent in a Section 8 letter, and that is good I think. I do not know the way around all this, and right now am just waiting. The Forteo people have sent me a letter for me to sign so they can communicate with my insurance people. Right now I have the basic insurance plan, and I did not take the deluxe package when I retired, just the same one as all the teachers mostly do. I suppose I cannot change plans now of course. I should have taken the "all the bells and whistles" deluxe prescription package which has a cap of 100,000 dollars per year. I only took the basic plan which has about 1650 dollars per year. Of course at the time I only took about 70 dollar a month maximum and never knew I needed something so expensive as Forteo. Someone said to me "What is the lifetime cap?" I did not know that. Maybe I should know these things. I will try to find out. It means I guess what is the lifetime payout that your insurance provides? I of course do not know all this, but am learning these things now. It is going very slowly as I was recommended to be on Forteo last year, doctor became ill, new doctor, start over, and that was August. Still sending paper back and forth. I will have to get on this quickly as it is not good being on nothing. My previous doctor and endo who was very good, said I should try Strontium as the mice did well on it, in the research. I bought some Strontium (40 dollars for a big bottle.. a mineral ) but did not take it ( to be taken at night, without calcium for two hours), as I thought I was going on Forteo. Should I take Strontium? Has anyone else researched it? I also understand it prevents bone density reading from being too accurate as it is a radium derivitive or something? Is that right? Is Strontium the thing for me to take as my previous endo recommended? Anyone know? I understand that it did build bone quite well. Thank you to you all. Oh,also I have little ice pick treads that slip onto my boots for the ice and snow here, cleats they are,very good for traction here, prevent falls on ice really. I would recommend them to anyone for ice. I keep a pair in my purse and and will buy a second pair for my schooteacher briefcase, and slip them on as needed. Great idea. bye now to you all. Thank you from judy near Ottawa, Ontario. :wave: ps I really thank you for your support ..xx





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