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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi All,

Any questions, comments, advice on this post would be so appreciated - just wanted to start off by saying that.

I'm never one to make any story short but I will do my best here..

I had voluntary foot/ankle reconstruction surgery July 2014. After severe pain for the first 3 months of recovery I was diagnosed with CRPS(RSD). The pain was only in my foot/ankle and was reduced by sympathetic nerve blocks that I received about 4 times over 3 months. I stopped them and since then have been taking Lyrica and Cymbalta to manage the pain.

I was getting better(slowly) until about a month ago when my foot started really hurting again and I was told I have a torn tendon and that the metal wedge that was used in my surgery is what is causing a lot of my pain. The specialist I saw wanted to do surgery, but when I got a 2nd and 3rd opinion they both shed some light on my CRPS and that might be what is causing my pain (as opposed to the orthopedic issues). They explained the risk of my pain spreading and how I would need to get it under control if I wanted to consider surgery...

I am no doctor but I believe my pain is caused both by these mechanical issues, as well as the CRPS. I would love to hear from anyone who is experiencing similar cases as mine or just any comments at all, but my question to you all is this...

Has anyone with CRPS/RSD had relief from their pain with someone rubbing/massaging their painful extremity? As opposed to greater pain with touch? I have read and heard a lot about CRPS patients who have extreme pain with touch, and with me it is the opposite. Even my foot rubbing against a pillow or sheets or carpet sometimes gives me some relief.

If any of you can relate to that, have you had your CRPS spread to other extremities? Or have you tried surgery?

Please feel free to message me or just respond! I really hope someone does as I am starting to lose my mind :(

Thank you all,

Rachel





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