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Osteoporosis Message Board


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Congratulations that sounds like a good gain. I am not on Forteo but on Fosoxmax for 12 months nearly with no side effects so far. I am also taking herbal supplements plus terramin clay as well as exercise which I have always done anyway. I am going to ask for a bone scan after Xmas and if no improvement I will ask for Forteo (which I am reluctant to take as it means an injection every day and will be difficult if I go off somewhere) but will try anything. I am not sure whether I would be offered Forteo or not as the NHS bases everything on cost. You might be interested to know that Forteo (called Forsteo here) is only licensed for women and there is a court case going on here because a male aged 75 has been refused treatment on the NHS as it is only licensed for women so things work differently here. I am female but it is easy to be brushed off over here. I am not convinced that all the treatments I am taking are working so will fight for something else if I have to. Good luck to yu all and Happy Xmas. bQUOTE=spinewhine]I have been on Forteo since March 1, 2005. My doctor told me not to have a bone density test until I'd been on it for about 18 months because the gains did not show up on the dexa scan before that.

Well, I waited until the two-year anniversary of my last test, at which I was stunned to learn that my back T-score was -3.5 and my hip was -2.4.

Today, I had the test. My spine T-score improved to -2.1 -- for a variance of 22.6%. I hadn't dared to hope for such improvement. :) My hip, which hadn't been as bad, improved a little, to -2.1 but the doctor said usually there's deterioration, so a little improvement was still pretty good.

I should add that in addition to the Forteo, some months ago my gynecologist put me on low dose estrogen for other menopausal woes, but he said it would be good for my bones too. This latest report about the hormones has me concerned, of course, but the dose I'm on is very small.

I've also tried to get to the gym a few times a week to do some treadmill walking and upper body weight resistance exercises. My endocrinologist had said to strengthen my upper body and I've been working on that. At first, I overdid it a bit and hurt my back, so I've been trying to be a little more careful with the weight exercises.

I just wanted to share the good news with the other Forteo patients out there. So far, so good.:D

In a few months, I will see my doctor, after my course of treatment with Forteo ends. The plan was for me to try to lock in any gains by going on Actonel or Fosamax. I've never tried those drugs and some of the things I've read here have concerned me, but I guess I'll worry about that tomorrow![/QUOTE]
Hi Flinkrock, I'm really glad you finally got the actual copay price on forteo from your insurance. But the way I look at it, is if you really need it, and it sounds like she does, then if you can swing the price it's definitely worth it. If you look at the cost of the drug as opposed to the expense she would indure without it, it's still a bargain.

I hope she does very well on it, and don't let the injection scare her it is so completely easy and non painful, unless you forgot to let the alcohol dry before the injection. Let it dry naturally, and don't blow on the site since that just deposits germs. About the price on forteo, insurance co's have ways to do an exception on the tier cost (lowering cost), and if that doesn't work you can file an appeal to lower the copay price as long as her dr writes a letter of medical necessity, of course the decision is up to the company, but you must follow their rules for handling these things. This could be away to pay less if the exception goes through and if not try the appeal, but make sure to fill out the correct forms and ask for an expedited decision which most will give you in 72 hours from receipt.

Tell her we all wish her fantastic luck with this. Could she post as well? To get her answers handled directly?

Tell her to hang in there and hopefully the med will work excellently... Like it has for so many of us.





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