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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Gina,

I was also young when I started with RSD--15. I'm now 33 (not so young :)). Anyway, your questions...I also have it in my legs and I've had many lumbar sympathetic blocks which is what I think you're talking about. I was awake for all of mine, but I know a lot of people have sedation with their's so maybe that's how your doc will do it. I'm sure that helps make things a lot easier. The blocks did hurt, but they weren't horrible. I was not numb after as you described you were after having an epidural. With epidurals, it depends on how much lidocaine/marcaine/numbing med they put in there. Not all epidurals that I've had made me numb. About removing part of the nerve...you might be talking about a sympathectomy--not sure. I had one and I don't recommend it AT ALL, but then again, there are other people who have said that it helped them, but from what I've heard, they are the minority.

I know having RSD is scary and I felt alone for a long time even though I had a great support system at home. It's very scary.

When are you going for your block? Let us know how you do. If there's anything else we can help you with, let us know. If I didn't answer your questions well enough, let me know that too and I'll try again :).

Sharon :)
[SIZE=3][COLOR=RoyalBlue]Hi again,

One of your questions I forgot to answer...the needle for a lumbar sympathetic block is put in your back.

Sharon :)[/COLOR][/SIZE]
[FONT=Book Antiqua][I][SIZE=4][COLOR=DarkGreen]Dear Gina:

Welcome to the board although I wish we were meeting you for different reasons. I have lumbar sympathetic blocks about every 6 weeks. I have no sedation. It is uncomfortable, but not overly painful. On a scale of 1-10 for pain, I would give it a three. My PMD always distracts me while he is working. Also, they find the nerve that they will put the medicine down with flourscopy. I think that you should call his office and talk to his nurse about exactly what your PMD is going to do. She should relieve your fears. I know the first block I didn't know what he was going to do, but I figured anything was better than a huge foot turning purple. Try PT, blocks, stretching exercises. Just keep moving even though you don't want to. But, really, really research, read and think about everything you can get your hands on about the surgery before you jump into it. Your very young and may have caught this in time to reverse it. I have read that younger RSD'ers have a better chance of reversal. How long have you had RSD? Also, write down your questions for when you meet with your PMD. I always do.

I will pray for you.

LiZ[/COLOR][/SIZE][/I][/FONT]

[FONT=Book Antiqua][I][SIZE=3][COLOR=DarkSlateBlue]"Somebody's praying me through"[/COLOR][/SIZE][/I][/FONT]





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