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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


I hope there is someone who has gone through this mess. To make a long story short. I have been having negative pap smears for over 16 years and this year the pap smear showed hgsil (high grade dysplasia) and agusc.

Follow-up colpospsy showed on biopsy on cervix extensive CIN III with no carcinoma present. ECC was done and showed CIN III in the endocervical canal. This showed only squamous features. Well I though endocervical canal only had glandular. So i am thinking that they missed some adenocarcinama. What to do you think?

Now the doctor wants to do a cold cone knife cause he says the leep does not reach higher up in the canal. I thought they do the leep even when its up in the canal. I am getting real worried cause the doctor might not be telling me everything. I want to have children so this is really getting me upset and nervous. I am to the point of severe depression.

If any of you had a cone please tell me how it went and for what reasons why the doctor decided to do a cone.

I feel like I am a worst case scenario cause I am the unfortunate one to get a cold knife cone instead of a leep. Has anyone have CIN III on biposy and ecc and then showed to have cancer on the cone.

My goodness I am so scared, please help with any info you might have. I will truly appreciate it.

bonnie
[QUOTE=wtg4grl]I hope there is someone who has gone through this mess. To make a long story short. I have been having negative pap smears for over 16 years and this year the pap smear showed hgsil (high grade dysplasia) and agusc.

Follow-up colpospsy showed on biopsy on cervix extensive CIN III with no carcinoma present. ECC was done and showed CIN III in the endocervical canal. This showed only squamous features. Well I though endocervical canal only had glandular. So i am thinking that they missed some adenocarcinama. What to do you think?

Now the doctor wants to do a cold cone knife cause he says the leep does not reach higher up in the canal. I thought they do the leep even when its up in the canal. I am getting real worried cause the doctor might not be telling me everything. I want to have children so this is really getting me upset and nervous. I am to the point of severe depression.

If any of you had a cone please tell me how it went and for what reasons why the doctor decided to do a cone.

I feel like I am a worst case scenario cause I am the unfortunate one to get a cold knife cone instead of a leep. Has anyone have CIN III on biposy and ecc and then showed to have cancer on the cone.

My goodness I am so scared, please help with any info you might have. I will truly appreciate it.

bonnie[/QUOTE]

Sorry to doge your questions on everything but what is a ECC? I've been hearing a lot about that.
[QUOTE=wtg4grl]I hope there is someone who has gone through this mess. To make a long story short. I have been having negative pap smears for over 16 years and this year the pap smear showed hgsil (high grade dysplasia) and agusc.

Follow-up colpospsy showed on biopsy on cervix extensive CIN III with no carcinoma present. ECC was done and showed CIN III in the endocervical canal. This showed only squamous features. Well I though endocervical canal only had glandular. So i am thinking that they missed some adenocarcinama. What to do you think?

Now the doctor wants to do a cold cone knife cause he says the leep does not reach higher up in the canal. I thought they do the leep even when its up in the canal. I am getting real worried cause the doctor might not be telling me everything. I want to have children so this is really getting me upset and nervous. I am to the point of severe depression.

If any of you had a cone please tell me how it went and for what reasons why the doctor decided to do a cone.

I feel like I am a worst case scenario cause I am the unfortunate one to get a cold knife cone instead of a leep. Has anyone have CIN III on biposy and ecc and then showed to have cancer on the cone.

My goodness I am so scared, please help with any info you might have. I will truly appreciate it.

bonnie[/QUOTE]

Dear Bonnie,

I also had CIN 3 but i had a LEEP because my ECC was negative. But I asked my doc quite a bit about cone because for a while we thought my dysplasia had returned, and the next thing she would have wanted to do was a cone. There can be many reasons why doctors chose to do cones instead of LEEPs. The cone is a more invasive and therefore more aggressive procedure, so sometimes docs chose it if they want to be more aggressive. It is true that doctors generally chose cone over leep when the endocervical canal is involved, because it is indeed harder to reach up there with the LEEP. But you are right, sometimes LEEP can be done when the canal is involved, but its really determined on a case to case basis. The doc probably chose to do cone because she determined your dysplasia in the canal was too hard to reach by leep --maybe too high up there or in a difficult place to reach with cone. Ask her why she wants to do the cone instead of LEEP, but my guess is what i wrote above is probably what she will explain to you. But dont be too scared about the whole cone vs. LEEP thing, its not a bad thing that you are having the cone done instead, the doc is simply chosing the procedure she deems best to remove your personal case of dysplasia.

As far as finding cancer when they go in for the cone, i too would say its pretty unlikely. The colp is a more precise diagnostic tool than the pap, and since it showed the same thing as your pap, it is most likely that you wont have any big surprises when they go for the cone. Of course unfortunately there are always exceptions, but i think it would be pretty unlikely.

As far as children, cone is more aggressive, so technically it has the potential to pose more fertility problems than LEEP. However, my doctor told me that in general, it should still be very possible to have children after a cone. She seemed of the opinion that it is really when you need several procedures to take care of the dysplasia that fertility starts to become a problem. Also, know that there are many things docs can do to promote fertility after these proceedures --for instance there is a procedure where they put a stich in your cervix to make it stronger, i fogot what its called, so ask your doc about this too. So in conclusion, according to my doc, you shouldnt have too much to worry about the fertility.

But yes, if you feel you need a second opinion, definitely get one! you should always feel comfortable with your doc, and remember, ask as many questions as you want!! i always pester my doc and come in with a written list of stuff i want to ask her!

Good luck, all the best,
Alex :)





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