It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


Results from Leep
Mar 30, 2005
hello everyone-

I should be getting my results back from my leep tomorrow. They are going to call me over the telephone. Then on Monday I go in for my follow-up exam. Just wondering if there are certain questions I should be asking my doctor? I know I am looking for clear margins however, if she doesn't tell me I have clear margins what should my follow up questions be? I am new to this and want to make sure I am asking the right questions?
Please help
thanks
I haven't had mine yet, so I don't know what to ask. But I am quite concerned that the pap and biopsy results seem to be frequently different from the LEEP results (often better though). Please share what you find out, as I have no idea what to expect myself. Good luck, I wish you all the best and I hope you are free and clear with no more surgeries needed.
So I dropped my jaw when I got my results. I got the results over 5 hours ago and my jaw is still in the same spot. My dr. tells me that the piece of my cervix that she removed with the leep did not show dsyplasia...basically she said she didn't get the dsyplasia unless it was burnt off however she is not certain it was even burnt off. So she said the problem now is "where is the dsyplasia?"....this is what she says to me. SO I go oh my god what do I do now...what is the next step? She goes I will basically have to re-pap in three months and go from there......
I don't even know what to think? I am so upset! I can't handle the waiting...the not knowing...
These procedures can really wear on a person.
Wow, golly gee. That really is lousy and I am so sorry you're anxious . Lets just hope the dr DID get the dysplasia with the procedure. I can relate to you so much . Am waiting to hear about my results of the leep on Tues. Scares me too. I am just sooo darn tired of this .

Take comfort in knowing you are attacking this and continuing to get checkups. I pretty well have accepted that I'll have this problem the rest of my life and I will continue to monitor it .

I'm going to look at my situation and believe every thing is ok as long as I continue to go in and be watched for trouble. Not a darn thing we can do - I am EATING folic acid though and taking my daily vitamins. I can at least help my body fight it.
Gosh oh my... I am still waiting .....Try not to let it consume you , ok? Sending hugs......

Donna
Thank you for your support donna. I am just so puzzled that my results came out this way. I never thought this was an option....where the doctor can miss or remove a healthy potion with no dsyplasia what so ever. I thought that is what the vingear solution was for. I thought the cervix turns white and they remove that portion? Well, I go in on Monday for a check up and I will ask everything I can think of? does anyone have any suggestions on other questions I can ask?
[QUOTE=tpagm]Thank you for your support donna. I am just so puzzled that my results came out this way. I never thought this was an option....where the doctor can miss or remove a healthy potion with no dsyplasia what so ever. I thought that is what the vingear solution was for. I thought the cervix turns white and they remove that portion? Well, I go in on Monday for a check up and I will ask everything I can think of? does anyone have any suggestions on other questions I can ask?[/QUOTE]

Yes, that's what they are supposed to do: locate the abnormal looking areas and remove them. The whiter the area, the higher the chance of dysplasia. On the other hand, an acetowhite area is not necessarily dysplastic. Did you get a positive biopsy before getting the LEEP done?

I am so sorry you are going through this, it is very frustrating, I know. I will be thinking of you, hoping that you get satisfactory answers at your next appointment. Sending lots of hugs... :angel:
My bioposy from my colpo came back CIN 1/2. So I definitely have mild/moderate dsyplasia. It is just so frustrating to go to the hospital go under...they then show me what they remove..and now I find out what I saw was healthy tissue and did not need to be removed.
[QUOTE=tpagm]My bioposy from my colpo came back CIN 1/2. So I definitely have mild/moderate dsyplasia. It is just so frustrating to go to the hospital go under...they then show me what they remove..and now I find out what I saw was healthy tissue and did not need to be removed.[/QUOTE]

Oh, dear, I am SO sorry... I totally understand how angry and frustrated you must feel... This whole thing sucks! :(

Be assertive and ask them questions about how they could possibly have screwed up like this. See what they have to say and if you are not convinced, you might consider changing drs.

Good luck!
Thank you so much for responding and listening : ). I go to the dr. Monday and will be full of questions. She made it seem like this is so normal. She also made the comment of at least we know I DO NOT have cancer. Well, that is all fine an dandy but I just did a leep procedure and she took out healthy cervix not cervix with dsyplasia. It just makes me cry.
[QUOTE=tpagm] She made it seem like this is so normal.[/QUOTE]

No, honey, this is NOT normal, missing the whole dysplasia. She should have a good explanation and lots of apologies. Grill her, vent, and drop her. She should at least have expressed some sympathy for the emotional torment you are going through.

Sending psychic hugs your way...

Elena
sounds strange. You know if your doctor seems incompetent go for second opinion. A doctor performing a leep should know what he/she is removing.

This is a good to bring out that of showing the chunks of cervix taken off. Someone online told that she saw the chunks of her cervix from the biopsys during the colpos. Isn't that awful? They should put them away of sight!
I think that you should get copies of your results for any legal follow up you may need. I hope you do not have to pay for your procedure as I agree that it sounds like incompitency (sp?). I would take a copy of that report to another gyn to see what they make of it. It is unecessary emotional stress to have to go through a procedure which was pointless and uncomfortable, let alone the frustration of the waiting involved, to then possible have to face the same procedure again. And a leep at cin1/2 isn't necessary usually anyway. What the hell was this bloody butcher playing at?
So I went to the doctor. She made me feel a little better. But I guess I won't really know until I go and get a re-pap in three months. She put my mind at ease for the time being. She said that my lesion may have been small enough that most of it was removed with the biopsy's done with the colpo and that the portion that was left was burnt with the leep machine. She said that this has happened before and that it is likely that it is all gone but we won't know for sure until my pap in three months. I will just keep my fingers crossed until then and try not to worry about it as best as I can...since at this point there is nothing I can do. So everyone please say a little pray for me. I will be changing doctors if my pap comes back abnormal and I will talk to that doctor about reviewing past records and pathology reports.
I did get a good report as far as my healing. She said my cervix looks great and I can resume all normal activities.
thank you everyone for your input and support. This site has helped me so much.
I hope all works out well for you sweetie, and still I don't trust that this mishap with the procedure is normal. I am glad that you are open to getting another opinion. Since Feb, in all the posts I have read with all sorts of tests exams and surgeries, I never heard of this happening.
Good luck, keep us posted...
I am happy that you are healing well and feeling some better. Try to use the time until your next Pap to take care of yourself and forget about dr's visits and unpleasant procedures... I will be wishing and praying that your Pap comes back clear.

God bless you.

Elena :)
tpagm: THANK YOU for sharring.

HUGGS
I want to thank everyone who took time out to send me your thoughts. You have really been a great support system. I am definitely going to try to put my mind at ease until 07/07/05 when I go back for my next pap. I have been searching every where on this board looking for people who have had the same results as me but I can't find a thing. But I will just be positive and hope for the best. Maybe the doc is right but I shall see in time. Thanks again everyone.
tpagm

I think my results are somewhat simlar to yours , the only difference being that mine was CINI and yours CINII. I am told that my leep got the abnormal tissue and I will go back in 6 months for a repeat pap.
I have read that leep CAN take away the bad cells so hopefully that happened for you as well.

I am keepiing my fingers crossed for you . I am hoping this worked for me too but I am also aware that my HPV could make my next checkup show mild dysplasia again. Even with new cell growth between now and then....

I guess its something I 'll have to live with but continue to have checked and treated. I guess I'd recommend a second opinion for you if you have the feeling yours wasn't treated "right" . Hoping your dr got all of yours too..

Hugs to you!

Donna
Hey donna I am so glad you got your results back and they seem like positive results. That is great you don't have to go back for six months. My results actually came back a little differently my doctor couldn't tell me if she removed abnormal cells since what they biopsied was healthy all she could say was that it may have been burnt from the leep machine. I have to go back in three months to re-pap and pray that it comes back normal. If it comes back normal then I guess the abnormal cells were burnt off.

Let's just hope we can put this behind us in the near future.
my thoughts are with you
hugs
tpagm:

I wonder if that's what happened to me. I had a LEEP done in August - I don't remember all the diagnosis since it was so long ago and I've had a lot going on in my life since then. She called with the results and said she was not happy - that the results from the lab showed nothing, but she was positive she saw abnormal cells. So she wanted me to come in for another biopsy in October but I had to take care of my mother who was in hospice care. With all that, I was bad at taking my BC and my period was all over the board. It's finally back to normal and I have my next biopsy (and possibly another LEEP) next week.

I wonder if that's why the LEEP showed nothing. Does that happen often? I REALLY don't want to keep doing this - for some reason I can't deal with the...oh, what's the name of the thing that...for lack of a better description, opens you up? Starts with an "S". She uses the smallest one on me and it's the most intense pain. Is that the case with anyone else?

Sorry I'm so out of it with the terminology. I've had so many medical terms thrown at me the past few months that I can't keep any of it straight anymore!
Hi,

I think I basically had the same results. I had my LEEP done for CIN1 and CIN3 in two different areas. I got the results today and they came back NO dysplasia at all. The doctor said he had seen this before and that sometimes the biopsy that is done at the colposcopy gets all of the cells, but there is really no way to tell. He took a really shallow LEEP of the transformation zone and there was no dysplasia. The tissue came back chronic cervitis (sp?) and squamous metaplasia. He said that it is possible that my body healed the dysplasia too. So I don't know but he said that he has seen it before and not to worry because this is good news. Sounds like our results might be similar. I read your post before I went for the follow up to get my results and when he told me them it made me feel better having known that someone else may have had the same type of results. Please keep us posted as to what happens after 3. I hope our doctors are right!!!

Take Care,
13utterfly
Is it the speculum? I hate it too....that's why i dodged paps for 10 yrs, just so I could get cin3 and now I get to make up for all the poking and prodding down there that I missed out on for the last decade, all in one go!
13utterfly-

Sure does sound like we got the same results. The one thing that I don't understand is that say they could have removed our bad cells during the colpo why make us go through the leep? Well, if there was a chance you go it all then why didn't you test again before you send me for a more invasive treatment like a leep. I just hope we both have clear paps at our next visit to the doc.
phaedrus -

Yes, the speculem. I mean, a couple years ago when I got my paps, it was really super uncomfortable, but now, it's horridly painful. I actually was crying when they did the biopsy and LEEP - and it was more from that then them doing the biopsy and LEEP. Sex hurts a lot too - and lately using tampons hurts at times. I've mentioned it to my doc, and another doc I had and they just shrugged it off. I wonder if this is some kind of symptom of dysplasia too. It's starting to become a major problem. I'm definitely bringing it up again to my doc next week when I get the biopsy done.
girl.101-

sounds like you might have endometriosis:
Symptoms may include:

Pain.
Pelvic pain
Severe menstrual cramps (dysmenorrhea)
Low backache 1 or 2 days before the start of the menstrual period (or earlier), subsiding during the period
Pain during sexual intercourse (dyspareunia)
Rectal pain
Pain during bowel movements
Infertility, which may be the only symptom. 8% of all infertility is caused by endometriosis.3
Abnormal bleeding. This is rare but may include:
Blood in the urine or stool.
Some vaginal bleeding before the start of the menstrual period (premenstrual spotting).
Vaginal bleeding after intercourse.

Several other conditions, such as painful periods, or noncancerous growths in the uterus called uterine fibroids, can cause symptoms similar to endometriosis.
[QUOTE=13utterfly]Hi,

"The tissue came back chronic cervitis (sp?) and squamous metaplasia. He said that it is possible that my body healed the dysplasia too. "


Squamous metaplasia is another term used to describe cervical dysplasia, i.e., CIN. So that means there was abnormal cells removed with the LEEP.
I would just like to clarify that metaplasia is [I]benign[/I] changes to the cells. My understanding is that metaplasia happens when there is healing occuring. Metaplasia can cause "whiteness" to occur when sprayed with the vinegar spray, but are not an indication of dysplastic changes. Metaplasia is NOT the same thing as CIN. If it were, I'd be in big trouble...

Karen
tpagm-

I was diagnosed with endometriosis - I think. It was quite a while ago but nothing was ever done about it. I have pretty much all those symptoms and I think that's what I was diagnosed because of - symptoms alone - not any exam. Things like blood in the stool and the pain during sex are newer things though. My periods also last 8-10 days, and I didn't have my first period until I was almost 18.

There's not much you can do for endo, is there?

Could I possibly have more problems down there? Why do we girls have to be so complicated? :p
I do not know much about endometriosis...but my best friends sister has it. I do know there things that can be done about it. My friends sister has gotten treatment and I now my gyno office has a lot of pamphlets and things for helping with endometriosis. So If I were you I would definitely talk to your gyno cause there is no reason why you need to live in pain especially when having sex.
[QUOTE=karen32]I would just like to clarify that metaplasia is [I]benign[/I] changes to the cells. My understanding is that metaplasia happens when there is healing occuring. Metaplasia can cause "whiteness" to occur when sprayed with the vinegar spray, but are not an indication of dysplastic changes. Metaplasia is NOT the same thing as CIN. If it were, I'd be in big trouble...

Karen[/QUOTE]

Totally agree. Metaplasia is not dysplasia. I know because an acetowhite area from my colpo came back as metaplastic in the path report and there is nothing to do but wait and hope that the tissue will heal without malignant changes. I, too, was told that metaplasia is not CIN, but a normal healing procedure, very common in the TZ of the cervix.





All times are GMT -7. The time now is 01:13 PM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!