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Osteoporosis Message Board


Osteoporosis Board Index


I have moderate Osteoporosis . It is probably caused by an early hysterectomy plus chemotherapy for breast cancer forcing an early menopause. Three years ago I was diagnosed with Osteoporosis and was initialy put on evista . Within weeks I was getting such bad leg cramps every night the doc took me off pills immediately and I was put on fosamax. After a while I noticed my hair was falling out quite badly and it worried me every time I washed my hair as I would have to sweep up the bathroom floor but I put it down to lack of hormones due to all my previous treatment. Around the same time I supposedly contracted an ear virus that gave me intermittent dizzy spells. This went after a while but returned every few months, also I had blurred vision. As my eysight was not A1 anyway I put this down to age deterioration. I took fosamax for about 18 months and then as I was getting a lot of heartburn my doc thought that I would be better on actonel. I started taking it about 12 months ago. My hair loss still continued but I had grown accustomed to having a permanent 'bad hair day' and constant vaccuming the bathroom floor. I was still getting the dizzy spells but added to these I was also getting heart palpitations, sometimes bad enough to stop me in my tracks plus my eyesight was still blurred. All this got me down so much that I first went to have my eyes tested and was told that it was due to age deterioration and would get worse until I was about 65 and then it would probably stay the same. I also complained to my doc who was fed up with having me as a constant patient ,about the palpitations and the dizzy spells. ( I have never got around to complaining about the hair loss) . She was so obviously annoyed with seeing me that she sent me first to a hearing specialist , who in turn sent me for a brain scan as he thought it could be a tumour behing my ear. Of course nothing showed up and he also gave me the old thingy about age deterioration. I went for a heart test also and there was nothing to show on this side either. I think I ended up feeling that I was wasting valuable medical time that could be given to the really sick. My doctor in the meantime was so fed up with me that we had a few angry words as she said that 'of course it was all my menopause' and I would just have to put up with it. Then one day I found this page and started reading about other ways of helping this disease rather than taking pills. Six weeks ago I decided to stop taking and osteoporosis pills and within one month my hair loss has completely stopped and my hair is a lot healthier looking. I havent had any more dizzy spells or heart palpitations and my hearing is a lot better. I have noticed within the last week that my eyesight is rapidly improving. I am amazed that just taking these pills could have caused me to have such an uncomfortable life . I havent told my doctor yet that I have stopped taking the pills as I know she will not agree with me on the side effects I was suffering but I feel that I have to take matters into my own hands. The only thing is , will I suffer in the long run. I am trying to adjust my diet and would appreciate any help on this matter. I have increased my calcium intake with food but I dont want to take any calcium pills. Some of you seem to be into the green veg juice , are there any recipes out there you could share. I have started walking more than I was doing before. I forgot to mention that at the end of my list of side effects was a bloated stomach and some weight gain. My stomach is going down and so is my weight but very slowly. Sorry to list so much but no-one else seems to have mentioned most of the side effects that I was having and I was wondering if maybe people are having these side effects but like me just dont realise and think that they are just part of life. By the way I am 55 which made me 52 when I was diagnosed.





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