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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


Hi everyone. I've been lurking on this board for over a month now. I am just so overwhelmed. I have had mildly abnormal paps off and on for 2 1/2 years. My gyn chose to watch and wait (appts every 6 months) since I tested negative for HPV with that first abnormal pap. Fast forward to 3 more mildly (only ASCUS or LSIL) paps and they re-tested me for HPV. This time I tested positive and they immediately called me in for a colposcopy and biopsies. The pathology report came back with CIN III and AIS. The AIS shocked my gyn completely and he immediately made an appointment for me with who he referred to as "the best" gyn/onc in town. The appointment was the next day. Thank goodness because I was FREAKING. The gyn/onc was amazing...so kind and answered my endless questions with patience and compassion. He also told me that AIS is a rarer kind of cervical cancer and that it is usually multifocal and has about a 30% recurrence rate. I told him that my husband I had never been interested in having children and that I would do what I had to do. He then proceeded to perform a very "deep Leep" and took a large amount of my cervix. I had to wait 2 weeks for the results!!! I was going insane for the first few days, did better for a few days, then the panic escalated again as my follow up neared. 2 weeks later, my husband and I were sitting in the room waiting for my gyn/onc to give us the results. I was praying that the cancer was not invasive...my head was filled with thoughts of radiation and chemo, etc. I have never been to frightened. The first thing he said when he walked in the door was "Good News!" I started crying and hugged him. I'm not a crier or a hugger so that's saying a lot! He basically told me that I had both CIS and AIS but that the LEEP had gotten it all. He told me that I could either have three month follow ups for a long time with no absolute guarantee of catching a recurrence of the AIS or I could have the hysterectomy. Basically the hysterectomy is what he said I needed to have no matter what at some point. I don't want to live with the thought of a cancer recurrence (possibly invasive this time) hanging over my head for years. If I were dying to have a child I guess I might try to have one right now and then have the hysterectomy (freaking out the whole time and envisioning the cancer growing back), but I honestly have no desire for a child. My husband I haven't even been married one year. We didn't want children before all of this happened. I am struggling with the fact that a hysterectomy will take that choice away from me forever, but I've read the research and feel that when considering one's own health, the hysterectomy is the best choice. So I'm scheduled for November 8th. When I start feeling sorry for myself I remind myself how scared I was before I found out that it wasn't invasive. When he came in and said it was still "in situ" I felt like the luckiest girl in the world. I know that this is the best decision for me, I'm just scared. Well, wanted to share my story...I would love to hear from others with similar stories. I feel alone at times...
Wow! I can remember the feelings. In November 2002 I went in to have an emergency appendectomy and during the surgery my right ovary was removed. I woke up to find a woman next to my bed filling out forms. She had made appointments for me to follow up with a cancer clinic about 50 miles away. My doctor had not even been in to see me yet. It turned out I had ovarian cancer, stage IIIc endometriod adenocarcinoma. Five weeks and one day later I had a complete hysterectomy. The doctor told me I would not have made another 30 days without the surgery. We followed up with radiation, then chemo. I am now cancer-free!! :)
At my age, with a teenage son, it was easy to say cut it all out, but it must be difficult for someone with a new marriage. The good thing is you already planned to not have kids, but if you ever change your mind, there are a lot of kids who need to be adopted or fostered.
There are side effects to having a hysterectomy, which you need to discuss with your doctor AND your husband - not as a deterent to having the surgery, but to know what you can reasonably expect. Be open and honest with the doctor, he/she is your best guide to survival. Hang in there! I am glad to be alive, although for a short while I did not feel that way. It does pass. You will have good days and bad days, but on the bad days you can tell yourself, "If I am here to complain about it, I am doing all right!" That has become my mantra.
I had a LOT of other health problems, so I know my situation is abnormal. I am on disability, but working part time and working up to full time (I hope). Still, I am glad to still be here and to have been able to watch my son grow up.
Good luck with your surgery and may God bless you and yours.


[QUOTE=Corrett;4332880]Hi everyone. I've been lurking on this board for over a month now. I am just so overwhelmed. I have had mildly abnormal paps off and on for 2 1/2 years. My gyn chose to watch and wait (appts every 6 months) since I tested negative for HPV with that first abnormal pap. Fast forward to 3 more mildly (only ASCUS or LSIL) paps and they re-tested me for HPV. This time I tested positive and they immediately called me in for a colposcopy and biopsies. The pathology report came back with CIN III and AIS. The AIS shocked my gyn completely and he immediately made an appointment for me with who he referred to as "the best" gyn/onc in town. The appointment was the next day. Thank goodness because I was FREAKING. The gyn/onc was amazing...so kind and answered my endless questions with patience and compassion. He also told me that AIS is a rarer kind of cervical cancer and that it is usually multifocal and has about a 30% recurrence rate. I told him that my husband I had never been interested in having children and that I would do what I had to do. He then proceeded to perform a very "deep Leep" and took a large amount of my cervix. I had to wait 2 weeks for the results!!! I was going insane for the first few days, did better for a few days, then the panic escalated again as my follow up neared. 2 weeks later, my husband and I were sitting in the room waiting for my gyn/onc to give us the results. I was praying that the cancer was not invasive...my head was filled with thoughts of radiation and chemo, etc. I have never been to frightened. The first thing he said when he walked in the door was "Good News!" I started crying and hugged him. I'm not a crier or a hugger so that's saying a lot! He basically told me that I had both CIS and AIS but that the LEEP had gotten it all. He told me that I could either have three month follow ups for a long time with no absolute guarantee of catching a recurrence of the AIS or I could have the hysterectomy. Basically the hysterectomy is what he said I needed to have no matter what at some point. I don't want to live with the thought of a cancer recurrence (possibly invasive this time) hanging over my head for years. If I were dying to have a child I guess I might try to have one right now and then have the hysterectomy (freaking out the whole time and envisioning the cancer growing back), but I honestly have no desire for a child. My husband I haven't even been married one year. We didn't want children before all of this happened. I am struggling with the fact that a hysterectomy will take that choice away from me forever, but I've read the research and feel that when considering one's own health, the hysterectomy is the best choice. So I'm scheduled for November 8th. When I start feeling sorry for myself I remind myself how scared I was before I found out that it wasn't invasive. When he came in and said it was still "in situ" I felt like the luckiest girl in the world. I know that this is the best decision for me, I'm just scared. Well, wanted to share my story...I would love to hear from others with similar stories. I feel alone at times...[/QUOTE]





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