It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


Hi there, I also have high risk HPV, had a LSIL (low grade dysplasia) pap in december 2003, colposcopy showed it was in fact HSIL (high grade dysplasia) and so i had a LEEP done for it in febuary 2004. Everything was removed succesfully and i now have to go to follow up paps every 3 months just to check.

Let me try to answer some of your questions. First of all, about why the dysplasia can or cannot return. That is confusing and i was wondering the same thing, but this is how my doctor explained it to me. The HPV virus stays in your body for life, but at different times, it will be active or dormant. So whether the dysplasia returns depends on if the virus is active or "alsleep" at a certain in your life. Also, it depends on how successfully your body fights the HPV. Your body cannot kill it, but if your immune system is strong, it can weaken it and make the dysplasia less likely to return. So the goal is to strengthen your immune system. However, i am under the impression that it would be pretty unlikely that the dysplasia would never ever return again, especially if you are young. I am not exactly sure what the chances of it never coming back are, but you cannot assume that you are done with it for good. That is why you have to keep monitoring this the rest of your life, with regular paps, because if it does return at some point, you want to treat it again while it is still dysplasia and has not progressed to cancer!

About the LEEP. Like i said, i had a LEEP done to treat severe dysplasia. My fiance and I were also very worried about fertility because i am only 22 and want to have children. According to my doctor, having one LEEP done should really not pose a great risk for fertility. It is true that having many LEEPs or procedures on the cervix can wear it out, but if your dysplasia returns, what other choice do you have? But take it one step at a time. I would say yes you must treat this! Your life is most important, and it would be very imprudent to let this just be, you have to be aggressive with these things. Especially because you have HPV, the dysplasia will not just go away on its own. You do not want to let it progress to cancer eventually. If your doc recommends a LEEP, she knows you need to have the cells removed. As far as success, LEEP is indeed supposed to be very successful. I think the different % rates you have seen depend on whether you have high grade or low grade dysplasia, but over all, it is very successful and for me, it was not painful or difficult at all. I am very glad i did the LEEP and am convinced it was the right choice. It was not even an issue for me because i realized that if i dont do it, i will be playing with my health by not removing the cells, and then letting it progress to a situation where later down the road i would need a hysterechtomy to treat me and then ruining any chances at having children.

As far as things you can do yourself, there are some things you can defintely do to try and keep the dysplasia from coming back. Like i said before, the goal is to strengthen the immune system. Stop smoking if you do, as smoking has been directly linked to cervical cancer. I take vitamin supplements including folic acid (400 mcg), vitamin E (400 IU), beta carotene (15mg). I got those numbers from a health book, but you can check with your doc if that is reasonable. Eat a diet rich in veggies, fruits, and grains, and limit red meat and fried foods. Some studies have shown the pill migth play a role in dysplasia, but i think its pretty controversial. I chose to stop taking it, but ask your doc what she thinks too.

I hope this helps! feel free to ask any more questions you have!
Good luck :)
Alex
Thanks for everyone's replies. I am with and have been with the same guy for almost 2 years, and unfortunately, I believe he gave it to me. It's kind-of ironic because he's such a great guy, and it's like, you expect to get this type of thing from someone who is not so nice, someone who is irresponsible and sleazy, if that makes sense. Anyways, I don't smoke and never have, but why does using condoms help if he gave it to me??? I am considering going off the pill, actually. I am meeting with a naturopathic doctor next week and plan on discussing this, as my dysplasia has progressed from "atypia" (which I'm not sure what that means) to LSIL/CIN-1. Also, about the cold knife procedure not affecting fertility...I believe my doctor told me that that procedure is used for more advanced/severe dysplasia, and that it also does affect fertility. Any procedure that takes out a piece of your cervix poses a risk to fertility, as we need our wonderful cervixes to both carry the baby and the sperm need to pass through the cervix. That's why scarring from the procedures can make getting pregnant more difficult, and if the spermies DO make it through, if the cervix has been cut and not healed properly from one of the procedures, then we may have a harder time actually carrying a pregnancy to term, and it may cause miscarriage. I believe if you have any procedure such as this, if you DO get pregnant after, I think you'd need to be monitored more closely during pregnancy.
[QUOTE=ca501]Thanks for everyone's replies. I am with and have been with the same guy for almost 2 years, and unfortunately, I believe he gave it to me. It's kind-of ironic because he's such a great guy, and it's like, you expect to get this type of thing from someone who is not so nice, someone who is irresponsible and sleazy, if that makes sense. Anyways, I don't smoke and never have, but why does using condoms help if he gave it to me??? I am considering going off the pill, actually. I am meeting with a naturopathic doctor next week and plan on discussing this, as my dysplasia has progressed from "atypia" (which I'm not sure what that means) to LSIL/CIN-1. Also, about the cold knife procedure not affecting fertility...I believe my doctor told me that that procedure is used for more advanced/severe dysplasia, and that it also does affect fertility. Any procedure that takes out a piece of your cervix poses a risk to fertility, as we need our wonderful cervixes to both carry the baby and the sperm need to pass through the cervix. That's why scarring from the procedures can make getting pregnant more difficult, and if the spermies DO make it through, if the cervix has been cut and not healed properly from one of the procedures, then we may have a harder time actually carrying a pregnancy to term, and it may cause miscarriage. I believe if you have any procedure such as this, if you DO get pregnant after, I think you'd need to be monitored more closely during pregnancy.[/QUOTE]


My boyfriend smokes on a regular basic... If we have unprotected sex can he make the dysplasia come again and make it worst?
[QUOTE=ca501]Thanks for everyone's replies. I am with and have been with the same guy for almost 2 years, and unfortunately, I believe he gave it to me. It's kind-of ironic because he's such a great guy, and it's like, you expect to get this type of thing from someone who is not so nice, someone who is irresponsible and sleazy, if that makes sense. Anyways, I don't smoke and never have, but why does using condoms help if he gave it to me??? I am considering going off the pill, actually. I am meeting with a naturopathic doctor next week and plan on discussing this, as my dysplasia has progressed from "atypia" (which I'm not sure what that means) to LSIL/CIN-1. Also, about the cold knife procedure not affecting fertility...I believe my doctor told me that that procedure is used for more advanced/severe dysplasia, and that it also does affect fertility. Any procedure that takes out a piece of your cervix poses a risk to fertility, as we need our wonderful cervixes to both carry the baby and the sperm need to pass through the cervix. That's why scarring from the procedures can make getting pregnant more difficult, and if the spermies DO make it through, if the cervix has been cut and not healed properly from one of the procedures, then we may have a harder time actually carrying a pregnancy to term, and it may cause miscarriage. I believe if you have any procedure such as this, if you DO get pregnant after, I think you'd need to be monitored more closely during pregnancy.[/QUOTE]


I've read about the cone operation thing making pregnancy more difficult but as far as the other procedures... Loop and cryosurgery I hear that if it is used more than once it can have an affect of having kids but I also hear that the doctor can stitch up the cervics as well... Did anyone hear differently?
[QUOTE=cocoeyes]So, if he smokes it really wouldn't hurt or make the dysplasa re-appear again? We always use condoms since I am not on the pill right now although I've heard that being on the pill makes it (the dysplasia) come again also. I feel as though I'm domed either way with this whole Dysplasia thing. Mine has only been the Mild stage and my doctor is monitoring it and I pray and hope it just goes away. But being that my boyfriend smokes and I'm sure he has been exposed to it will it make my dypslaisa worst??[/QUOTE]

A lot of factors can determine if your dysplasia will get worse or not. The biggest thing is if you have HPV or not. If you have HPV, the dysplasia will almost certainly not go away on its own and may likely have to be removed by a procedure, whether LEEP, cone etc. But these procedures have a high success rate, you just have to follow up and monitor it through your life regularly to make sure that if it does come back again, you can remove it again. If you dont have HPV, it is very possible that your dysplasia, esp since it is mild, can go away on its own. About the effect of second hand smoke from your boyfriend, I would assume that since smoking yourself can make dysplasia worse, that second hand smoke could also make it worse, especially if youre constantly exposed to it in the house or something. But ask your doc about that. Dysplasia is scary, mine was moderate/severe and i had it removed with LEEP and it was successful. You are not doomed so long as you always follow it closely so that you dont let it progress to something further. If you keep all your gyno apointments to a T, you can be one step ahead of the game and treat it accordingly.
[QUOTE=alexandraB]A lot of factors can determine if your dysplasia will get worse or not. The biggest thing is if you have HPV or not. If you have HPV, the dysplasia will almost certainly not go away on its own and may likely have to be removed by a procedure, whether LEEP, cone etc. But these procedures have a high success rate, you just have to follow up and monitor it through your life regularly to make sure that if it does come back again, you can remove it again. If you dont have HPV, it is very possible that your dysplasia, esp since it is mild, can go away on its own. About the effect of second hand smoke from your boyfriend, I would assume that since smoking yourself can make dysplasia worse, that second hand smoke could also make it worse, especially if youre constantly exposed to it in the house or something. But ask your doc about that. Dysplasia is scary, mine was moderate/severe and i had it removed with LEEP and it was successful. You are not doomed so long as you always follow it closely so that you dont let it progress to something further. If you keep all your gyno apointments to a T, you can be one step ahead of the game and treat it accordingly.[/QUOTE]

Thanks for responding to my questions. Although I hear that even if one has HPV and it's a CIN 1 it can go away on it's own. That's why doctors want to do the "Wait and see" procedure. I will talk to my doctor about the second hand smoke situation. My doctor didn't tell me ANYTHING about what to avoid while having this condition. I don't know what strain I even have but most likely it's probably the High-risk type because I know I've been exposed to this for three years now but just finding out about it.
I had a leap done around 7 yrs. ago.
i went in for a pap and it came back mild dysplasia and I needed to come in for a biopsy where they cut some of the tissue and sent it off to get it looked at. Well, it took two months for me to come in as I kept on having my period ( which alone is odd for me considering at the time I had one every other month). When i went back for that and the test came back it was already severe. She had me come in asap to do the leap. I was awake through it she gave me lidocane. I watch her use the laser and cut the pieces out ( i was going to school to become anurse so I found it interesting) for cervix to be so little i was shocked at how much she was cutting out. She did say she already saw cancer cells ( although it wasn't told by a pathologist) and she couldn't get it all but burned around it since it was an odd shape it was irregular and she had never seen it like that before. Which made me nervous. She then asked em if i wanted to go ahead and have a hysterectomy right then Of course I said no. She said if i had anymore kids i would need a cyrclage.. I already had one but did want another one. I did get pregnet and did miscarry but not from that and got pregnet again and the drs. didn't feel as though i needed a circlage and i was nervous the entire time. i had moved to another state and under alot of stress and did go into premature labor and the drs and nurses thought i would have her that night if not the next day. they gave me shots to stop it and the next thing i knew she was a week late. i was begging the drs. to induce..
They said it has everything to do with your inner cervix and alot of times it will scar and hold and if not they will do a cyrclage by stitching it.
My point is don't delay having the leap because of that there is procedures out there to prevent miscarrying and they will be on watch for your cervix from my understanding though they won't do it until you are around 3 months pregnet which is really the best time.
Even though it seems like yours isn't as aggressive as mine was it could turn into that and before you know it you could get cancer and then it could spread or worse you can die and really won't have kids. with a leap you still can have kids. i know alot of woman who had leaps and alot who had to have cyrclages and they carried just fine and did great.

P.S.
the dr. also said she couldn't get all of my cancer/dysplasia and burned all around it to prevent spreading. Which i don't get. Now i am going to a surgeon on the 28th for a biopsy to see if i have lymphoma.(dr. seems to think i do) I am not saying this did or didn't play a part in it. I dont' even know if i have it yet. But please this is also a very serious matter if your dr. says leap please do it...

good luck to all of you,
wish





All times are GMT -7. The time now is 06:31 PM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!