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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


(((Hugs Bean))) I'm sorry you are having to deal with this, but I am glad you have found us!

I have never experienced anything like what you've described, but I was EXTREMELY anxious when I learned I was high risk HPV positive, had to have a colpo and ECC, a cone biopsy, and a hysterectomy.

With CIN II, you might consider getting an appointment with a gyn/oncologist. He/she is highly trained in atypical cells and probably has more expertise in various treatment options for various dysplasia.

I didn't have a LEEP, but I had a cold knife cone. It was done under general anesthesia in an out-patient facility. I was home by noon. I took pain killers for about 24 hours, then I was just a bit tender, like with mild cramps. My vaginal discharge lasted about a week or 10 days, it was like the light discharge I got on the last days of my period, but it lasted longer. It didn't require a pad, just a panty liner.

After having read about the in-office LEEP, I would NEVER chose that option. I was going to detail the things I find appaling about that, but decided they were a bit gross to put into my first post to you. I wouldn't chose it. But then, I haven't been in the situation you've been in.

I'm wondering if there is a way you could have a familiy member or friend watch what goes on during either procedure? You can always ask.

I was told that women over 30 have a more difficult time (and are less likely) fighting HPV, therefore it is more likely (in women over 30) for it to develop into dysplasia (and worse case scenario - cancer).

If you chose to wait and see, then I highly suggest you ask your doctor to do an ECC (endocervical curettage) to check the cervical canal for dysplasia. If you decide to wait and see, then it is imperative that you be vigilant about follow up appointments.

If cervical cancer is caught early, there is a 95-99% survival rate. (The numbers on the lower end if a woman has never had gynecological care and paps). I've always had my paps, every year since I was 19 (I'm now 45) and they have always been good. I was diagnosed with cervical cancer back in April (adenocarcinoma Ia1). The only treatment I need/ed was the hysterectomy. I won't need chemo or radiation BECAUSE the cancer was caught so early.

I don't want to give you a bunch of stuff to worry about. I really want to just share my knowledge and give you some hope that if caught early it is best.

Please ask whatever questions you have. We'll do our best to help.
Hello Pickle Eyes,

Thank you so much for your reply. What you went through sounds *so* much worse, I know I would have been scared to death....

I have considered a gyn/oncologist - but haven't tried to find one yet. The next step in my current plan is to go for a second opinion with a different ob/gyn (next week). I'm hoping to find one that I'm more comfortable with - maybe that will make all the difference.

Based on what little I've read about the in-office LEEP, I find it appalling, too. Electrical arc-ing, local anaesthetics that sometimes don't work, egad... The weird thing is that many of the brochures only mention the in-office, awake option, they don't seem to talk much about sedation...

I think the "technicolor" nature of the LEEP aftermath is because you're healing from internal burns from the electrocautery (at least that was what I gathered). I know that LEEP is considered to be a less serious (?) procedure than the cold knife cone, but the aftermath from your procedure sounds less nasty than what was described to me...

I have been encouraged to bring a friend along (it's required if you go for sedation). I even know one who I think would be really good with this, but I'm finding it very hard to pick up the phone and ask. Very few of my friends know the backstory, it's always been too hard to share...

I have had an ECC - it was done as part of my initial colposcopy (done by my primary care doc). She told me that it was clean, so that is good news. But that's part of the mystery, too - if there isn't anything up there, then why take so much with the LEEP?

I think the main thing I'd like to ask you is, what did you do to find support and reassurance back in April when you were going through all this? Did you find it through family? friends? your doc? the online boards? How did you reassure yourself that it was going to be OK, that they were going to treat you well and do the right thing? I realize that something needs to be done, but I'm finding it very hard to be comfortable with the idea of LEEP, or with the ob/gyn I saw last week.

The frustrating part for me is lack of firsthand information about this procedure and its aftereffects. If I'm going to have my house reroofed I ask the contractor for references, and they'll tell me what their experience was. Due to privacy concerns (understandable), you can't do that with docs and medical procedures. So, with only info from the doc to go by, it feels like I'm making this decision in a vacuum. And of course that leaves plenty of room for my imagination to take over and create horror stories....

Again, thank you for your support, it is greatly appreciated!


[QUOTE=Pickle Eyes;3740107](((Hugs Bean))) I'm sorry you are having to deal with this, but I am glad you have found us!

I have never experienced anything like what you've described, but I was EXTREMELY anxious when I learned I was high risk HPV positive, had to have a colpo and ECC, a cone biopsy, and a hysterectomy.

With CIN II, you might consider getting an appointment with a gyn/oncologist. He/she is highly trained in atypical cells and probably has more expertise in various treatment options for various dysplasia.

I didn't have a LEEP, but I had a cold knife cone. It was done under general anesthesia in an out-patient facility. I was home by noon. I took pain killers for about 24 hours, then I was just a bit tender, like with mild cramps. My vaginal discharge lasted about a week or 10 days, it was like the light discharge I got on the last days of my period, but it lasted longer. It didn't require a pad, just a panty liner.

After having read about the in-office LEEP, I would NEVER chose that option. I was going to detail the things I find appaling about that, but decided they were a bit gross to put into my first post to you. I wouldn't chose it. But then, I haven't been in the situation you've been in.

I'm wondering if there is a way you could have a familiy member or friend watch what goes on during either procedure? You can always ask.

I was told that women over 30 have a more difficult time (and are less likely) fighting HPV, therefore it is more likely (in women over 30) for it to develop into dysplasia (and worse case scenario - cancer).

If you chose to wait and see, then I highly suggest you ask your doctor to do an ECC (endocervical curettage) to check the cervical canal for dysplasia. If you decide to wait and see, then it is imperative that you be vigilant about follow up appointments.

If cervical cancer is caught early, there is a 95-99% survival rate. (The numbers on the lower end if a woman has never had gynecological care and paps). I've always had my paps, every year since I was 19 (I'm now 45) and they have always been good. I was diagnosed with cervical cancer back in April (adenocarcinoma Ia1). The only treatment I need/ed was the hysterectomy. I won't need chemo or radiation BECAUSE the cancer was caught so early.

I don't want to give you a bunch of stuff to worry about. I really want to just share my knowledge and give you some hope that if caught early it is best.

Please ask whatever questions you have. We'll do our best to help.[/QUOTE]





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