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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


Okay, so I'm back from the appointment . . . it was . . . meh.

I definitely felt A LOT better than I felt after my appointment with my regular gyn.


THE GOOD:

He did a regular exam, but not a colp or pap or anything. He said he's done thousands of colposcopies, and never had anyone have a reaction like I had. But he seemed more intrigued than skeptical. And he did not suggest that it was psychological!

He said he doesn't have to use the vinegar on future exams. I said I'd just suck it up if it really helped see stuff, but he said that he could see fairly well anyway, and since it wouldn't help him see inside my cervix where the AIS was, it doesn't really matter.

He said my cervix looks excellent (yay!) almost like I had nothing done to it. He said everything about it, including the opening, looked normal. So I guess I can thank my regular gyn for being a good surgeon! He said there's definitely enough to do another cone, but that probably won't be needed.

He said my unclear CIN margins weren't a big at all. That it would probably go away on it's own, and it wouldn't be a big deal to treat.

He said there is always a chance that follow up tests will miss something, but out of all the women he's followed with AIS, [B][COLOR="Red"]none[/COLOR][/B] have developed invasive cancer. I think that's very encouraging.

I asked if I should get follow up from a gyn/onc or a regular gyn. He said whatever I wanted. I said gyn/onc! So I'm making an appointment to be followed up by him.

I asked whether I should hurry up and have kids and then a hyst. He said I should wait at least 6 months for 2 clean follow ups, but at this point, there was no way I should change my life plan. He said [I]if[/I] the AIS comes back, and they do another cone, then he'd probably advise me to have kids soon. But right now, there's no rush.


THE BAD:

He was really ambiguous in all his answers. I think that's partly because no one really knows the answers, but it's just so unsatisfying! He said the recurrence rate is "low."

He said no one knows the percentage of AIS that will become invasive. And no one knows how long it will take. to go from "in situ" to invasive. He said about 3% carcinoma in situ become cancer each year. He said no one knows the answers for AIS because AIS is always treated agressively.

He said pregnancy generally depresses the immune system, but there is no data to show whether a recurrence is more likely. He also said they can't do an ECC while your pregnant.

He said an HPV test doesn't matter. I told him that I read that with negative HPV tests, AIS was less likely to recur. He said the results of the HPV test would have absolutely no bearing on his treatment plan. I don't know, I kinda think they would! Especially if I'm testing HPV positive!

I asked if there was anything I could do to help my immune system fight the HPV. He said no smoking and avoid stress. I've never had a cigarette in my life and that second one is impossible! Maybe I can write off massages as a medical expense . . .

Also, he seemed to recommend not as agressive follow up as my gyn! He said I'd come back in every 3 months for 2 years, but he'd alternate with colposcopies and regular exams.

And the whole time he was talking to me he was staring across the room and not looking at me! Weird.


His no eye contact thing is weird, but at least he doesn't make me want to cry! I think I could make it work with him. I could make one follow up with him because he's planning on doing a colposcopy then. And at that appointment, I'll tell him I want the works every 3 months, even the HPV test. If he agrees, I'll keep seeing him.

However, his office location is inconvenient and he's not in my insurance. So, hopefully I'll like the next gyn/onc just a little bit better.





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