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Osteoporosis Message Board


Osteoporosis Board Index


Thanks Oldbones, may I ask what on-line pharmacy you use? That seems quite a bit cheaper than getting it at a local pharmacy. Walmat as you said, could be competitive. I return to the MD this Tuesday and I am pretty sure that is what she is going to recommend. I have read a limited amount about the I.V. biphosponates as I can't find too much on this and there seems to be more risk due to side effects. Although very high doses of Forteo does cause cancer in rats and long term studies I guess have not been done, it still seems like the best alternative for me as my spine is -3.6 and I already have back problems. Thanks for your response!!
Oldbones - Yes, I had wonderful insurance for 20 years, now we are self employed with not the best insurance and I was just too honest to the new insurance company. I had a Dexa-scan but had taken nothing for it and probably they would have never known....I don't believe in not telling the truth and that is why I did...but insurance companies....I just don't like them. Now I am afraid when I have a fracture, they will not cover anything and just way due to osteoporosis!! Oh well, live and learn.... Should know next week about the Forteo. Have you had any side effects because if there are any, I will probably get them, I am so sensitive to any drug. I am also worried about taking this before menopause, what do I do after?? This is only for use for two years.... My spine is so bad now though, guess I need to do something.
[COLOR=Sienna][SIZE=2][FONT=Comic Sans MS][QUOTE=ThinBones]Oldbones - Should know next week about the Forteo. Have you had any side effects because if there are any, I will probably get them, I am so sensitive to any drug. I am also worried about taking this before menopause, what do I do after?? This is only for use for two years.... My spine is so bad now though, guess I need to do something.[/QUOTE]
[B]Thinbones...... Let's just hope that you don't have a fracture. However, if you did have a fracture, your insurance would have to prove that it was caused by osteoporosis. Also, some insurances only put the "rider" for pre-existing conditions on the policy for a certain period of time.

I've had no side effects from Forteo other than a couple of times after the injection, I had a flushed feeling which I think was just my nerves. Maybe it was a hot flash or just apprehension from the injection. Now, I get the Forteo from the fridge, grab the alcohol pads, prime the syringe then inject with this teeny tiny needle. It takes about a minute once you get the hang of it and I go on my way. They recommend that when you first start Forteo, that you are close to a chair just in case you feel dizzy after the injection. I think this is probably due to a lot of people being so fearful of needles. I use to work in a medical laboratory and I was amazed at how many people fainted when they had their finger stuck or had blood drawn. I've been on Forteo since March 28th. I'm anemic but I was anemic before I started it. I have a rash on my face but I had it prior to the Forteo. My rheumatologist says both are from Lupus. I don't know what will happen after two years. Maybe by then, more testing will be done and it can be continued longer or they may feel like it will improve your bones as much as they will improve so there's no need to extend it over two years.

I got a letter from my Rheumatologist a couple of days ago. I had a Dexa-scan done which was so much more thorough than the one I had a year ago. In some of my other posts, I think I have mentioned that according to my T-Score, I had no osteoporosis that showed up in my first scan according to the radiologist. My Rheumatologist somehow took all the figures (T-Scores, Z-scores,etc.) and figured out by using all the numbers that I definitely did have osteoporosis. Also I had the fractures and the x-rays that showed 40% bone loss so basically the first Dexa I had was terribly inaccurate. I had it done locally at what I thought was a reliable facility. I couldn't have it repeated because my insurance wouldn't pay. My last scan was done so much more thoroughly and I had it done at my doctor's office with his new machine. The letter from my doctor said that he had reviewed my bone density study. He also said that his new machine had the ability to look at the lumbar spine from the lateral view and it showed that I definitely had low bone density. He said the good news was that compared to last year, I had improved 2.5% in the hip and 7.1% in the lumbar spine. He advised to keep up the "good work" with Forteo and we will recheck in a year.

Sorry for this being so long. Please let me know what you find out when you see your doctor.

Good luck to you.....
~Oldbones [/FONT] [/SIZE] [/COLOR] [/B]





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