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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


Hi Kim,

I know your last post was meant for Michelle, but I thought I'd chime in with my two cents anyway. :)

You said in your last post, "it is frustrating to think that there are a lot of types of people out there and some of them just want to be told what they want to hear: which is that displaysia will go away on its own or that it is not going to turn into cancer or that they don't really need a LEEP or that they can cure it on their own. I think we really have to consider what our advise to might lead people to do, or NOT do, and what the consquences of that might be."

Yes, I think all of us on this board would love to hear that all types of dysplasia is no big deal and can go away on its own accord! But I'm not so sure I know of *anyone* (on this board and women I know personally) who is taking dysplasia lightly, regardless of the level of dysplasia. With that in mind, I think you know from my older posts that I'm doing a watch-and-wait rather than a LEEP option in conjunction with a health/supplement regimen. The body has a remarkable ability for self-healing and as I am young and healthy, I will give my body a few months to deal with my CIN I/II. Michelle and others have stated that in many cases, dysplasia can regress-- of course, the more advanced the dysplasia (CIN III), the less likely it will regress without treatment. This is not to say that women diagnosed with dysplasia should just chuck their results aside and continue their lives as usual-- of course not. But like I said, I think many women take it seriously and follow the steps necessary to combat the dysplasia. And you're right-- we are extremely fortunate to live in western nations where we have access to routine screenings.

However, you also said: "But in the US and other developed nations, today, if a woman has a LEEP and it comes back clear and she never had anything wrong, well, then, great! That woman can be sad that she was one of the few who ended up with an unecessary procedure, thrilled that she is healthy (how many of us would have given anything to have our LEEPS come back as clear and unecessary???) but be glad that she has the opportunity to particpate in a medical system that saves so many lives."

I personally would hate to be that woman who had a LEEP and it turned out to be completely unncessary. I do know it's a highly successful treatment with a low recurrence rate and risk of fertility complications-- BUT there it is! The LEEP and other treatments are not going to cure us 100%! Nor is there a 0% chance of adversely affecting our fertility! So yes, I'd be pretty upset if my doctor did a LEEP and it turned out to be benign-- there's still a chance I could get scar tissue that would hinder my chances of conceiving and there's a chance of cervical incompetence that could make me more likely to deliver pre-term. These percentages are small, yes, but there *is still a risk.*

I am grateful we have choices now whereas 60-70 years ago we would've all been in the dark about this. But I believe now that doctors are being much too aggressive with the LEEP as it's a quick, cheap and easy procedure for them to perform (compared to laser which carries less risks of cervical damage but is much more expensive). I'm not going to hastily have an invasive procedure performed on my cervix when I still have some time to see if my body will self-heal. And if that doesn't work, well then at least I'll have tried another alternative and feel confident enough to go ahead with a LEEP. But if I do a LEEP now, I think I'd always wonder if there weren't any other options beforehand. But that's just me! :)

I think the bottom line is that women should be informed and do their homework before blindly adhering to one doctor's advice. I think all of us on this board are all intelligent and informed women who know what's going on with our bodies and make our own decisions based on what we feel is right for us and taking into consideration other women's stories on this board. I think this HPV/dysplasia plight we all go through is also a great (if we can call HPV great in anyway!) way for us to keep close tabs on our health AND to really be proactive about our health. The only way we can truly speed up and aid the suppression of the virus is via a healthy lifestyle and diet, and I know this can only benefit us overall by amping up our immune systems. I appreciate your opinions Kim and I do hope that you start getting normal paps again soon! Ahhh, doesn't "normal pap" sound so nice? I'm sure that's all in store for us soon! Take care ladies.
[QUOTE=karen32;3056367]Obviously we were posting at the same time. Well, since there is not one other identifiable CAUSE of cervical cancer PERIOD, I will assume that you are much better versed in this subject than I. Period.


Hi Karen,

Actually, you are not wrong. I found several, highly technical and deathly dull studies online about how a certain percentage (small but still there) of cervical cancers were caused by endometrial cancer (showed up as displaysia or "suggestive of cancer" on a pap WITHOUT endometrial cells. I was a lot more worried about having endo cancer since I had all of the symptoms for a long time and had not had a endo biopsy until recently so I really researched the heck out of it, and did not like what I read (that my displaysia could have been caused by and connected to endo cancer) but there it was. Also, my 11 year old got guardisil today (yippee!) and her doctor (and my doctor also) said that HPV does not cause all cervical cancers. (plus, the literature I got in the office today said this as well.)

I think the real risk here is that there ARE women who will surf along the web and read posts from forums like this (never joining in, just getting quick info) and if they read someone saying that if you test negative for HPV you have no worries of either displaysia or cancer, they may not seek treatment. How many might be false neg. HPV tests (?) which happen failry often since one did happen to me. I also posted where I read in several places that a big factor in newly diagnosed cervical cancers were from women who went many years without follow up or treatment after a bad pap.

The kind of women who let a bad pap motivate them to take assertive, educated action are not the majority posting here, obviously, but they are out there. I know also that there are doctors who don't want to stress their patients out prematurely, so the doctors tell their patients they have "nothing to worry about" assuming probably that they will still get follow up care, but then these women DON'T follow up for 5 or ten years or more, which can lead to cancer or really awful displaysia.

I just think we have to be cautious not to say anything that #1) doctors and medical literature disagree with, and 2) might give some quicky web surfer the "excuse" they need not to follow up. Sometimes all it takes is laying off the absolutes without a medical degree, and also, saying that one is not a medical professional, espeically if one is quoting medical studies directly, instead of paraphrasing and saying that they "heard this or that" which definitely would not be confused with a real medical professional.

Take care,

Kim

Kim





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