It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Dear all,

I just joined health boards a few weeks ago but today is my first post. I was diagnosed w/RSD 2 and a half years ago. I had an ankle arthroscopy in Feb of 2001 and starting getting stabbing pains a few months later. I was extraordinarily lucky in that I was diagnosed a few months later. I found at I had nerve damage to my right peroneal nerve and since then, my RSD has spread into the entire lower half of my body.

I guess I am writing to you all because I am frustrated with my progress. I am currently in law school and have been trying to balance treatment with my school work. I have managed to stay in school thus far although I have missed at least 3 to 4 weeks a semester due to RSD.

Within the past few years, I have tried a whole range of treatment options, all of which seemed to either not work or caused me great side effects. Let's see...I was in physical therapy for about 6 months, which helped with the sensitivity but not much else. While in physical therapy, I tried acupuncture, which did not help at all (besides, I'm deathly afraid of needles). I also tried a sympathetic block which caused me to be extremely ill and my pain returned on my way home from the hospital. Since then, I have had 3 epidural infusions. The infusions seemed to decrease my pain at least for a month or two, but everytime I was in the hospital, my blood pressure would drop to extremely low levels and I would leave the hospital with a horrible spinal headache (where spinal fluid is leaking and you can't get out of bed). Therefore, after getting out of the hospital I would have to get 1 or 2 blood patches (where they inject blood taken from your arm into your back) to stop the leaking. I have also had cryosurgery done twice (where they have frozen my nerves in my right foot). This past November, I tried a popitil block (numbing the lower half of your leg in the hospital--it's similar to an epidural infusion). I ended up going into toxic shock in the hospital, where I almost stopped breathing and they had to give me medication to revive me and depressants to keep my from shaking. I'm back to just taking a ton of medication. Until last week, I was taking 2100 mgs of Neurontin, 50 mgs of Trazadone, 750 mgs of Keppra, 20 mgs of Pamelor, 8 mgs of Gabitril, 15 mgs of Methadone, 1300 mgs of Percocet, amd about 650 mgs of Ultracet. I have decreased many of my medications within the past week because I went into toxic shock again this past week and my doctor got freaked out (by the way, I only way about 90 lbs). Anyways, if anyone has any questions about medications, I've tried most painkillers and neuropathic medications.

I apologize for the long message but I am really frustrated. I am trying to finish my law degree and don't know what else to try as the pain continues to get worse. I have an appointment on Tuesday to see a doctor who does hyperbaric oxygen treatments. I am also considering another epidural infusion, during which my doctor would also give me a ketamine drip or a spinal cord stimulator. I was wondering if anyone knew anything about these treatments or any other possibilities.

I also just wanted everyone to know that I am here for all of you. I just turned 24 years old and know how hard it is to plan your entire future w/RSD in the background. I want to continue my life as normally as I can and was wondering if anyone could offer any advice to me. If anyone has any questions for me, please feel free to respond because although I have only had RSD for a little over 2 years, I have spent these years trying one treatment after the next.

Thank you for your time.

All times are GMT -7. The time now is 06:32 PM.

© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!