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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


First of all, I would like to send a huge psychic hug to all of you on these boards: your generosity and courage, your kind words and your prayers sustained me through this less than pleasant experience.

OK... It is gross and crampy and icky... but it does NOT hurt. As I was lying back, I had a weak moment, thinking that I could not bear sharp instruments cutting and scraping... but it is not that bad. I feared the ECC most, but I experienced more discomfort with the punch biopsies. The ECC was a crampy, scraping sensation, but not painful per se. The biopsies were worse, esp. the multiple ones I got done in various spots of an extensive acetowhite area.

Now, as the wait for the results has begun, I have more questions... (Why do the most important questions occur to me AFTER I have left the dr's office?) Oh, well... So... may I, once again, draw on your knowledge and experience?

* I was told that the colposcopist cannot really tell what is going on: they have to wait for the path report. Is this your experience too? I was under the impression that they can tell quite a lot from the way the areas look, their margins, their density, etc., but the only piece of positive info I got was that no abnormal vasculature was observed. For all the rest... anything goes... What is your experience?

*I was also told that the white areas looked like HPV-consistent dysplasia... But, but... I am HPV-negative for both the low-risk and high-risk HPV strands... What am I to believe and assume? Is my HPV test -- my only light in this adventure -- a false negative?

*Any idea why they did the ECC first and then the punch biopsies?

*Since the lesions are so close to the opening of the cervix, how do they make sure that they do not contaminate the ECC sample as they insert and take out the curette? All of a sudden, I am seized with fear of a false-positive ECC...

*They also told me that the acetowhite areas could be due to inflammation. How could this be? Wouldn't the Pap smears have shown inflammation and not cell changes?

Thank you all SO MUCH! (I will now go and stuff my face with more painkillers... :jester: )

:angel:
First congrats on getting through it, it wasnt that bad right? :) I will try to answer the ?s as best I can:

* I was told that the colposcopist cannot really tell what is going on: they have to wait for the path report. Is this your experience too? I was under the impression that they can tell quite a lot from the way the areas look, their margins, their density, etc., but the only piece of positive info I got was that no abnormal vasculature was observed. For all the rest... anything goes... What is your experience?

They can guess, and go by comparison to others, but since sometimes it can be much worse than it looks, and they cant see how deep it goes , they would not want to give false hope or false worry. I understand this. They can generally talk about what they see, but it makes sense to want to have the facts there rather than making assumptions....

*I was also told that the white areas looked like HPV-consistent dysplasia... But, but... I am HPV-negative for both the low-risk and high-risk HPV strands... What am I to believe and assume? Is my HPV test -- my only light in this adventure -- a false negative?

This is why its not great to say 'it looks like'...because it can be wrong, and each case is different. I would get a 2nd hpv test to just make sure, but again, looking like is NOT the truth - the test is the truth.

*Any idea why they did the ECC first and then the punch biopsies?

My guess is that it doesnt matter..... two separate areas, so its just whatever they decide to do first.

*Since the lesions are so close to the opening of the cervix, how do they make sure that they do not contaminate the ECC sample as they insert and take out the curette? All of a sudden, I am seized with fear of a false-positive ECC...

I would get two done, if the first is positive. My lesions are close to the opening, but my ecc was neg, but im still having a leep at the center to make sure it doesnt go up. If you get a neg, its most likely not a false neg tho.

*They also told me that the acetowhite areas could be due to inflammation. How could this be? Wouldn't the Pap smears have shown inflammation and not cell changes?

My gyno says each area can consist of all levels of abnormal cells - I have some normal, some cin 1, cin 2 and a bit of cin 3. So a 'cin3' result really means I have at LEAST a tiny bit of cin3,,, but in my case, 90 percent was cin 1 or 2. But they have to write cin3 bc at least some of those cells exist. So, if you get a CIN 1 pap, it probably means there is some inflammation and some cin1 combined. But since cin1 is worse, they wouldnt b other writing inflammation also (just a guess, but i think thats right) And the treatment takes care of everything......

Hope this helps! My leep/laser is on the 9th, I will let you know how it goes!
Dear, dear lobo:

Thank you so much for coming to the rescue - again. :)

It also crossed my mind to get a second ECC if this comes back as pos, but I guess I will cross that bridge when I get to it...

I will be thinking of you on the 9th, hope all goes well...

I am YEARNING for a break from dr's visits... They told me that with my abnormal Pap smears, even if the biopsy came back negative, they would still keep scheduling colpos until cytology matched histology... (sigh).

Does it ever end? Even for a little while?

And no, it was not that bad... Icky and crampy but nothing awful, nothing I could not handle... (although I admit I was SO tense with fear...)

Hugs!
:angel:





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