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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


moonlight;

HI, I HAVEN'T HAD ANY BACK INJECTIONS AND ITS TOO LATE FOR ME TO GET ANY. ONCE YOU HAVE PROGRESSIV SPREAD MY NEUROLOGIST FEELS IT DOES MORE HARM THAN GOOD TO KEEP INJECTING AN ALREADY MISS FIRING NERVOUS SYSTEM. MY DOC. IS A BELEIVER IN KETAMINE AND LIDOCAINE IV INFUSION. IT TOOK ME OVER 1 YEAR TO BE DIAGNOSED AND WORKERS COMP IS STILL FIGHTING ME. ITS BEEN 2 YEARS SINCE MY KNEE INJURY. ONCE EVERYTHING ELSE IS RULED OUT, THAN A SOLID RSD DIAGNOSIS CAN BE MADE, YOU ALSO HAVE SWELLING, TEMP CHANGES, SKIN CHANGES. IT HAS COSTED $1000.'S FOR MY DIAGNOSIS. I'VE SEEN 13 PLUS DOCTORS. MY SWELLING AND SKIN CHANGES WEREN'T SEVERE IN THE BEGINNING, I HAD SEVERE KNEE PAIN24/7 AND COULD'T WALK LONG, COULDN'T SLEEP AT NIGHT, AND COULDN'T STAND TO BE TOUCHED ON MY KNEE. NOW MY LEG/KNEE IS SWOLLEN AND COLD. ONE POINT MY DOCTOR MADE IN MY CASE IS MY PAIN LEVEL IS SO HIGH AND I'M NOT IN CONTROL OF MY PAIN, ANYTHING TO LESSEN THE PAIN DRASTICALLY FOR 1 DAY OR 1 WEEK IS GOING TO MAKE THE PAIN COME BACK EVEN WORSE. THERES NO CURE.

DARVOCET WILL NOT TOUCH RSD PAIN. ASK YOUR DOCTOR FOR NEUROTIN, LIDOCAINE PATCH, KETAMINE GEL, MUSCLE RELAXER,NORTRIPYLINE(TO HELP SLEEP), I WOULD DEFINELY KEEP IN MIND ABOUT HAVING 2ND OPINION ON THAT NEW KNEE AND THE KNEE CAUSING A ALLERGIC REACTION.BYE :D
[QUOTE=jokehakk]moonlight;

HI, I HAVEN'T HAD ANY BACK INJECTIONS AND ITS TOO LATE FOR ME TO GET ANY. ONCE YOU HAVE PROGRESSIV SPREAD MY NEUROLOGIST FEELS IT DOES MORE HARM THAN GOOD TO KEEP INJECTING AN ALREADY MISS FIRING NERVOUS SYSTEM. MY DOC. IS A BELEIVER IN KETAMINE AND LIDOCAINE IV INFUSION. IT TOOK ME OVER 1 YEAR TO BE DIAGNOSED AND WORKERS COMP IS STILL FIGHTING ME. ITS BEEN 2 YEARS SINCE MY KNEE INJURY. ONCE EVERYTHING ELSE IS RULED OUT, THAN A SOLID RSD DIAGNOSIS CAN BE MADE, YOU ALSO HAVE SWELLING, TEMP CHANGES, SKIN CHANGES. IT HAS COSTED $1000.'S FOR MY DIAGNOSIS. I'VE SEEN 13 PLUS DOCTORS. MY SWELLING AND SKIN CHANGES WEREN'T SEVERE IN THE BEGINNING, I HAD SEVERE KNEE PAIN24/7 AND COULD'T WALK LONG, COULDN'T SLEEP AT NIGHT, AND COULDN'T STAND TO BE TOUCHED ON MY KNEE. NOW MY LEG/KNEE IS SWOLLEN AND COLD. ONE POINT MY DOCTOR MADE IN MY CASE IS MY PAIN LEVEL IS SO HIGH AND I'M NOT IN CONTROL OF MY PAIN, ANYTHING TO LESSEN THE PAIN DRASTICALLY FOR 1 DAY OR 1 WEEK IS GOING TO MAKE THE PAIN COME BACK EVEN WORSE. THERES NO CURE.

DARVOCET WILL NOT TOUCH RSD PAIN. ASK YOUR DOCTOR FOR NEUROTIN, LIDOCAINE PATCH, KETAMINE GEL, MUSCLE RELAXER,NORTRIPYLINE(TO HELP SLEEP), I WOULD DEFINELY KEEP IN MIND ABOUT HAVING 2ND OPINION ON THAT NEW KNEE AND THE KNEE CAUSING A ALLERGIC REACTION.BYE :D[/QUOTE]

Joke:

:wave: I can emphathize with your plight because I am also catchining hell with Workers Comp./Employer :mad: . Both of them have been standing in the way of my treatment(Blocks,OT,PTin pain mangement clinic). The only difference between you an I is the region where the RSD started which in my case is my right dominant hand.

I agree with you 100% about the medicine situation. The medications that you mentioned are what I am currently on. They are some what effective for me. Hang in there and keep up the fight! :bouncing:





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