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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


[B]HI, JUST READ THIS AND HAD TO PUT MY TWO CENTS IN. I HAVE HAD RSD SINCE 9-11-91, ORIGINATING FROM SURGERY TO MY LEFT KNEE. I HAD FALLEN , MY KNEE CAP SLIPPED OFF AND I ENDED UP FRACTURING MY TIBIARIGHT AT THE TOP WHERE YOUR KNEE CAP SITS.THE DOCTOR THAT DID THE SURGERY DAMAGED THE PERONEAL NERVE WHICH LEFT ME WITH DROP FOOT AND RSDBESIDES THE OTHER COMPLICATIONS I HAVE HAD. THANKS TO HIM I HAD TO GO ON DISABILITY AND SUFFER WITH THIS HORENDIOUS PAIN FOR THE REST OF MY LIFE.HE TOLD ME ,"IF YOU WERE A PROFESSIONAL ATHELETE , I WOULD DO SOMETHING RIGHT AWAY. BUT SINCE YOU STAY HOME , WE WILL LET TIME TAKE IT'S COURSE". EASY FOR HIM TO SAY. I DID WORK . MY HUSBAND TRAINS RACE HORSES AND I WAS A GROOM AND HELPED HIM WITH THE HORSES.SO MY EASY LIFE :confused: AS HE SO WELL SAID I HAD WAS OVER.BECAUSE OF HIM I HAVE HAD TO ENDURE PAIN, TERRIBLE TEST, MEDICINE THAT DON'T WORK AND GIVE YOU THESE SIDE EFFECTS,AND HE NEVER SAID I'M SORRY OR LET ME TRY TO HELP YOU. HIS MAIN CONCERN WAS I WAS NO PROFESSIONAL. BUT I AM HUMAN......
I CHANGED DOCTORS AFTER THAT AND THEY TOLD ME IF HE WOULD HAVE DONE SOMETHING AT THE BEGINNING I MIGHT NOT BE AS BAD AS I AM. THEY WENT IN TRIED TO CLEAN OUT THE PERONEAL NERVE WHICH DIDN'T HELP AS IT WAS TO BAD TO REPAIR . IT WAS LIKE HE HAD CUT IT INTO. ALSO THEY HAD TO RELEASE THE TENDON IN THE BACK OF KY KNEE BECAUSE I COULDN'T STRAIGHTENED OUT MY LEG.I WAS IN THEARPY FOR OVER 2 YEARS WHICH I HAD TO STOP AS IT WAS DAMAGINGTHE KNEE JOINT.
ANYWAY WHAT I AM GETTING TO IS I TAKE PERCOCETTS, MS CONTIN, AND ZOLOFT. BUT WAS ON SO MUCH STUFF I COULDN'T HANDLE THE SIDE AFFECTS AND NOTHING TOOK THE PAIN AWAY. IT ONLY HELPS ME TOLERATE THE PAIN.I NOW GOT TO A PAIN CLINIC AND THEY HAVE TRIED NUMEROUS THINGS FROM DIFFERENT DRUGS, NERVE BLOCKS, FUSION IN IV,S, ACCUPUNCTURE, TEMPARY SPINAL STIMULATOR AND NOTHING HAS WORKED. I WON'T LET THEM DO THE PERMANENT SPINAL STIMULATOR.FOR ME THERE IS NO DRUG THAT WILL TAKE THE PAIN AWAY . I TAKE THE MEDS I TOLD YOU ONLY TO HELP ME TOLERATE THE PAINAND THERE ARE MANY , MANY DAYS I FEEL LIKE JUMPING OFF A BRIDGE CAUSE THE PAIN GETS SO BAD. BUT I DON'T I JUST GO WITH THE PAIN AND IT WILL BE WITH ME THE REST OF MY LIFE.SO IF YOU DO FIND SOMETHING THAT WILL TAKE THE PAIN AWAY PLEASEEEEEEEEEEE LET ME KNOW.THANKS FOR LISTENING . SO HAPPY I FOUND THIS PLACE WITH PEOPLE WHO UNDERSTAND WHAT WE GO THRU.KEEP SEARCHING AND MAYBE YOU WILL FIND SOME RELIEF .... ASHBYHORSES :angel:





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