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Cancer: Cervical & Ovarian Message Board

Cancer: Cervical & Ovarian Board Index

Thanks for you response. My husband did remind me that the Gyn/Onc did say that reason the cyst isn't smooth is because it ruptured which would explain the abdominal paid I had.
Thanks, Estria,

I should have read my response before sending it. what I meant to say was the Dr. said it "could" have ruptured which would be why it was irregular.

I really believe it did though. That would certainly cause the sudden unset of abdominal pain that went away after a day. I'm starting to think that maybe this is a dermoid cyst. It seems like I have a lot of the symptoms or non-symptoms. I've had should pain after sex off and on for the last few years, the cyst has gotten really big, etc.
I'm on my way to see another Dr this morning with the hopes I can get the surgery done sooner. I'm hoping that when I leave her office I'm a little more encouraged and don't leave discouraged. I will remember what you said though and try not to read to much into what the Dr. says. I also know there is no why to know what it is for sure until they do surgery, but with my symptoms I'm really starting to think it is probably just a benign cyst.
I went in today for a second opinion (and to see if I could get an earlier surgery date) with another Gyn/Onc. It went much better. She was more sympathetic with me and although she can't say for sure whether its benign or not, she did tell me that "it is more probable that it is benign" so I guess that is good news. She did an exam and said the cyst seems to be more in the middle of my pelvic area and higher up more moveable instead of being down low and kind of in a corner (if that makes any sense). She also said my CAT scan from the week before didn't show any lesions on my abdomen. My CA125 was really high, but she wasn't to concerned about that. She said if I was 60 years old with this cyst and a high CA125, she would be more concerned.

With the other Dr. I would have to wait over 3 weeks for surgery. With her, I might get in this Friday. I was happy about that.

I left there feeling like she didn't think it was cancer, but I know there is know way of knowing for sure. I still think the cyst I have ruptured which caused all the pain and I think the cyst has been there for a while because I have had a slight pinching feeling in my left ovary and my shoulder off and on for a few years now.

The one thing I have noticed is that since this all happened, I've have more cramping in my pelvic area and I'm really tired so I'm wondering if that is a symptom of a large cyst? I guess if it suddenly decided to grow, it would make sense, but I've always been a person who had cramping after a pelvic exam and I've had 2 in the last week.

I do have a few questions;

Is it normal to feel tired and kind of crampy or pressure in my pelvic area? I didn't feel this way until this whole thing happened.

Which cysts would cause a pinching feeling in ovary and shoulder?

Can a cyst latch on to both ovaries? (the Dr. thought she felt a really small moble cyst on my right ovary, but wasn't sure is the large one just latched on or something).

She is taking out both of my ovaries. What should I expect?

I'm still very anxious and probably won't feel 100% until I know for sure. I left the office today feeling confident and now I'm anxious again. Is that normal? I did ask the Dr. if she gets a lot of women who come in with this same thing and she said yes.

Why is she taking out BOTH ovaries ? You need to discuss this with her if she is the one doing the surgery. If the cyst is only on one ovary, you absolutely DO NOT have to have the other one out too.

Taking out both of your ovaries will kick you into instant surgical menopause. Even if you are not far from natural menopause, it is still not a good idea to remove both ovaries because not only will the other ovary provide you with a smoother transition into menopause but the ovaries continue to produce small amounts of estrogen after menopause (in some women it is as high as 25% of premenopausal levels). These small amounts of estrogen are protective for your heart and bones. The doctor may want you to go on hormone replacement therapy to make up for this but it is much better to have your own ovary do the job. Many women go through hell trying to find the level of synthetic hormone that makes them feel OK and the ovary does it as a normal part of its job.

If both of your ovaries are compromised then this is a different story BUT if the complex cyst is only on one ovary, both ovaries need not be removed, especially if there is a better chance that the cyst is benign (90% chance). Of course, if it is discovered that the cyst is cancerous, they may have to then go back in and remove the other ovary and perhaps also the uterus, cervix and omentum (the apron of fat that lies over your intestines and gynecological organs). However, the chances of this are low.

You may want to tell her that if the cyst is confined to only one ovary, then to only take out the one ovary. Actually, some doctors will only take out the cyst and leave the ovary in tact but if you are not overly concerned about fertility and you are in your forties then taking out the ovary will probably reduce the risk of another cyst appearing on that same ovary and your having to have another procedure. This is what most concerned me after I decided to have surgery and my doctor did not even give me the choice (don't get me wrong, if I had disagreed with her, I would have insisted she take out only the cyst). In addition to the cyst probably having already destroyed most of the ovarian tissue, I think that removing the ovary and tube along with the cyst is most likely a simpler procedure than opening the ovary, prying the cyst out, aspirating it and removing it and then suturing the ovary before closing. Of course the connections to the ovary would have to be sutured and cut so it is not all that much simpler but this with the fact that the ovary cannot malfunction again was reason enough for me.

I can tell you that if my doctor had said that she will remove the other healthy ovary, I would have said absolutely not. My doctor even asked me if I wanted to have a tubal ligation on the other healthy ovary and tube (for birth control) and I decided NO. I did not want anything to possibly interfere with my one remaining ovary's function (I have read that rarely the bloodflow to the ovary is compromised during tubal ligation). I told her to fix what is broken and to leave everything else alone.

MAKE SURE THAT YOU ARE HAVING THE RIGHT PROCEDURE AND THAT YOU DON'T RUSH INTO DOING THE WRONG THING BECAUSE YOU ARE SCARED. Take the time to speak to her and make sure that she has the right instructions as to what to do. Of course if there is cancer, she will have to do what is necessary to get as much of it as possible, including the removal of certain organs such as the other ovary etc.. HOWEVER, if it is a benign complex cyst on one ovary AND the other ovary is perfectly healthy, you will go into instant surgical menopause FOR NOTHING.

Many doctors still think that by removing the other ovary they will be removing the future risk of your developing ovarian cancer but ovarian cancer is not a common illness and kicking you into surgical menopause and possible future health problems in order to remove the remote possibility of future ovarian cancer makes absolutely no sense at all. The mindset is changing in the gynecological community regarding this but some doctors still have this idea.

As to the cramping and tiredness, it is difficult to tell why this may be. I would venture to guess that the tiredness you are experiencing right now is due to your anxiety and inability to sleep properly because of this cyst. The cramping could be due to the cyst, especially if it had ruptured. It would take time for things to calm down in there. The shoulder pain may be unrelated. When I had my cyst, I blamed every ache and pain on the damned thing and practically everything (including my ovulation pains) continued even after my ovary was removed.

Feel free to come back and ask more questions if you need to but in the meantime, be sure not to rush into things. Make sure your doctor knows your wishes before you have the procedure done.

Take care and keep us posted on how you are doing.

Thanks Estria for the suggestions.

Honestly, I've been so concerned about the cyst that I didn't even think about my ovaries and what could happen with that. I will talk to my Dr. for sure. I'm only 45 and even my Dr. said I was still probably 7 or more years away from starting menopause so I'm kind of surprised that she asked me about taking them both out. Maybe she saw how anxious I was and thought removing that anxiety from happening again would make me feel better.
I have surgery tomorrow. I reread the first response to wrote to me and I do feel like this isn't cancer. I will be so glad when it's over. The Dr. did an exam on my Monday and ever since I've just had intense cramping in my lower pelvic area. I'm guessing she some how irritated the cyst.
I did have another question for you:

To me this sounds like an endometrioma that ruptured. I've never had any pelvic pain since my hysterectomy, but I would occassionally get that twinge in my ovary that would go up to my shoulder. I've read the you can have an endometrioma and not know it and they can rupture due to intercourse or exercise or something like that. I did have a pelvic exam this past November, but my regular Dr. didn't feel anything at that time. Maybe it just decided to grow over the past few months. The Dr. I saw this week also noted that she thought she felt a small cyst on my left side but wasn't sure and thought it could be the larger cyst latching on to the other ovary since my cyst is higher up and more in the middle of my pelvis area. Does this sound like an endometrioma to you?

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