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Osteoporosis Message Board


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Hi - I am also from the UK and have recently been put on Fosamax which so far has not had any side effects. However, I did go back to the doctor to ask if I could change to strontium but was told that I could not for some reason. I think the consultant(not that I have seen him...) said it was not appropriate. I have also seen a herbalist but it is difficult to take liquid in a busy life. I have not heard of anyone taking raloxifene - have you asked if you could try Forteo which I think is available in the UK. I also saw my mother bedridden as a result of spinal fractures so I too am desperate to avoid the same fate. I have just put up a posting on the site asking for info on Ezorb calcium which is said to increase bone density dramatically so I hope there will be some responses. Good luck.
[QUOTE=suzieuk45]Hi - I am also from the UK and have recently been put on Fosamax which so far has not had any side effects. However, I did go back to the doctor to ask if I could change to strontium but was told that I could not for some reason. I think the consultant(not that I have seen him...) said it was not appropriate. I have also seen a herbalist but it is difficult to take liquid in a busy life. I have not heard of anyone taking raloxifene - have you asked if you could try Forteo which I think is available in the UK. I also saw my mother bedridden as a result of spinal fractures so I too am desperate to avoid the same fate. I have just put up a posting on the site asking for info on Ezorb calcium which is said to increase bone density dramatically so I hope there will be some responses. Good luck.[/QUOTE]
Hi there - Ezorb is a different form of calcium which, apparently, has a high abosrption rate. It is not available in the UK and can be purchased on line via a company called Elixir. I'm not sure about it so have put a posting requesting more information on it before I buy but it might be worth a shot. Although I have (so far after 6 weeks) experienced no side effects with Fosamax I am not happy about taking it long term so am looking at all alternatives. I have seen a herbalist (Indian/Chinese) and been given a herbal brew but I am now not convinced about that as the herbs can also be toxic. I have tried a herbal remedy from India but have discontinued that at the moment as I don't want to overload the system. It seems to be dealt with differently in the States. I have not been refered to a consultant (rheumatologist) as they do not see people who do not have other medical conditions or something like that. In the States (as far as I can gather from these postings) osteoporosis is dealt with by endocrinolgists whereas here you just see a GP (mine must be sick of the sight of me). Have you seen a consultant yet? I am going to investigate this Ezorb more fully in the hope that it may be beneifical...
Hi Suzie Yes I have seen two consultants, supposedly "experts" in osteoporosis. The last resort they could come up with was to have a parathoid? hormone injected via a drip - takes approx.3-4 hours once every 6 months, but even this has side effects! I am at a loss what to do, so anything new without too many side effects appeals to me. I am looking into this Ezorb very carefully.
Hi Suzie My osteoporosis is also genetic. My mum ended up with fractures of the spine and in the end was severely bent over and couldn't walk without a frame, obviously I want to avoid this situation. I am avoiding dairy, as a food intolerance test came up with allergic reactions to cows milk and eggs, so am now on calcium enriched soya and rice milk. I think there may be a connection with food. My scan showed -3 in the spine. Have you tried evista? Ezorb seems to have a good write up, so still don't know what to do. Have you started taking it yet and did you have any side effects from rosteo. Best wishes - keep in touch. By the way I am in the Midlands so no connection with where you live.





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