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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Vitamin B & RSD
Dec 11, 2003
I have recently been diagnosed with RSD and I am wondering if anyone can help me regarding any information on vitamin B & nerve regeneration. My specialist has prescribed Amitriptyline and I am not that keen to take it. (If anyone has any information on that too, that would be great). I have heard that large doses of Vitamin B is good for nerve regeneration, but I am not sure how much to take. I do already take it & a magnesium supplement with vitamin B, but I dont think it is enough. Doctors are not all that willing to give extra vitamins to help, but are more than willing to prescribe brain altering drugs. Any help would be really appreciated. :angel:
Re: Vitamin B & RSD
Dec 12, 2003
[QUOTE=Horsie Nutt]Hi. I just wanted to welcome you to the board. This is a great place to come for support, for answers to your questions, and to vent should you need to get something off your chest.

I saw a show on a well known cable network that did an experiment to test the trueness of magnetic healing powers, and I'm sorry to say this, but they found it to be a bunch of hogwash. But I also know people who swear by them too.

I also found this next bit of info on a web site. I can't say which one, so i'll paste what it said:
What about vitamins for RSD? Vitamin B? Other supplements?

We haven't yet found anything on vitamin B and RSD. In prevention we have listed a study done on RSD patients with vitamin C but that's it. Even there, it is said that vitamins are not treatment. A balanced diet can always help and this should be very important to people with chronic conditions. However, a good meal and vitamins are no substitute for treatment.

There are a number of very healthy things and not just for RSD. Foods with natural anti-oxydants (scavenger treatment, vitamin C, vitamin E) are to be recommended. Things like: bananas, green tea, tomatoes, green vegetables, carrots. A daily dose of fiber is also important, exotic fruit (more about this on this site in future updates).
You said you were just recently diagnosed. Does this mean that your symptoms have just started recently? (some people are misdiagnosed for years). If so, early, aggressive treatment is the best thing you can do to try to get this monster into remission.

Also, I don't know if anyone has ever told you this, but in case no-one has, NEVER put ice on your affected limb OR let anyone start an IV in it. These can cause flare-ups and possibly even spread.

I hope you have a pain tolerable weekend,

Hi Cathy,
Thanks so much for the information. I've definately come to the right place. Sometimes you can feel so alone, even with family & friends support. My RSD symptoms have only started since September, so hopefully I may be able to get on top of it early. I have however, had a pinched cranial nerve for six years on my left side and have now had an accident with my right shouler and hand fracturing the hand and dislocating the shoulder, which has triggered the RSD on the right side. So it's a fighting battle for me at the moment. I'm just looking for anything and everything that may help. The thought of brain altering drugs really does frighten me a little though. But I'll just see how I go.
Keep Smiling
Pran :wave:
Re: Vitamin B & RSD
Dec 13, 2003
Hello again Pran :wave: One of the difficulties with this site is that we cannot give out urls to other sites and so info has to be passed on , which often takes ages. However, there is a very good article which asks the question...Why is your RSD different from mine?.. Perhaps I can type a little each day, because I am not a proficient typist and it would take me all day to get through it LOL.

"The person writing this article was asking why their syptoms were different from others. Why it was that with blocks the sympathetic symptoms disappear but the pain doesn't. Why car vibration exacerbates others' pain, but doesn't affect mine" Below are some of the answers written from the papers of prominent researchers.

Different syndromes of sympathetic pain have been described. Dr Ocho was first to discover and describe the ABC syndrome. He conducted some very fine studies that showed that some people who were diagnosed with RSD actually were suffering from pain and symptoms that were being caused by the Angry Backfiring of the C-nociceptor nerves. These people has warm limbs n the third stage, nerve blocks were ineffective for these people, they used cold compresses rather than warm ones and when it is warm outside, their limbs were painful, and many had swellings during the third phase. There was an even smaller group of people who also fall under the ABC syndrome category who have limbs that can be hot or cold or even hot and cold at the same time. They are affected by hot or cold environmental temperatures. This smaller sub group have the ABC syndrome with cross temperature modulation.

Ok, what does this have to do with the questions asked at the beginning of the article? Dr Ocho claims that the ABC syndrome is not RSD it is a disease of it's own. Whether or not it is a subset of RSD or a separate disease is not as important as the knowledge that nerve blocks will not help this pain. Knowing that someone has the ABC syndrome effects how that person is treated and scientific sudies must separate those with the ABC syndrome from those who respond as the text books predict.

Dr Robert Schwartz has defined 5 separate syndromes that are now called RSD. I haven't seen this described in this way before but as I discuss the syndromes, you should know that other physicians have also identified these syndromes as being part of some of the cases of RSD. Take a moment to think about CRPS. Maybe it makes a little more sense when you consider the possibility that there may be more than one disease uner RSD. It also explains why the scientific studies have not been able to be produced , because without eliminating the different syndromes, researchers are trying to use one treatment to care for multiple conditions. Each syndrome or subset under RSD has pain that is being created by the misfiring of different nerves and may be using the sympathetic nerves to help carry the pain signals.

That's it for today Pan. Myself, I keep going back to this article, because further on it it sets out the different treatment for each syndrome. My son has had RSD for five years, so you can see that now it has spread to all four limbs I would dearly love to find out more and look at the latest research.

Edna [/B]
Re: Vitamin B & RSD
Dec 14, 2003
Guys...I wish i could cut and paste the article, but it was given to me by David's first Pain Consultant and I have never been able to access the site it came from. So here comes another episode. LOL

" Each subset acts quite differently and is treated differently. Only one of these subsets is what is called RSD, which is why we have so many different symptoms and presentations even though we have all been dignosed as having RSD.

Now I want to back up and follow the lecture given by Dr Robert Schwartz when he described how the different syndromes cause different symptoms and how to treat each syndrome. Remember there are two different nervous systems: The somatic system and; the autonomic system. The somatic is controlled by our thoughts. We tell a muscle to move and it does. The Autonomic system controls the functions that our mind cannot or doesn't control (the size of our blood vessels, sweating, etc ). A good example is when your bladder needs emptied, your brain doesn't tell you to empty it, you just feel you need to go.

The sympathetic nerves come from the spinal cord, they join the nerve root and they end in the blood vessels, hair follicles, the brain and muscles. They interact at the ganglion which is near the spinal cord and they go to the limbic system of the brain which moderates endorphins and emotions. The sympathetic reaction is the fight or flight response.

A nerve fibre has negative ions inside and positive outside. A stimulus allows the unions to move back and forth. When the system doesn't work right the ions don't go back. When it doesn't recharge it will refire more easily. Nerve membranes can be irritated by a virus, lack of oxygen, or something pushing on it.

RSD is what the text books call it. RSD is what we have all been diagnosed with, but what exactly is RSD. The text books describe RSD by it's symptoms. The latest definition is CRPStype1. This more general description doesn't speak about RSD coming from the sympathetic nervous sysytem because many of those who are diagnosed with RSD have sympathetically independant pain. ( Edna interrupts here to say that David now has SIP, and blocks and scs are no longer of use to him ) Let's review the five syndromes and the way in which Dr Schwartz feels they should be treated.

The RSD Syndrome.
RSD occurs because the sympathetic system reacts to an injury and the nerves continue to fire, long after the original injury has healed. The nerves never return to a normal state after reacting properly to the signal that part of the body is in danger. The pain is described as burning, achey, and cold. Movement and touch causes excessive pain(hyperalgesia). The limb wll suffer from vasomotor changes causing the skin to become bluish. Sudomotor changes cause either too much or too little sweating and usually some swelling in the beginning but none once the RSD advances to a higher stage. A limb may be cold even although it is sweaty. If left untreated contractures may occur and there is loss of movement and muscle atrophy. Bone begins to lose calcium and the RSD may spread. As one nerve misfires so the one next to it is caused to misfire. This causes an effect throughout the body's nervous system.

The treatment of RSD includes: Sympathetic Blocks which will stop the symptoms by allowing the nerves to return to resting stage. A few years ago the Nobel prize was given to a physician who discovered that all drugs given by mouth cause an electrical change. Vasodilators increase blood flow by relaxation or dilation of blood vessels. Antidepressants work on the brain itself to make you less aware of pain, anxielytics decrease the effects of stress and anxiety on the body, and physical therapy increases mobility and maintains muscle tone of the injured limb.

That's all for tomight guys.

Edna xx

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