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Cancer: Cervical & Ovarian Message Board

Cancer: Cervical & Ovarian Board Index

Appointment #1
Mar 3, 2009
Alright, I had my first gyn/onc appointment today. I need to preface this by saying that I had a work meeting immediately following the appointment to find out whether or not I was losing my job (I just found out yesterday my company was eliminating people), so needless to say, my head wasn't quite in the game. (By the way, my job is fine -- thank God, because I really, really need my health insurance right now.)

Anyway, so I had a hard time getting all my questions answered, but I did get some info. I'm a little blurry on some things since I was wasting worries all over the place ;) -- but here's what I remember:

Depending on what they see when they receive my slides, I'll probably need to make a decision. The doctor isn't sure from the wording on my pathology report whether I have/had glandular or squamous dysplasia, but my gut tells me it's glandular. Anyway, if so, he said that right now since I had clear LEEP margins I have a 5% chance of this recurring and a 1% chance of it becoming cancerous. He recommends a CKC just to make sure everything is clear. I'm not sure how I feel about that yet -- he said I have enough cervix left to do a CKC, but I don't want to if it's not absolutely necessary.

As far as my cervix holding up during pregnancy, he said that most women normally have a 12% chance of miscarriage -- with a LEEP, I think it only goes up to 15%. A CKC increases that chance more, but I can't for the life of me remember how much more!!! He also said that the chances of this recurring during pregnancy are no greater or less than someone's chances if they weren't pregnant. He also suggested I have kids sooner rather than later in case this returns -- that adds another layer of stress to my situation because I have no idea when I might be able to do that and honestly, I didn't want to have to have kids anytime soon. Plus, the way I think about it, wouldn't I want to wait a couple of years to make sure this didn't return before getting pregnant???? I'd like to hear everyone's thoughts on that.

He said that my getting off of oral contraceptives was a smart thing to do, since studies are showing there is a link. He also said to definitely avoid smoke. As far as supplements, he said that Vitamin E was a good idea -- other than that, just eating vegetables and meats were good.

He briefly brought up a trach instead of a hysterectomy down the road, but we didn't get into that too much. Then he scared me with how the HPV can attack other areas once a hyst is done -- he said it's not common, but he's seen it happen -- ugh.

Another thing that I didn't like to hear was that he said people CAN ping-pong this back and forth and get reinfected. I HATE to hear that. I know most doctors say that people usually build up immunity to specific strains, but I'm still worried. I can't imagine when I'll feel comfortable having intercourse again.

Anyway, I'm rambling and my head still isn't too clear this evening. Hopefully I'll get more clarity after my second appointment tomorrow.

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