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Cancer: Cervical & Ovarian Message Board

Cancer: Cervical & Ovarian Board Index

Dmama, I don't recall what your pathology report said when it indicated endocervical cells. The wording on that can make a difference in what we (people who are not in the medical field, but have had personal experiences with the topics you are bringing up) suggest.

I strongly recommend the ECC to women who are: HPV positive, but don't have bad paps; are over 30 and are HPV positive; is sent for a colposcopy, and the colposocpy shows none or little exocervical problems.

Why? I had good paps, annually, for 25+ years. My first HPV test came back positive for high risk HPV. My colposcopy showed NO problems with my exocervix. The ECC is the ONLY thing that found that I had a problem in my cervical canal. My (first, and only . . . EVER) bad results from a gyn test showed "atypical glandular epithelial cells." Then I was sent for a cold knife cone biosy which diagnosed my cervical cancer. I have NEVER, even with the cancer diagnosis had a bad pap.

My gyn/onc told me, that with my pap history, if the gyn hadn't done the ECC, then the cancer would continue growing. At the point that my cancer was (invasive at 1mm), I would probably be symptomatic in one year. At that point, I *might* tell my doctor or I might chalk it up to the beginnings of menopause. At the point I became symptomatic my treatment (and prognosis) would have been VERY different. As it is, with a lesion that was less than 1 mm deep, I "only" had to have a hysterectomy to remove my cervix and uterus. Any deeper than that and I would have had to have a radical hyst and probably chemo and/or radiation.

Glandular cell dysplasia acts so differently from squamous cell dysplasia. They are more difficult to detect, grow more rapidly, and grow significantly more erratically than squamous cell dysplasia. It isn't something I would ever encourage a woman to put off, even for 6 months, if there is any indication of a problem.

So, that's why *I* strongly recommend an ECC. I realize my story is EXTREMELY rare. I also would never wish what I have been through on anyone. I hope that by campaigning so heavily for the ECC that at least one woman's endocervical problems are caught before they are symptomatic and have full blow cancer. I recommend the ECC (the only nonsurgical sampling of endocervical tissue) because I honestly believe it has saved my life. Period.

Of course, you have to make the best decisions about your body that you can, based on the information you have and the options you are given. I wish you peace in your decision.

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