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Cancer: Cervical & Ovarian Message Board

Cancer: Cervical & Ovarian Board Index

Severe Dysplasia
Jul 14, 2007
I had my annual pap smear on June 1, 2007. It came back abnormal. I have never had an abnormal pap. The doctor said I needed to have a colposcopy so I did. They took samples from 5 different areas. The samples taken in the opening/canal of my cervix came back moderate/severe dysplasia. 2 other samples were moderate and 2 were severe with gland involvement. When I went to get these results this past Wednesday, the first thing out of my doctors mouth was, "where are you with your child bearing?" So I knew the biopsies couldn't be good. I told her that I would like the option to have more children if I could. I have 2 beautiful children now but I am only 31 years old and I just don't know that I am done having children. She said that my tests came back "high" and that I needed to have a LEEP. I left there scared and confused. My partner said I needed to go have a 2nd opinion and had so many questions that I couldn't answer. I went by the dr. ofc the next day (Thursday) and asked for a copy of my pathology report. That's where I found out that it was moderate and severe dysplasia. I called the dr. on Friday and told them that I wanted a 2nd opinion before having the LEEP. I know something needs to be done but I want to make sure that the LEEP is the best thing for someone having severe dysplasia. I don't know if she is just going to do this because I said I wanted more children but she pretty much knows this may not get everything. I asked for a referral to a GYN/Oncologist but she will not refer me because she says it's not necessary to go to a specialist at this stage. I don't know what to do. Do I just let this dr. do the LEEP and go from there? My partner seems to think that the last doctor I had messed me up pretty bad when they tried inserting my Mirena IUD. When I went to get it inserted, the loading device wasn't working and they couldn't get it in. Talk about pain. I laid there for about 20 minutes while they tried and tried to get it in. They finally said the device was defective and would have to order a new one. I went in a month later and had the device inserted. When I went in for my colposcopy the dr. couldn't do it because she said there was too much blood on my cervix. She asked when I would be off my period and I told her I wasn't sure because I had been bleeding pretty much ever since I got the Mirena put in. Dec. 2006-June 2007. She said that was not normal and I may have gotten an infection when they put it in, so she put me on an antibiotic for 10 days to try to get me to stop bleeding. 10 days later I went in for my colposcopy. When she first looked at my cervix it was clear of blood but the moment she touched it I started bleeding. She said I had an "angry cervix." She still did the colposcopy and now I just need advice as to what I should do next. Should I be concerned at this stage? Does the Mirena have anything to do with what's going on? Are there certain questions I need to ask before having it done? What does gland involvement with the severe dysplasia mean? Can anyone help????
Hi aprila,

Sorry to hear about all your stresses-- you've come to the right place in terms of seeking answers to some of your questions and just for basic support! All of us on here are going through similar HPV-related distresses so we know mentally and emotionally what you're going through.

I won't go through a detailed account of HPV, dysplasia, LEEPs, etc etc because quite a few threads on this board right now really go into detail on this topic. I would suggest that you read through these recent posts to have some peace of mind -- some of the women on this board are very knowledgeable and have gone through what you're going through.

I'll attempt to answer some of your questions. Please, please don't worry about the dysplasia! Trust me when I say it's more emotionally distressing than anything else, so the more relaxed about this you are, the better you will feel. I think it's normal to freak out initially, but once you process this all, you'll will feel better and more calm, believe me!

I really don't know about the gland involvement question. I'm sure some ladies on the board will be able to help you out there.

Moderate to severe dysplasia is not the end of the world! It seems like your doctor gave you a bit of an unnecessary fright when she asked you if you still wanted more kids. It's all pre-cancerous and this means that it is all treatable. The procedures, like a LEEP, are quick and efficient at removing the affected tissue and shouldn't cause many problems for you in the future. Even if you get a LEEP done, there is a slight chance of affecting your fertility (only 1-2% of women who get this done have a problem with it) BUT it is not common that a woman will experience problems with having babies after a LEEP. Of course, the more tissue you take out and the more LEEPs you have done on your cervix, the more problems you may have. But with one LEEP, generally there are no problems with most women who get them done.

Definitely seek a second opinion if you feel uncomfortable with your doctor now. Make a list of questions that you want answered and make an appointment for a consult before you get a LEEP done. The more you know, the better informed you will be and feel more in control of your own body. You should NOT be under duress when you get a LEEP.

I really don't know if there's any correlation between the IUD and dysplasia. I am pretty sure that most (if not all) types of dysplasia are caused by high risk HPV strains. It's one of the most common STDs in the world and almost all sexually active people will get it in their lifetimes. Unfortunately, what we're all going through right now, is very very common for a lot of women (especially in their 20s and 30s).

If you get a LEEP done, make sure you stress that you still may want more kids and that they need to be very conservative in the amount of tissue they remove. Also, make sure you trustyour doc and feel comfortable with him/her and know they will listen to all your concerns.

Good luck and definitely talk to more doctors. It's your body and you have the right to ask as many questions as you have and see as many and whichever doctors you want. But remember, it's more common than you know and it's all very treatable. Take care! :)
Hi aprila850, welcome to the board!

I know you are on an emotional roller coaser right now but you have come to one of the best places for support. If you read back through some of my previous post you will see that I have been through something very similar to your own story.

I had severe dysplasia last year and they found it when I was pregnant. All I could do was sit and wait. My doctor asked me the same thing about where I was with children as well. He told me that one LEEP wouldn't lessen my chances of having more children, however, the fact that the canal involved made it a little more risky. He also said that if I were to need another one in the future that would make pregnancy complications (such as the cervix opening prematurely) more possible. I decided before I gave birth to my second child that I didn't want anymore children so this was an easy decision for me. I suggest you educate yourself as much as possible before making any decisons.

I definately think that you should seek a second opinion. You should NEVER just accept what your doctor is telling you. If you are uncomfortable then you need to do whatever you can to make yourself comfortable (or at least accepting) with what you need to do. If your doctor won't refer you to a gyn/oncologist then at least go see another gyn who may feel differently.

As far as your IUD, I really can't help you out with that. I do know that when it comes to dysplasia my doctor told me that any hormonal birth control will have a negative effect. That may be something worth looking into for you.

Best of luck to you and try not to worry. I know it's easier said then done but do your best to keep a level head. This is all so treatable. Keep us posted with what's going on.
Hi aprila. I too have the same IUD. It was painful getting it inserted! Nobody
really tells you that do they. So sorry you went through it twice. I had abnormal results already when I got the IUD inserted. I didn't want to risk pregnacy while undergoing all this treatment. It didn't seem to effect my results any, however everyone is different. o I still showed mild dysplasia, however my LEEP showed mild, moderate and severe. A friend of mine had the same type of IUD inserted and she bleed constantly from it and got all sorts of infections (bacterial vaginosis). Eventually the doctor scheduled for a removal surgery. Her Paps are still normal.

Everyone is different with these IUDs it seems. I wish we were all the same so we knew when something was strange. So frustrating. With everything, not just IUDs and LEEPs and whatnot.

Hopefully they are not related, like mine. We will get through this. Like some of the other "senior" members said, read the posts, you will see that some are very knowledgeable and are going through the same thing you are.

Here for you,

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