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Hi. I was wondering whether anyone could help me out here?

I'm 28 and have been lived at a low/very low weight for the past 13 years due to anorexia, though I have menstruated for most of that time. Although I'm still underweight I work hard to eat plenty of calcium, but also I drink a lot of coffee and fizzy drinks and have found weight-bearing exercise painful since I broke my leg two years ago.

Might I be at sufficient risk of osteoporosis to justify a bone density test? My GP tells me not. But recently a friend with a similar history to myself was diagnosed, and I'm worried...

aiysha
yes get one asap. i am 35 and just diagnosed with BAD osteoporosis. you could well be fine, but it isnt worth the risk to live in ignorance while you are young enough to take action if needed.
and even if your bones are fine, eating disorders will never give you the health you deserve
[QUOTE=aiysha]Hi. I was wondering whether anyone could help me out here?

I'm 28 and have been lived at a low/very low weight for the past 13 years due to anorexia, though I have menstruated for most of that time. Although I'm still underweight I work hard to eat plenty of calcium, but also I drink a lot of coffee and fizzy drinks and have found weight-bearing exercise painful since I broke my leg two years ago.

Might I be at sufficient risk of osteoporosis to justify a bone density test? My GP tells me not. But recently a friend with a similar history to myself was diagnosed, and I'm worried...

aiysha[/QUOTE]
Hello - I assume that you are in the UK as you refer to your GP. I think it is very unlikely that you will be referred for a bone scan at your age. I am 54 with a history of osteoporosis in the family (mother) but was only referred because I paid for a peripheral bone scan (forearam) at work which showed a low bone density. Even then I had to paid 62 (subsidised) for a full bone scan which showed up osteopororis and I suspect that I will have to pay for another one in a year to see how I am progressing. I would suggest that if you want a scan either contact a Health food store near you or contact a company calle healthessential.co.uk or something like that as they offer scans at locations all across the UK (periphal scans - abouth 38). Good luck.
YOU NEED TO GET A BONE SCAN ASAP! I am 24 and was diagnosed last yr. with osteoporosis (-2.6) in the spine for the exact reasons you speak of. I only had anorexic behaviors for 2 YEARS (prior to the scan) and had been exercising and taking calcium and mulitvitamins religiously. You are smart and absolutely correct in realizing that your health is at a serious risk. PLEASE demand that you get a DEXA scan! If your doctor is against it, switch doctors until you find one who will give you one. Talk to me anytime you want... this can be scary stuff. I just got my follow up scan last week after a year and am awaiting the results. I'm researching the drugs (biphosphonates and Forteo) now since I know that's the next step she'll want me to take. Please take care of yourself...
A.L.
I would definitely recommend you get a bone density test....I was diagnosed with osteoporosis at age 26. It appears to be pretty common for those of us with eating disorders. How did you break your leg? Could that be a sign of low bone mass, or were you in a bad accident?
I'd just like to share my story. I had anorexia for about 5 years in my 20's and weighed 82 pounds. I stopped getting my period for around 2 years. I finally began gaining weight in my late 20's and now weigh around 120 lbs. I'm 55 years old and just had a DEXA test done and found that I don't have osteoporosis or osteopenia. I'm thinking that perhaps it's due to the fact that I take calcium and exercise 5 days a week. So, I guess it's a very individual thing. If your insurance will pay for a scan, then there's so reason not to have one if it will give you peace of mind. Best wishes to you.
[QUOTE=aiysha]Hi. I was wondering whether anyone could help me out here?

I'm 28 and have been lived at a low/very low weight for the past 13 years due to anorexia, though I have menstruated for most of that time. Although I'm still underweight I work hard to eat plenty of calcium, but also I drink a lot of coffee and fizzy drinks and have found weight-bearing exercise painful since I broke my leg two years ago.

Might I be at sufficient risk of osteoporosis to justify a bone density test? My GP tells me not. But recently a friend with a similar history to myself was diagnosed, and I'm worried...

aiysha[/QUOTE]

Hi aiysha: To answer your question about "sufficient risk of osteo...? the answer is a definite yes. There are plenty of studies showing the relationship between eating disorders and osteo. I would ignore your GP, and like some others have said find someone who will order the test, or better yet insist on it [U]not allowing[/U] any discussion. Look it's your body, and if you demand the test I don't see anyway they can deny you that, regardless of what they think. You are the one who should be able to request the test!!! I did the same thing on my first scan because I couldn't figure out why someone hadn't ordered it yet with my family history of osteo, plus I have every single risk factor for it i.e. early non surgical meno, caucasian, slim build, many back problems, and disc disease all of which contribute to getting osteo. If I hadn't [U]insisted[/U] on the test I wouldn't have found out that my spine BMD is -3.6 and because of this I'm taking Forteo which is reserved for high risk patients for fracture, it's also considered for use if you can't take bisphosphonates. I have had 7 spinal fractures and even still NO ONE considered the test but me, so when I asked for it, I said to the doctor that I needed it because of the risk factors. Fortunately for me she agreed with me with no argument. It's possible she forgot I had "all" of the risk factors but when I reminded her again she didn't hesitate, however I think it would have taken several more years for her to suggest it on her own, and I wasn't going to wait any longer. Also don't let your doc use your age to disuade you, young people get osteo too, just look at the statistics.

I hope your insurance covers second opinions, and if you are indeed in the UK, not sure how that was ascertained, then follow the advice from the poster in that area of the world. Heel scan are not very accurate, and are reserved for people who don't have access to a dexa scan. If you need an actual diagnosis, which I believe you do, get a dexa scan. I don't know what they cost, if your ins wouldn't cover it, but if you could get the money some how, provided your ins won't pay, in the long run you'll be saving money any way paying for it yourself by getting faster treatment. You don't want to wait until your t-score is severe because the costs get much higher at that point so think of it as a necessary investment in yourself and your health, and possibly you just might have osteopenia (bone thinning and a signal to take action before it worsen) and you [U]can reverse[/U] that before it turns into osteoporosis (bone disease).

Good Luck with this and listen to all the other posters good advice...

Pam
[QUOTE=ArtLover;2290021]YOU NEED TO GET A BONE SCAN ASAP! I am 24 and was diagnosed last yr. with osteoporosis (-2.6) in the spine for the exact reasons you speak of. I only had anorexic behaviors for 2 YEARS (prior to the scan) and had been exercising and taking calcium and mulitvitamins religiously. You are smart and absolutely correct in realizing that your health is at a serious risk. PLEASE demand that you get a DEXA scan! If your doctor is against it, switch doctors until you find one who will give you one. Talk to me anytime you want... this can be scary stuff. I just got my follow up scan last week after a year and am awaiting the results. I'm researching the drugs (biphosphonates and Forteo) now since I know that's the next step she'll want me to take. Please take care of yourself...
A.L.[/QUOTE]

ArtLover, ditto here. 22 years old, osteoporosis of the spine (-2.6) and hip (-2.5) due to anorexia. How are you now?





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