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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


RSD & Itching?
Nov 14, 2003
I have been recently diagnosed with RSD in my left hand after a wrist reconstruction surgery in late August and a second surgery two weeks ago. I have the classic symptoms including burning, excruciating pain when using my fingers, swelling, excessive hair growth, discoloration, etc. But I also have intense itching in each knuckle that bothers me more than any of the other symptoms. I haven't read or heard of this symptom so far in my research. Does anybody else experience this? What helps?

Also, if anyone else has developed RSD post surgery, can you offer any encouragement about recovery?

Thanks a lot!
Re: RSD & Itching?
Nov 14, 2003
Welcome first off Jewel.. but sorry to hear about you having RSD.

About your itching, I had this also when I was first diagnosed last year. It does bug you more then the burning and stabbing pain at times nad if you try to itch it, it only makes it worse and then add on top of the pain from the RSD. Its common to have itching with RSD. I have had RSD stage 3 in my right foot and leg for over a year now and I got RSD after having foot surgery for a mortons neuroma. For the itching the best thing i found out was just warm soaking it in the tub with epson salts. My doc put me on meds after it bugged me so much and plus my symptoms were geting worse. He put me on neurontin and that took the zaps away and it also helped the itching. The itching is because of the nerves not geting the right messages and it does what it wants and the neurontin helps controll that..

Like I said before I got RSD after a foot surgery and it started 4 days after the surg. and my docs diddnt beleve me that i was in this much pain and even though i had a purple foot and it was swollen 3 times its size they said it was all normal.. well needless to say that doc was a ..well you know.. and i had to help myself get treatment nad find a hosp to do the nerve blocks . the only way i found out about them was through the net nad here... I am 14 mos with RSD and i am in stage 3 and have severe foot deformities due to the RSD attacking the tendons and muscles in my foot and leg. The first thing I would tell you is see a Pain Mang. doctor.. you need to start on meds, like neurontin and pain meds to help the RSD, and then starting having the blocks done... yours is very early and it is best treated in the first mos of diagnosis to put it into remission, after 6-9 mos.. it gets harder and harder after that.

Also Phy. Therapy is a biggy too to keep your range of motion active. also remeber no ice on your RSD. this will only flare it up and make it 10 times worse..

I hope im not scaring you but you are early in your diagnosis and you need this advice to put you into remiison. I dont want anyone to end up like me and being totaly disabled due to this and so young too.. (Im only 25) and have a spinal cord stim implanted also

Keep in touch and let us know how you are doing!! And ask any questions at all .. we have all been through so much and through different procedures, so one of us will have anwsers for yah.. hope youare doing ok .

:angel:
Bryn
Re: RSD & Itching?
Nov 14, 2003
Thanks for your in-depth reply and advice. I'm trying not to panic about this, but I've wondered at what point I need to be more proactive in treating the RSD. I am taking pain meds as needed and am in PT 3 times per week.

Hindsight being 20/20, I now realize that I first had RDS symptoms 2 days after my initial surgery 2 1/2 months ago. I expressed concern about the excessive swelling, funny coloring and finger immobility right away, but it was dismissed by my Dr. as within norms - ha! He now acknowledges the problem, but has turned me over totally to the therapist. (He's a good Dr., but he seems to be ignoring me.) You mentioned seeing a pain management Dr., but what about a neurologist?

Also, if I keep my hand in a neutral, slightly curled position I don't feel much pain. It's only when I move my fingers that they hurt. Physical therapy on the fingers is pure torture! Is this consistent with typical stage I RSD?

Thanks.

[QUOTE=RSD_Angel]Welcome first off Jewel.. but sorry to hear about you having RSD.

About your itching, I had this also when I was first diagnosed last year. It does bug you more then the burning and stabbing pain at times nad if you try to itch it, it only makes it worse and then add on top of the pain from the RSD. Its common to have itching with RSD. I have had RSD stage 3 in my right foot and leg for over a year now and I got RSD after having foot surgery for a mortons neuroma. For the itching the best thing i found out was just warm soaking it in the tub with epson salts. My doc put me on meds after it bugged me so much and plus my symptoms were geting worse. He put me on neurontin and that took the zaps away and it also helped the itching. The itching is because of the nerves not geting the right messages and it does what it wants and the neurontin helps controll that..

Like I said before I got RSD after a foot surgery and it started 4 days after the surg. and my docs diddnt beleve me that i was in this much pain and even though i had a purple foot and it was swollen 3 times its size they said it was all normal.. well needless to say that doc was a ..well you know.. and i had to help myself get treatment nad find a hosp to do the nerve blocks . the only way i found out about them was through the net nad here... I am 14 mos with RSD and i am in stage 3 and have severe foot deformities due to the RSD attacking the tendons and muscles in my foot and leg. The first thing I would tell you is see a Pain Mang. doctor.. you need to start on meds, like neurontin and pain meds to help the RSD, and then starting having the blocks done... yours is very early and it is best treated in the first mos of diagnosis to put it into remission, after 6-9 mos.. it gets harder and harder after that.

Also Phy. Therapy is a biggy too to keep your range of motion active. also remeber no ice on your RSD. this will only flare it up and make it 10 times worse..

I hope im not scaring you but you are early in your diagnosis and you need this advice to put you into remiison. I dont want anyone to end up like me and being totaly disabled due to this and so young too.. (Im only 25) and have a spinal cord stim implanted also

Keep in touch and let us know how you are doing!! And ask any questions at all .. we have all been through so much and through different procedures, so one of us will have anwsers for yah.. hope youare doing ok .

:angel:
Bryn[/QUOTE]
Re: RSD & Itching?
Nov 16, 2003
:) Hi Jewel :)

Welcome to the forum. You have come to a very caring place where everyone is so caring and understanding.

I get real bad deep down itching in my RSD hand .I can't even wear my wedding rings anymore because my finger starts to itch real bad and gets blisters.

I hope you are feeling well today.

((((Gentle Hugs))))
cattys
Re: RSD & Itching?
Nov 16, 2003
Thank you. Today was a little better than usual, a nice break. I haven't been able to wear my wedding ring in almost 3 months because of the swelling and pain. I just mentioned to my husband today that I'd like a gold chain so I can wear it around my neck.

I'm sorry about your deep itching - that's exactly what I have. It's interesting that itching isn't listed on any of the websites I've been to. Also, I have increased itching all over my whole body, particularly above the neck. I thought at first it was an allergic reaction to some meds, but I've ruled that out. I think it might have something to do with the RSD. What do you think?Thanks!





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