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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


HI SARAH, SORRY TO HERE YOU YOU'VE DIAGNOSED WITH RSD. HOW LONG HAVE YOU HAD RSD IN FOOT AND LEG? IF ITS WITHIN 3-6 MONTHS, I WOULD ASK ABOUT BLOCKS. BLOCKS TEND TO WORK BETTER IN THE BEGINNING.

I WOULD ASK YOUR DOCTOR TO WRITE A SCRIPT FOR POOL THERAPY. I HAVE RSD IN MY LEFT LEG AND BOTH ARMS. I GO TO P.T. 2 TIMES A WEEK WHICH IS ABOUT 1 HOUR IN THE POOL AND HOTTUB AND I BASICALLY DO THE EXERCISES THAT DON'T INFLICT PAIN. MY P.T. MAN DOES ABOUT 5-10 MINUTES OF PASSIVE R-O-M WITH MY LEFT HIP AND ANKLE, THATS IT. MAKE SURE THE P.T. KNOWS WHAT RSD IS, THERE ARE ALOT OF THERAPISTS WHO DO NOT UNDERSTAND THE PAIN AND WILL PUSH YOU BECAUSE THEY WANT THE CARE PLAN GOALS TO BE MET WITHIN A CERTAIN TIME PERIOD. [B]A RSD PATIENT DOES NOT FOLLOW THE STANDARD OF PRACTICE AND CANNOT ACHIEVE GOALS, SET WITHIN A TIME PERIOD.[/B] I'VE BEEN IN P.T. FOR 2 YEARS AND HAD 3 DIFFERENT THERAPISTS. ONE HELPED MY CONDITON GET WORSE AND TREATED ME LIKE A FOOTBALL PLAYER, ONE GAVE UP ON ME BECAUSE I COULDN'T MEET HER GOALS AND OUTCOME, MY GUY NOW IS GREAT AND HE FEELS EMPATHY AND TALKS WITH ME EACH SESSION ALSO. HE RESPECTS MY LOW TRESHOLD OF PAIN AND DOES NOT PUSH ME. GOOD LUCK. :wave: I DON'T KNOW WHAT TYPE OF DOC. YOU HAVE BUT YOU MAY WANT TO SWITCH TO A NEUROLOGIST OR ANTHESIALOGIST. MY NEUROLOGIST DOES ALL HIS OWN PROCEDURES BLOCKS, INFUSIONS, STERIOD INJECTIONS, ETC.





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