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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


Normally the protocol for an abnormal pap that shows abnormal cells is to do an HPV test and if positive for a high risk strain, follow up with a biopsy. If the biopsy confirms considerable dysplasia they will usually do a LEEP procedure as a first step. In my case my pap showed AGUS, atypical glandular cells, which are usally located higher up in the canal. That is why they wanted to do an endo biopsy. As it turns out I also had non glandular cell dysplaysia, when they did the LEEP, the tissue came back as adenocarcinoma in situ or non invasive cancer.
The questions I would ask when I called on Monday would be 1. What did my pap show, atypical glandular cells or squamous or both? and 2. Did you do a repeat HPV test and if so was it positive for a high risk variety?

If I had known that I was looking at glandular cell abnormalities I would have consulted a gynecological oncologist before they did any surgery, then I would have had a CKC or cone procedure instead of a LEEP as they go further into the cervical canal. I have an appointment with an oncologist next Wednesday to see what they say, I also am seeing a specialist at John Hopkins the week after.

This all happened in less then a year for me, I'm 29 years old, terrified they are going to have to do a hysterectomy and I will never have kids. It's OK to be freaked out and confused. A few months ago I had no idea what any of this meant. I'm just grateful a board like this exists so that I know I'm not alone.





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