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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Re: Rsd help needed
Mar 24, 2016
mia478 Hi and sorry you're having such a hard time.. I took an express route with my CRPS. I had carpal tunnel surgery in 2008 and SCS implanted in 2009 which was pretty much useless by the time I'd healed from the surgery. My Pain Dr at that time said he'd never seen such an aggressive case. The implant also developed a MRSA infection by year end which meant it had to go. Beginning of 2010 my left side was all CRPS with my lower back where the implant had been also CRPS.
Bottom line is that today I'm full body with CRPS and have known since 2010 that the only treatment that might help me is Ketamine infusion which can be hard to get insurance to pay for. Fortunately I'm also a Veteran and I was able to get coverage for my pain Dr through the Veteran's choice program and I've just completed my first Ketamine trial and am anxiously waiting to schedule the full procedure. For me at least Ketamine Works! Once the after/side effects of the Ketamine cleared from me on Monday I felt at least a 30% drop in pain in some of my worst locations and even my very bad and sensitive Allodynia was moderating. While the first 2 days were almost magical in how much better I was feeling the effect has been slowly fading and my pain returning so far though not to it's previous high level and it's responding better to my meds. The Complete procedure my Dr tells me runs twice as long as my trial and it's done for 3 consecutive days. All I've read on Ketamine says that it's blocking of different channels makes it more effective than all the Opioids for pain relief and the Ketamine procedure acts like giving a computer a reboot when it gets stuck.. in this case our bodies/brains are the computer and the Ketamine is the reboot. There is even a German Dr. who takes things to the limit and puts people into a 5 day Ketamine Coma infusing high doses of Ketamine the entire time but that therapy is not approved by the FDA for use in the US.. German Dr. has office in Germany and a clinic in Mexico but it's very expensive. The up side is that many Drs have had good responses with just the Ketamine infusion. You might want to ask your Dr about this or find a Dr that does the procedure in Dallas. I'm very hopeful that this can be my rescue from CRPS and it might be yours as well. Wishing you low pain and Good Luck!

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