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Hi List,

I have severe osteo and have been on Forteo for about onemonth. What is the best and easiest way to pack the Forteo on trips longer than 3 hours and you don't really know how long it will be before you get it back into a nice cold frig !!(-: ???

Somehow I am not to sure that putting the frozen packs in the soft blue thermal case will keep cold that long, maybe I am wrong. That is what it says in my information. I understand also that mine is the newest case and the info mentioned said not to use the old case for long trips. Actually it said not to use it but I guess the newer one is better for holding in the cold.

Any suggestions would be helpful. I also got a small grey hard case for keeping it in the refrig and also am not sure if I should put the case in the thermal case and then in a cooler or not. Also, someone mentioned to me to put the pen without the case in a cooler with ice and not the cold packs. Doesn't seem like it will keep tht long and if I put it in the cooler should I put the soft case with pen inside in the cooler or by itself? Also, my cooler is to small for the thermal pack and ice or frozen cold packs. So, :wave: :eek: I may have to use the styrofoam package that it came in.

Hope I didn't confuse you all. I am going out of town on friday and need HELP !!!

Blessings,

Marilyn :wave: :)
The length of time a cooler will stay cold depends on many things (size of the cooler, amount of ice, number of times you open it). The last time I took a picnic-sized cooler, there was still ice in it after 2 days. So if you are somewhere where you can keep adding more ice every day, you should be able to manage for quite a while.

Since I began Forteo, the only trip I have taken was just for a weekend. Rather than bother taking Forteo along, I just left it at home. I took the Friday shot before I left, skipped Saturday, and did the Sunday shot when I got back. Then, instead of taking a shot every 24 hours, I took a shot every 18 hours until I "made up" the skipped shot. (Of course, officially, we are NOT supposed to do it this way.)
Thanks PikaB,

I was talking about a car trip for right now. I have thought about what you did and leaving it home which I did one time. However, we are busy doing lots of stuff and if I did that I would probably miss to many doses.

However, later on next month I will be taking a trip to CA. for a reunion weekend. That will involve a plane ride too but they are faster then some car rides. This one whould take about 4-5 hours but not sure when we will be able to get into thotel and they had better have their refir there like I asked for or I am in trouble. Will have to keep dumping ice in the cooler.

Bye for now.

Blessings,

Marilyn :confused: :)
I use the styrofoam ice chest that the pharmacy uses to send the Forteo to me. I refreeze the ice packs and keep the paper packing to use also. It works great and is good under most circumstances for 24 hours that way. The cooler is double insulated so it works great but you could use a regular styrofoam cooler and buy some ice packs (the blue ice won't work well for several hours or overnight) or make some ice blocks. Put newspaper or a paper bag in between the ice and the Pen in the Box to make sure it doesn't freeze. I've found that the Eli Lilly provided carrying case proved to be useless after about an hour in hot weather. Plus I'd rather protect the pen by packing it in the original packing and using the pen box.
Hi there,

Thanks for the info. Are you talking about the small cardbpoard box the pen comes in or the grey case that was sent to us or at least me? I do have the styrofoam cooler that it was sent in and the ice packs too, :angel:

Thanks alot !!Marilyn
[QUOTE=taape]I use the styrofoam ice chest that the pharmacy uses to send the Forteo to me. I refreeze the ice packs and keep the paper packing to use also. It works great and is good under most circumstances for 24 hours that way. The cooler is double insulated so it works great but you could use a regular styrofoam cooler and buy some ice packs (the blue ice won't work well for several hours or overnight) or make some ice blocks. Put newspaper or a paper bag in between the ice and the Pen in the Box to make sure it doesn't freeze. I've found that the Eli Lilly provided carrying case proved to be useless after about an hour in hot weather. Plus I'd rather protect the pen by packing it in the original packing and using the pen box.[/QUOTE]


Taape,

What paper were you talking about. The only thing I have is some of that bubble wrap? Also thatthermal bag that I got is newer than yours probably and they said not to use the old ones,. When did you get yours?

Thanks ,

Marilyn :angel:
Granniluvs8

PikaB is right that there are a lot of variables in keeping things cold in a cooler. I have had good luck with putting the pen in the little blue case with the cold packs and then putting that in an insulated bag or small cooler with a couple of the ice packs that come with the Forteo. The styrofoam chest the Forteo comes in should work well also. The ice packs are still usually frozen solid when I get mine. Those ice packs stay frozen longer than any other ice packs I've seen. The longest trips I've taken were a plane trip involving plane changes and about 12 hours and a car trip of about 15 hours. On the plane trip I used an insulated bag which fit inside my carryon and on the car trip I used a small cooler. The ice packs stayed partially frozen both times.

They don't recommend using the blue case by itself for more than a quick trip, such as from the pharmacy to home. However, I think it provides some insulation from the ice packs so that the pen doesn't freeze.

Good luck to you.
[QUOTE=newbones]Granniluvs8

PikaB is right that there are a lot of variables in keeping things cold in a cooler. I have had good luck with putting the pen in the little blue case with the cold packs and then putting that in an insulated bag or small cooler with a couple of the ice packs that come with the Forteo. The styrofoam chest the Forteo comes in should work well also. The ice packs are still usually frozen solid when I get mine. Those ice packs stay frozen longer than any other ice packs I've seen. The longest trips I've taken were a plane trip involving plane changes and about 12 hours and a car trip of about 15 hours. On the plane trip I used an insulated bag which fit inside my carryon and on the car trip I used a small cooler. The ice packs stayed partially frozen both times.

They don't recommend using the blue case by itself for more than a quick trip, such as from the pharmacy to home. However, I think it provides some insulation from the ice packs so that the pen doesn't freeze.

Good luck to you.[/QUOTE]


Newbones,

This is definately going to be an experimental trip for me with the Forteo ! Is your case a fairly new one or an old one. How long have you been taking it ?I know that I got a NEW one and in the instructions it said NOT to use the old ones ( probably for just very short trips) and I think in the old ones I don't think they said to freeze the packs but I am not sure. I am just surmizing from what others have said .

The directions on the NEW cases said that FROZEN packs SHOULD keep the pen cold for up to 10 hours. However, that is just for the NEW blue insulated cases. I got my case about 1 1/2 months ago.

When I take the plane I may have to get more creative if I am going to use the larger cold (frozen) packs. They will not fit in the case I have . So may have to buy another one that is larger before we go. First I will see how it goes this weekend but I will have the styrofoam box so that will be different also..

Thanks alot again for all the great ideas !!!

Blessings,

Marilyn :)
I got my Forteo carrying bag about 1.5 years ago but I don't use it's useless in hot weather. My Forteo doesn't come packed in bubble wrap it's in a styrofoam cooler and there is paper packing - like a brown paper bag type in between the ice packs and pen which is in the original box. Those ice packs do stay solid for about 2 days straight, they work great to use for picnic food.
Taape,

Thanks ! They did not say the case was useless, they said to use the new one instead IF you had the old one also. I guess they have made some adjustmemnts and hopeful upgrades on the bag. They showed a picture of the old one and it did look different. :) :angel:

You and all have been a big help. I'm off tomorrow till sunday..

Bye !

Mairlyn
Have a good time on your days off. I just thought that the bag was useless to me. If the new is better and works that's great.
[QUOTE=taape]I got my Forteo carrying bag about 1.5 years ago but I don't use it's useless in hot weather. My Forteo doesn't come packed in bubble wrap it's in a styrofoam cooler and there is paper packing - like a brown paper bag type in between the ice packs and pen which is in the original box. Those ice packs do stay solid for about 2 days straight, they work great to use for picnic food.[/QUOTE]

Taape,

Part of my problem is that when I got my first shopment of Forteo I was not at home and I had told my husband to unpack it and save the stuff it came in and to put the Forteo in the frig. He only saved the styroforam case and the refrig/freezable bags. He did not remember how they were packed so I am just trying to guess how they were packed so I can hopefully copy them on some car trips.

I did so this weekend and guess it turned out OK esp since there was refrig/freezer in the hotel. The hotel was old and there was no door on the freezer so I had to be careful that the pen did not freeze. I am glad that I had my thermometer. Did you put brown paper in between the frozen bags ( how many?) and were they placed on top of each other on the bottom with the Forteo in it;s original box, wrapped in paper towels on top of that? At least that it is what i did. I put it in a small cooler but not big enough to put the bag in the baggie. I will probably have to buy a bigger one. It is hard to carry the stryo box around into the hotel, etc.or anywhere. It did not seem that cold but the frozen bags were still frozen and had not melted to much.

The BIG experiement will come when I fly to CA in June. Still not quite sure what I will do. I think I will call Eli Lilly and see what they have to say and if they think their new bags are any better to use for longer periods. They did SAY in their brochure that came with the bag that you could use the new bags with frozen ice packs for up to 10 hours, but I am not to sure. If not, I will have to get VERY creative and look for some good thermal bags that might work to put in another carrying bag. The one I have not would not hold anything like that. Plane travel and all the post 9-11 searching make things soe interesting when trying to pack stuff. Guess I will put the needles in the suitcase when I fly.

Thanks again for your help. :angel: :)

Marilyn
Granniluvs8,
Sorry I didn't get back to you sooner. I too was gone for a few days, involving a 12-hour car trip. The bag I have is the little blue zippered bag with flowers (I think they're flowers) embroidered on it. It has two zippered bags for cold packs which they tell you not to freeze, but to just chill in the refrigerator. Anyway, I put one of the ice packs that came with the Forteo shipment in the bottom of an insulated lunch bag, then put the blue bag on top of that and another ice pack on top. The ice packs were still pretty frozen when we arrived at our destination. Fortunately, the place we stayed had a refrigerator, so I was able to keep the Forteo cold there and refreeze the ice packs for the return trip home. This package was actually small enough that I could fit it into a carryon bag when I flew last. I put most of my supplies in my checked bag, but put a couple of needles with the Forteo just in case my bag got lost. I also included a copy of the prescription in case I needed any kind of proof going through security. I didn't have any problems though. The airlines have actually gotten better about allowing some items, such as nail clippers and knitting/crochet needles. The Forteo needles are so small I can't imagine anyone using them for a weapon! I guess you never know though.
48 hour test:
Inside of the supplied 1 hour carry case, I put in a thermometer, instead of the pen. That way during the test, i could moniter the temp. The thermometet I used had Celcius, and since the pen has a preffered temp of 2 to 8 Celcius it would measure fine for the test. I opened the bag 5 times during the test. 2 of those were extended, removing all contents, and replaceing as if an inspection was done at the airport. The other 3 openings wer as if I had to inject, for 2 days, and one for extra measure. The results wer initial temp 1 celcius, good, because was not freezing. 20 hours temp 2 celcius. 30 hours temp 5 celcius. 40 hours temp 7 celcius, and at 48 hours at 9 celcius, good enough to go 48 hours. If a recharge of at least 2 packs wer done somewhere like a bar, or eatery, then it would have been 8 celcius or less for the final.

I purchased one of those canvas insualted bags for beer. Its 10 x 10 x 12" All of the gel packs I will reffer to are the ones that come with the pen every month, with the exception of one large blue gel.
I put 6 froze gel packs along the sides, one big blue gel pack on the bottom, placed 4 frige cooled packs on top of that big blue one. Then put the pen with that supplied blue purse ( it had 2 cold gel packs) on to of those. Then 4 more cool packs on top of the Forteo bag, then 4 foroze packs. Shut the lid, and go.
I forgot to add, it has a nice shoulder strap, and its 21lbs, my wife says its not too heavy for her to carry, so the husbands who don't have osteo will not mind at all. I am limited by my Dr. to 20lbs max at this time, so my wife is my mule on this trip to Greece.
If anyone wants pictures email me at
[email][COLOR=Sienna][I]REMOVED[/I][/COLOR][/email].
I did this as we are going to Greece, and the max time in travel, with car is 32 hours.






[COLOR=Sienna][I]Please read the posting rules which explain that offering or asking off board contact is not permitted. The boards are to be used for on board sharing, only. The email and private message features are turned off so that use of the message boards remain anonymous. The only contact you may make with members is to post on the board.[/I][/COLOR]
Sorry for posting my address, my spelling was bad as well.

I hope everyone can get the drift of how the bag looks. I went to the polarbag site, and its basically a bag like that. Any cooler insulated canvas bag that you can get at Target Wal-Mart, or wherever you choose. I would think by the size it would be a 12 packer that I used for my experiment.
For those of you traveling overseas, and with extended transfers, and then car or train travel to final destination. Its not uncommon to be traveling for 28 to 40 hours.
A 24 hour bag, as explained by polar, will not cut it, at least for me.
Granniluv,
Don't feel bad that your husband didn't remember how your Forteo came packed from the pharmacy. I took a trip and had mine shipped directly to the resort and it was there when I arrived. 2 weeks later when I got ready to pack the ice chest with the pen for the return flight, I couldn't remember how it had been packed. Of course I've got an excuse since a friend unpacked the pen before I arrived!! He didn't remember either!!!

Anyways, put an ice pack at the bottom of a cooler, then a paper bag maybe doubled over, then the pen in the original prescription box, the more paper bag, then another ice pack, then the lid. That way you have ice on either side but it's not directly touching the prescription box because you have 2 or 3 layers of paper bag in between. That should work for a plane trip to Calif. but you will probably need a larger cooler. When my pen was shipped to the resort I requested a larger cooler that had 4 ice packs. The entire trip from leaving the resort to getting to my front door was about 24 hours and the ice was hardly melted.

One more thing, the airlines never asked to see in the cooler, and the flight attendant found an extra closet to put the box in. A larger cooler won't fit under your seat. And they can't count medical stuff as a carry on.





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