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Cancer: Cervical & Ovarian Message Board


Cancer: Cervical & Ovarian Board Index


I apologize in advance for the length of the post! I've been browsing the forums for several days now and was hoping some of the fantastic members could help me out as well :)

First off, some (relevant?) info...I'm almost 26, and have a 4 yr old son. I've been in a monogamous relationship with my fiance for almost two years. I've always been very cautious with my sexual health, although I've had a history of condoms breaking and birth control failing (my dear son is one case. ;) ) I've had poly-cystic ovarian syndrome since I was 15, and have very painful, although short and light, periods, for which I've been on birth control pills every since. My family has a very pervasive history of cancers of all kinds, and is wrought with other illnesses and disorders as well.

I had one pap come back abnormal when I was about 18, but I lost my insurance and never followed up :( My next pap was when I was pregnant with my son, which came back normal. The one following his birth was also completely normal. My next pap was last year in July (again, no insurance until then) and everything (including the HPV and STD testing I requested) was all fine. That was several months after I met my now fiance.

In June of this year I went in for my annual exam, and almost two months later they called and told me my Pap had been abnormal (the Dr. said the results were ASC-US, but not excluding the possibility of HSIL) and I was HPV positive. She told me to schedule a Colposcopy and biopsy as soon as possible. It took me two months of calling my insurance and arguing back and forth with my doctor's office about insurance coverage to have it scheduled (the front office faculty and referral woman at my office are apparently very incompetent.) So I finally went in for the Colpo and biopsy last Thursday (8 days ago) and she took 5 different biopsy samples. She was very brief, vague, and didn't answer any of my questions with any clarity. I called on Monday to schedule my two-week follow up/results appointment, and was told they already had the results, and it was too bad I had to wait the full 2 weeks for a follow up. They refused to have the Dr tell me any results over the phone or answer any of my questions until then though. Given the problems I've had with that office and my doctor's seeming lack of interest in my issue, I've taken my Aunt's advice and switched to her gyno. The staff there was very friendly and helpful, and told me that the results over the phone were as follows- CIN 1-2 and a negative ECC. They couldn't explain or answer any other questions however, so I'm still stuck waiting until the end of next week to see the doctor for clarification.

I've done research into these terms and I think I understand them well, however, I'm still confused about some other things for which I've received no clear answers. (And of course, if anyone wants to further explain the biopsy results and what they might mean in terms of diagnosis/treatment, I'm all ears, or rather eyes ;) )

First, after that first abnormal Pap at 18-19, I noticed a small, hard bump on my cervix, about the size of a large grain of sand. Every gyno I've seen since then has completely ignored my concerns about it, using my normal pap results as "proof" it is of no concern. However, it has since then increased in size to approximately the tip of my pinky, and is now softer. Even after this abnormal Pap, the Dr. discounted it, and said nothing of it during/after the colpo. Should I just take that this is something unrelated/unimportant?

If I was HPV negative last year (and in previous years) did I contract it since then, or could it just have been missed or dormant since an earlier time?

Were the types of HPV I was tested for JUST specifically the cancer-related strains, or could it have picked up one of the other strains? My fiance very well may have HPV also, but the variety that causes warts (it appears to be genital warts but he is getting conflicting info from doctors.) And if he does, and that is the strain I have, could the "abnormal" cells noted and CIN 1-2 results actually be HPV-related warts? Or is this a completely unrelated issue?

Also, right before I received the abnormal Pap results (but after the actual Pap) my period was several weeks late, I had two positive pregnancy tests, and all the early symptoms of pregnancy (actually very severely.) On the 3rd week after my missed period, the symptoms abated and I bled and cramped more severely than usual, passing a lot of large dark clots. I assumed I miscarried. When I asked my Dr. if that could have been at all related, all she had to say was "You're on birth control pills, I highly doubt you were ever pregnant at all." But "that it was in no way related to anything." On my next period I passed more stringy, old looking tissue than blood as well. Could this in fact be/have been related? :dizzy:

Sorry for all the questions, but I've been getting nowhere, and I'm very frustrated. Given my family history, I hate waiting when it comes to my health and I worry excessively.:confused: Thanks in advance for any help!
You need to make one thing perfectly clear to your doctor: you are the paying customer and you deserve to be treated with respect. Even though you may not be a doctor, you have lived with your body longer than anyone else and your opinion that something is off needs to be respected. Doctors who cannot or will not talk to their patients are a menace. I had repeated pap tests (all perfectly fine) and knew something was wrong, but my doctor poo-pooed my opinion and I let her. When I went in to have an appendectomy, ovarian cancer was found. The oncologist said without treatment I didn't have 30 days to live. Thank God my appendix blew! Since then I don't mind telling the high-and-mighty doctors to talk to me in plain English and without looking down their noses at me. Your life is at stake - if you think something is wrong, make sure SOMEBODY listens to you!! Good luck and may God bless you (and your beautiful son who, like mine, was an unplanned miracle).

[QUOTE=pixiecat1984;4337739]I apologize in advance for the length of the post! I've been browsing the forums for several days now and was hoping some of the fantastic members could help me out as well :)

First off, some (relevant?) info...I'm almost 26, and have a 4 yr old son. I've been in a monogamous relationship with my fiance for almost two years. I've always been very cautious with my sexual health, although I've had a history of condoms breaking and birth control failing (my dear son is one case. ;) ) I've had poly-cystic ovarian syndrome since I was 15, and have very painful, although short and light, periods, for which I've been on birth control pills every since. My family has a very pervasive history of cancers of all kinds, and is wrought with other illnesses and disorders as well.

I had one pap come back abnormal when I was about 18, but I lost my insurance and never followed up :( My next pap was when I was pregnant with my son, which came back normal. The one following his birth was also completely normal. My next pap was last year in July (again, no insurance until then) and everything (including the HPV and STD testing I requested) was all fine. That was several months after I met my now fiance.

In June of this year I went in for my annual exam, and almost two months later they called and told me my Pap had been abnormal (the Dr. said the results were ASC-US, but not excluding the possibility of HSIL) and I was HPV positive. She told me to schedule a Colposcopy and biopsy as soon as possible. It took me two months of calling my insurance and arguing back and forth with my doctor's office about insurance coverage to have it scheduled (the front office faculty and referral woman at my office are apparently very incompetent.) So I finally went in for the Colpo and biopsy last Thursday (8 days ago) and she took 5 different biopsy samples. She was very brief, vague, and didn't answer any of my questions with any clarity. I called on Monday to schedule my two-week follow up/results appointment, and was told they already had the results, and it was too bad I had to wait the full 2 weeks for a follow up. They refused to have the Dr tell me any results over the phone or answer any of my questions until then though. Given the problems I've had with that office and my doctor's seeming lack of interest in my issue, I've taken my Aunt's advice and switched to her gyno. The staff there was very friendly and helpful, and told me that the results over the phone were as follows- CIN 1-2 and a negative ECC. They couldn't explain or answer any other questions however, so I'm still stuck waiting until the end of next week to see the doctor for clarification.

I've done research into these terms and I think I understand them well, however, I'm still confused about some other things for which I've received no clear answers. (And of course, if anyone wants to further explain the biopsy results and what they might mean in terms of diagnosis/treatment, I'm all ears, or rather eyes ;) )

First, after that first abnormal Pap at 18-19, I noticed a small, hard bump on my cervix, about the size of a large grain of sand. Every gyno I've seen since then has completely ignored my concerns about it, using my normal pap results as "proof" it is of no concern. However, it has since then increased in size to approximately the tip of my pinky, and is now softer. Even after this abnormal Pap, the Dr. discounted it, and said nothing of it during/after the colpo. Should I just take that this is something unrelated/unimportant?

If I was HPV negative last year (and in previous years) did I contract it since then, or could it just have been missed or dormant since an earlier time?

Were the types of HPV I was tested for JUST specifically the cancer-related strains, or could it have picked up one of the other strains? My fiance very well may have HPV also, but the variety that causes warts (it appears to be genital warts but he is getting conflicting info from doctors.) And if he does, and that is the strain I have, could the "abnormal" cells noted and CIN 1-2 results actually be HPV-related warts? Or is this a completely unrelated issue?

Also, right before I received the abnormal Pap results (but after the actual Pap) my period was several weeks late, I had two positive pregnancy tests, and all the early symptoms of pregnancy (actually very severely.) On the 3rd week after my missed period, the symptoms abated and I bled and cramped more severely than usual, passing a lot of large dark clots. I assumed I miscarried. When I asked my Dr. if that could have been at all related, all she had to say was "You're on birth control pills, I highly doubt you were ever pregnant at all." But "that it was in no way related to anything." On my next period I passed more stringy, old looking tissue than blood as well. Could this in fact be/have been related? :dizzy:

Sorry for all the questions, but I've been getting nowhere, and I'm very frustrated. Given my family history, I hate waiting when it comes to my health and I worry excessively.:confused: Thanks in advance for any help![/QUOTE]





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