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Osteoporosis Message Board

Osteoporosis Board Index

Hi Mrs. Wings. Welcome to the board. I'm so sorry to hear about your multiple health problems and your pain. You will find these boards a great place to learn about all of the latest therapies for osteoporosis.

When I got diagnosed with osteoporosis (-3.5 in the spine) my doctor freaked out and sent me to an endocrinologist. I took about 6 weeks to get an appointment and in the interim I did computer research. I learned about Forteo -- the shots that you are reading about. If you put "Forteo" into a search engine you will get tons of information about it. Why not print out some of the stuff and show it to your doctor and ask if it might be appropriate for you. Forteo has only been on the market for a few years and some doctors who are not experts in endocrinology might not even know about it. My doctor turned out to be very knowledgeable about the drug and he thought it was appropriate for me based on the DEXA score. Another criteria doctors use is a history of fractures. I don't know if it would be contraindicated by any of your other conditions, but I don't see why your doctor should otherwise be resistant to prescribing it if you have a way to pay for it.

If you've read back posts here, you'll know that Forteo comes with a black box warning that at a certain level of dosage, lab rats developed osteosarcomas. My doctor, and the doctors of others here, have explained that rat bones are very different from humans (they never stop growing so their ends are more susceptible to cancer). Also, some of the rats got very high doses of the drug not comparable to the human dose. Thus, the risk is considered minimal. So far as we know, there are no known cases of osteosarcoma in a human taking Forteo

Got to warn you that it's a VERY expensive drug -- $500 to $600 a month depending on your area -- so you have to check and see if your medical insurance will cover it and, if so, how much of a co-pay you would have. Some of us here are very lucky that our coverage is good so affording the drug is not a problem.

Like Chronie, I've never had a fracture so I don't know what to tell you about the pain and the difficulties in getting to do some exercise. My gynecologist said that swimming is very good exercise, even though it's not classicly weight-bearing. All of the muscles that are used are good for the bones. My endocrinologist had said that muscle pulls on bone, which stimulates bone to grow. So whatever type of exercise you can do will be to the good.

Best of luck to you.

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